Spinal Cord Compression Symptoms from A Benign Tumor
Long story short, after a concussion in January 2020, I found a small lump at the base of my skull, but it was dismissed by drs because it wasn't hard. I had an MRI around December 2020 (I believe) because I continued to have concussion symptoms for months. The MRI was normal, and I was told I just had post-concussion syndrome.
Flash forward to Spring 2022, I am doing AMAZING. I feel like I'm back to my normal self. Minimal headaches, managing my PCS, working out regularly, eating healthily, and having a great work/life balance. Come July 2022, I had a very sudden resurgence in concussion symptoms. So naturally, I talk to my dr. We first tried upping my dosage of Nortriptyline to help prevent the headaches, but I noticed the lump at the base of skull has significantly grown and is starting to cause pain. Dr orders an ultrasound, as she thinks it might be a cyst. Turns out it's a soft-tissue tumor, a lipoma, they call it. The radiologist dismissed all of my symptoms and said, "they're harmless and shouldn't be causing you pain." So I go get a second opinion in a bigger city since I am currently living in a college town and finishing my degree. The second dr says the same thing. Despite their opinions, I scheduled to have it removed since it is causing me problems and pain. The surgery is on the 21st, but I have been slowly getting worse all semester.
The pain is constant and has spread beyond headaches and neck pain, radiating down to my shoulders and the middle of my back, approaching my lower back. It is unbearable, I was already smoking weed to help with the pain from the post-concussion syndrome, but now it doesn't even seem to help. I have also noticed numbness, tingling, and some weakness in my limbs, constant ringing in my ears, and pressure in my head, and I have to wear sunglasses about 24/7 because of light sensitivity. I've lost so much weight in such a short period that none of my clothes fit me, but the drs still aren't concerned. I had two instances where I had the right half of my body lose sensation, but eventually, it came back. and most recently, I have had tremors that jerk my head and chest. It is affecting my daily life, my grades, my schoolwork, my job, and my entire future. I am on the verge of failing this semester because the drs haven't actually taken my huge list of symptoms seriously. I am getting worried about it causing permanent damage at this point. But I'm a broke college student in the middle of nowhere in the midwest with crappy insurance. I've been referred to another neurologist, but I can't get in until February. I don't know what to do at this point.
Notes for Drs (Notes-for-Drs.pdf)
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@hatman I'm sorry I wasn't able to add this to my post to you because I was writing from my phone. Here is our discussion on Myofascial Release.
Neuropathy - "Myofascial Release Therapy (MFR) for treating compression and pain"
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
There is a provider search at http://mfrtherapists.com/