Anyone tried Spinal Cord Stimulation for Chronic Pain?

Posted by steeldove @steeldove, Oct 25, 2018

Spinal Cord Stimulation – A Compelling Treatment Alternative for Chronic Pain https://www.hss.edu/conditions_spinal-cord-stimulation-treatment-alternative-chronic-pain.asp
Vladimir N. Kramskiy, MD Assistant Attending Neurologist, Hospital for Special Surgery, Clinical Assistant Professor of Anesthesiology, Weill Cornell Medical College
What Is Spinal Cord Stimulation?
Read more here: https://www.hss.edu/conditions_spinal-cord-stimulation-treatment-alternative-chronic-pain.asp
Posted: 10/8/2018

Anyone tried Spinal Cord Stimulation for Chronic Pain?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@martyk

What is a Saluda?

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Spinal cord stimulator

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@bettyg81pain

Spinal cord stimulator

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Never heard it called that. Thanks

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Has anyone tried SCS for neuropathy pain relief? Curious to know its effectiveness

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Hi @juli175, I moved you discussion and combined it with an existing discussion titled:

- Anyone tried a spinal cord stimulator for chronic pain?
https://connect.mayoclinic.org/discussion/spinal-cord-stimulation-2

I did this so you could meet members like @dablues who had neuropathy indicated and recently had a spinal cord stimulator placed, and @pat79 who had neuropathy and had a stimulator placed.

@juli175, if you are comfortable sharing, what else have you tried to get relief from your neuropathy?

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@patrick17

Thanks so much for posting this. My pain management doctor has recommended this and I’m trying to get as much information as possible about this before my next appointment. This was very helpful.

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I tried the temp stimulator to see if it would work for me. the doctor had a hard time to get the leads in on the right side due to multiple bone spurs. Doc was able to get the lead on the left side for me to try. Got to admit that for two days I wanted the lead out of my back, First off I was tired from all the pain I endured with the dr trying to get the lead on the right side. Sure they kept giving me pain meds, but still took a lot out of me. But I also do admit it was helping my pain at least on the left side. But wanted both sides to try out since my right side was the worse of the two. But after having my hissy-fit and keeping the lead in for at least five days, it was helping the pain. I slept better, because at night since I am a side sleeper I would lay on one side and during the night pain would shoot down my left leg and then I would have to to toss and turn all night long, as both sides act up. When walking, the right side would act up after walking 5 minutes and then when I limp and baby the right side, then the left side would start to act up. Such a pain to live like this. I am scheduled end of September to see a neurosurgeon because my pain doctor suggested that I get the paddle shape stimulator that is sutured to my spine, as the leads they had a hard time getting in due to all the bone spurs. As much as I am not looking forward to the surgery and having to wear a back brace for 4-6 weeks, and not being able to lift, twist, bend and with winter coming I will not be able to shovel (which that is a plus), but while I am sort of laid up, at least I will be pain free or at least a good percentage of pain be gone. but I know it did work and I am looking forward to it really working so I can get my life back. So at least give the trial a try, because it could change your life for the better. With my issues, they tried all types of things and everything failed. The doctor was worried because I have to live on blood thinners for the rest of my life due to a PE back in 2014. So there was a risk to even try the trial and be off my blood thinners for 5-7 days. But I only had the stimulator on for 5 days and got good results to where they could take the stimulator out and get back on my blood thinners sooner. So all worked out good and now just waiting to get the implant. I have already started feeling hope for a better life to come once that stimulator is implanted. For many years dealing with the pain, I have lost hope and have felt like why live like this, but I keep forging forward hoping for a miracle. and I think I have finally been given that hope for a better life. So if your doctor suggests it, give it a try. and don't be like me and have a hissy-fit, because I was just feeling irritable and I wanted a miracle to happen. And I am not one that likes certain changes in life. But once that stimulator is in me, I will have a new lease on life. Give it a try!!! You owe it to yourself to get that better life you deserve. Good luck!

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@sharibaby17

I tried the temp stimulator to see if it would work for me. the doctor had a hard time to get the leads in on the right side due to multiple bone spurs. Doc was able to get the lead on the left side for me to try. Got to admit that for two days I wanted the lead out of my back, First off I was tired from all the pain I endured with the dr trying to get the lead on the right side. Sure they kept giving me pain meds, but still took a lot out of me. But I also do admit it was helping my pain at least on the left side. But wanted both sides to try out since my right side was the worse of the two. But after having my hissy-fit and keeping the lead in for at least five days, it was helping the pain. I slept better, because at night since I am a side sleeper I would lay on one side and during the night pain would shoot down my left leg and then I would have to to toss and turn all night long, as both sides act up. When walking, the right side would act up after walking 5 minutes and then when I limp and baby the right side, then the left side would start to act up. Such a pain to live like this. I am scheduled end of September to see a neurosurgeon because my pain doctor suggested that I get the paddle shape stimulator that is sutured to my spine, as the leads they had a hard time getting in due to all the bone spurs. As much as I am not looking forward to the surgery and having to wear a back brace for 4-6 weeks, and not being able to lift, twist, bend and with winter coming I will not be able to shovel (which that is a plus), but while I am sort of laid up, at least I will be pain free or at least a good percentage of pain be gone. but I know it did work and I am looking forward to it really working so I can get my life back. So at least give the trial a try, because it could change your life for the better. With my issues, they tried all types of things and everything failed. The doctor was worried because I have to live on blood thinners for the rest of my life due to a PE back in 2014. So there was a risk to even try the trial and be off my blood thinners for 5-7 days. But I only had the stimulator on for 5 days and got good results to where they could take the stimulator out and get back on my blood thinners sooner. So all worked out good and now just waiting to get the implant. I have already started feeling hope for a better life to come once that stimulator is implanted. For many years dealing with the pain, I have lost hope and have felt like why live like this, but I keep forging forward hoping for a miracle. and I think I have finally been given that hope for a better life. So if your doctor suggests it, give it a try. and don't be like me and have a hissy-fit, because I was just feeling irritable and I wanted a miracle to happen. And I am not one that likes certain changes in life. But once that stimulator is in me, I will have a new lease on life. Give it a try!!! You owe it to yourself to get that better life you deserve. Good luck!

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Wow!! They were working on putting in your temporary stimulator with you awake?!!! Yow!!
They put me out completely-the Boston Scientific trial did not work at all which made their rep ( who I'm certain would have made a nice commission) really aggravated to the point that she did not even say she was sorry it hadn't worked or much worse!! I am scheduled in a few days to have the newly FDA approved Saluda trial. Tramadol and all of the drugs do something to my mind!! Have you been taking gabapentin or pregabalin? We want our lives back the way they were!!!

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@sharibaby17

I tried the temp stimulator to see if it would work for me. the doctor had a hard time to get the leads in on the right side due to multiple bone spurs. Doc was able to get the lead on the left side for me to try. Got to admit that for two days I wanted the lead out of my back, First off I was tired from all the pain I endured with the dr trying to get the lead on the right side. Sure they kept giving me pain meds, but still took a lot out of me. But I also do admit it was helping my pain at least on the left side. But wanted both sides to try out since my right side was the worse of the two. But after having my hissy-fit and keeping the lead in for at least five days, it was helping the pain. I slept better, because at night since I am a side sleeper I would lay on one side and during the night pain would shoot down my left leg and then I would have to to toss and turn all night long, as both sides act up. When walking, the right side would act up after walking 5 minutes and then when I limp and baby the right side, then the left side would start to act up. Such a pain to live like this. I am scheduled end of September to see a neurosurgeon because my pain doctor suggested that I get the paddle shape stimulator that is sutured to my spine, as the leads they had a hard time getting in due to all the bone spurs. As much as I am not looking forward to the surgery and having to wear a back brace for 4-6 weeks, and not being able to lift, twist, bend and with winter coming I will not be able to shovel (which that is a plus), but while I am sort of laid up, at least I will be pain free or at least a good percentage of pain be gone. but I know it did work and I am looking forward to it really working so I can get my life back. So at least give the trial a try, because it could change your life for the better. With my issues, they tried all types of things and everything failed. The doctor was worried because I have to live on blood thinners for the rest of my life due to a PE back in 2014. So there was a risk to even try the trial and be off my blood thinners for 5-7 days. But I only had the stimulator on for 5 days and got good results to where they could take the stimulator out and get back on my blood thinners sooner. So all worked out good and now just waiting to get the implant. I have already started feeling hope for a better life to come once that stimulator is implanted. For many years dealing with the pain, I have lost hope and have felt like why live like this, but I keep forging forward hoping for a miracle. and I think I have finally been given that hope for a better life. So if your doctor suggests it, give it a try. and don't be like me and have a hissy-fit, because I was just feeling irritable and I wanted a miracle to happen. And I am not one that likes certain changes in life. But once that stimulator is in me, I will have a new lease on life. Give it a try!!! You owe it to yourself to get that better life you deserve. Good luck!

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Yes, I have had one almost 5 years. Recently it has had overheat alarms while charging as well as the main unit feeling uncomfortably hot at the unit in my flank. When it got hit recently I turned it off. To my surprise there was no increase in pain.

I am now in the process of making an appointment with a neurosurgeon to get it removed.

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@bettyg81pain

Wow!! They were working on putting in your temporary stimulator with you awake?!!! Yow!!
They put me out completely-the Boston Scientific trial did not work at all which made their rep ( who I'm certain would have made a nice commission) really aggravated to the point that she did not even say she was sorry it hadn't worked or much worse!! I am scheduled in a few days to have the newly FDA approved Saluda trial. Tramadol and all of the drugs do something to my mind!! Have you been taking gabapentin or pregabalin? We want our lives back the way they were!!!

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Yeah they wanted me awake so they could tell if they got the leads in the right place and I could feel relief but if this other woman who replied that she had hers taken out after five years I don't know if I want to go through it and have to have it taken out if something happens to it. I hate having to go through surgeries for anything I've had enough in my lifetime and I want to have a normal life. And be pain free. But they did try everything from physical therapy steroid shot burning of the little nerves but nothing worked. Now I get to go see a neurosurgeon for a consultation to get an appointment to have him put the paddle style stimulator in my back which my pain doctor said the paddle style and one would be a lot better than the leads because it covers more of the spine.

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@kingbuba

Yes, I have had one almost 5 years. Recently it has had overheat alarms while charging as well as the main unit feeling uncomfortably hot at the unit in my flank. When it got hit recently I turned it off. To my surprise there was no increase in pain.

I am now in the process of making an appointment with a neurosurgeon to get it removed.

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I wonder if you got the paddle style one if it would be better. My pain dr said the paddle style one on me would be better as where I have multiple bone spurs in my back on the right side. Will try it. But I am done with having surgeries. I have had enough in my lifetime and I want a normal pain free life. Let's hope!

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