Anyone tried Spinal Cord Stimulation for Chronic Pain?

Posted by steeldove @steeldove, Oct 25, 2018

Spinal Cord Stimulation – A Compelling Treatment Alternative for Chronic Pain https://www.hss.edu/conditions_spinal-cord-stimulation-treatment-alternative-chronic-pain.asp
Vladimir N. Kramskiy, MD Assistant Attending Neurologist, Hospital for Special Surgery, Clinical Assistant Professor of Anesthesiology, Weill Cornell Medical College
What Is Spinal Cord Stimulation?
Read more here: https://www.hss.edu/conditions_spinal-cord-stimulation-treatment-alternative-chronic-pain.asp
Posted: 10/8/2018

Anyone tried Spinal Cord Stimulation for Chronic Pain?

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I have had one for 3 plus years and it is an adjunct to my therapy. No one thing totally relieves pain but it is one more tool to help it.

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@asergio714

I have had one for 3 plus years and it is an adjunct to my therapy. No one thing totally relieves pain but it is one more tool to help it.

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. Where is your pain located that the Boston Scientific is helping you?

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@martyk

. Where is your pain located that the Boston Scientific is helping you?

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Low back legs and now neuropathy in my feet. Helps the neuropathy the most. The lower the pain the more it helps me. I have not worked with it like I should for my back pain, because the neuropathy has been dominant pain for awhile

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@patrick17

I’m glad to hear that your trial was successful! I hope the implant will go well too and you will get back to walking. That will make you feel so much better. My thoughts and prayers are with you!

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I have had a Nevro spinal stimulator for five years. It was implanted by my Pain Specialist, Dr. Gordon Kuhar in Saratoga Springs, New York. It has completely relieved failed back syndrome that was debilitating after spinal fusion with plates and screws at L5, S1.

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@asergio714

Low back legs and now neuropathy in my feet. Helps the neuropathy the most. The lower the pain the more it helps me. I have not worked with it like I should for my back pain, because the neuropathy has been dominant pain for awhile

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Thank you for your response. Very helpful.

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@ssjohns

I am considering this option because I have severe pain in my lower back and some in my legs and feet. Would you recommend this to others and would you do it again if you had to? I am not one that takes drugs as I am afraid of the side effects.

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There typically would not be any side effects. I've been wearing a Boston Scientific SCS for a few years. However, I have not found it to be particularly effective thus far. Before getting an SCS implant, they'll have you try it for a week or so. The SCS is worn on your belt to see if its for you. It is not designed to cure neuropath although it can help with pain. I don't care for drugs either but have found some relief using Pregabalin (Lyrica) and Oxcarbazepine with no side effects except some minor weight gain.

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I had the NevroHF10 implanted in September 2021 after having the one week test implant. I chose the implant after having had 2 temporarily successful spinal fusions of L3, L4, L5 and accompanying decompressions of L3, L4, L5, S1. Both surgeons then stated that I was no longer a candidate for surgery. The diagnosis was degenerative disease, stenosis, narrow channel from birth, etc. I was referred to the Pain Center. Since I am on Medicare, I went through the epidural injections of the spine, the individual side injections, a hip injection because we were guessing, I stopped when the Radio Frequency Ablation was the next step. I did not want my nerves burned when it did not have a reliable outcome. (My own research so take it with a grain of salt. At the time I was reading about Pre-Frontal Lobotomy.) I was at the preliminary Opioid crisis and I did not want to start pain medication, but I could no longer walk 1/4 mile without sitting 6 times on my seat cane, fire hydrants, etc. the pain clinic had brochures on a spinal stimulator. So I researched and found that the old stimulators result in parethesis and you cannot drive. (My own research - please do not take this as gospel or even accurate - it is what I thought I found.) The reading I did on Nevro stated that it is good for lower lumbar pain relief. I searched for a physician that worked with Nevro. I had to travel once again since nobody in my town worked with Nevro. The Dr. at the pain clinic reviewed what I had done so far, the injections, the acupunture, the chropratic sessions, the spine pain and the thigh pain on both sides, the sitting to relieve the pain and concurred that the Nevro device is the recommended procedure. After the preliminary testing for radiculopathy, the psychological testing, and the physical testing by the Dr. I was approved for the 1 week test. I am obese and do not sleep on my stomach. In my case the test implant is done in office. The Dr. is extremely accurate in his placement of the wires in my spine and it took 2.5 hours on my stomach with constant coaching to DO NOT MOVE. I got through it and so did he and the NEVRO attendant the was monitoring the placement of the wires on her pc. I got through it without complications. Seven days later I was able to report 60-80 percent pain relief, walking the 1/4 mile without stopping. The pain mostly receded but sleeping was and still is a challenge. I have osteoarthritis in every joint and my hips are painful. I flip once and hour. I can't sleep on my stomach, too fat. I can't sleep on my back. The last surgery left some nerves that get squeezed and my left leg and foot start to tingle and then the whole left outer leg muscles cramp. With Nevro you have a care team available to you M-F pacific time. They pay attention for the first several months and then respond as needed. You have to ask them specific questions to get specific answers. They will not share their user guide. They claim to have many programs and settings but you do not know what they are and they will not share it. (Cleveland clinic has a public paper about how 10Khz high frequency devices work, but you cannot get any details from Nevro. After this time I would still get a Nevro implant. I can still walk and get around. There are times that it has to be adjusted but overall I can still move.

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@ssjohns

Do you use any other devices such as TENS or at home heated foot baths with massage? Do you have any side effects with the pregabalin? My doctor has recommended this drug but after reading the common side effects I’m a little concerned as I already have most of them and don’t want to make it worse.

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My PT just got a Bemer mat which is an electromagnetic way of increasing/making more efficient the flow of oxygenated blood through the body. I have only had one treatment but it seems to make a big difference in my level of energy. I don't know if it will lessen the pain and numbness of my neuropathy, and I was told it won't help with my unsteadiness but I've had such low energy - presumably from dealing with pain, etc. - that I am really hopeful that this weekly treatment will help my energy level in the long run. As for the Pregabalin, I think it is the cause for significant lightheadedness at times. I tried Gabapentin but had adverse reactions to it, and Pregabalin has been a good alternative for me.

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@sandbarry

I have had a Nevro spinal stimulator for five years. It was implanted by my Pain Specialist, Dr. Gordon Kuhar in Saratoga Springs, New York. It has completely relieved failed back syndrome that was debilitating after spinal fusion with plates and screws at L5, S1.

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I also had a Nevro for back and leg pain. It worked great until the stems started going out. Going to have replacement put in. My Dr also put mine in. I don’t know if that may have been the problem.

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