Soreness and stiffness 10 months post TKR

Posted by cindymattern @cindymattern, Jul 24, 2023

I am now 10 months out after a right TKR...At 3 months I had about 115 range of motion and felt pretty good and was dismissed from PT. I went back at about 8 months as I felt I was getting more stiff and sore and still had the tight band feeling and feel like things are pulling. I did have significant arthritis prior to my surgery and do have arthritis in several areas. Of course my surgeon says everything is fine and my X-ray looks good. He won't see me till September which is my one year appointment. Should I be concerned. I'm still in PT, doing some myofascial release and some strengthening again. I also suffer from lower back pain and some IT band issues since the replacement. Any suggestions would be greatly suggested. I know they say a year or more but I'm so over this...I recently walked 18,000 steps at Universal but was very sore in the evening and used my knee sleeve due to walking so much. I do most everything except getting up off the floor but by late afternoon am really sore. ROM is still 115 if I use a band but it hurts but I can pull it. Can't take nsaids...currently on 900mg Gabapentil and Tylenol.

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@heyjoe415

For all the people on here complaining about pain and stiffness, how much work did you put into your recovery (not to mention exercises prior to surgery - and yes, you can do exercises that avoid all or most pain prior to surgery)?

My surgeon told me a successful recovery from TKR is 10% the work/skill of the surgeon and 90% the work/commitment of the patient.

There is no silver bullet here, no magic pill. If you want a happy TKR recovery you have to work for it.

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I put in lots of work not to mention 3 months prior to surgery did all the exercises several times a day in preparation. Other than the soreness and stiffness I"m told I'm doing amazing. I actually drove at 3 weeks and it was my right knee. If you had arthritis prior to surgery most likely you would have issues with it after from what I am told and sometimes it can be worse. I don't think people are looking for a magic bullet or pill but expect a better outcome than what we are often told. I can't tell you how many things I found out after from PT that my surgeon did not tell me.

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The arthritis in both of my knees had completely destroyed my menisci. Both knees were bone on bone. I was pain free at one month after the surgeries in both knees. Maybe I was lucky, but I really think I made my own luck for the most part, and of course I had a great surgeon. He used the Mako robotic assistant.

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Hi Everyone
I am nine months out from a TKR and basically doing pretty well. Just wondering if anyone has experienced creaking kind of noises (known as crepitation) when straightening the knee after it's been flexed for a while. It's intermittent. I do not have any pain and am able to walk very well. I am due for a visit with the surgeon in a couple of weeks but thought in the meantime I'd see if anyone can shed a little light on this.

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@heyjoe415

You note that you are doing "some strengthening again" - which tells me you stopped.

I'm curious - what was your exercise regimen pre-surgery to strengthen the knee as much as possible before surgery? And what has been your exercise regimen post surgery? When you refer to strengthening, what exercises were you doing?

I hear many complaints from TKR patients that their new knees are noisy and stiff. I have been in the gym 6 or 7 days a week since knee replacement. I have no noise coming from my knees and my legs and knees feel better than they have in 30 years (I'm 68 y/o.). I work hard on my quadriceps, hamstrings, and glutes and I do stretching for my legs everyday.

What have you done and what do you do? That's probably where your answer lies.

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I did the exercises on the paper I was given for 8 weeks prior to my surgery as well as Aquafit at the gym. However I did have to cancel my membership because the stopped offering classes when I could go. I had PT for 3 months then off for 4. I did stretching at home, walked lots and used the band doing exercises given at PT. I had lots of arthritis prior to surgery and still have arthritis in several other areas of my body which does not help. Doctor told me some people still continue to have soreness/stiffness no matter what which was rather discouraging. Knee sleeve helps tremendously but can only wear that for 8 hours or so before I need to take it off.

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@cindymattern

Unfortunately all medication has side effects and what works for one does not for another. I've only experienced being sleepy but I take it at night for that reason. It has taken care of the nerve pain I experience from my neck, sciatica in my back and has helped with the knee pain. It has seriously been a God send for me. However it really does not help with swelling much and I can't take nsaids.

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I would also suggest seeing a chiropractor and a massage therapist. Have someone check that your legs are the same length. TKR does throw the body out of whack and it takes some persistence and assistance to get it right again.

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@heyjoe415

For all the people on here complaining about pain and stiffness, how much work did you put into your recovery (not to mention exercises prior to surgery - and yes, you can do exercises that avoid all or most pain prior to surgery)?

My surgeon told me a successful recovery from TKR is 10% the work/skill of the surgeon and 90% the work/commitment of the patient.

There is no silver bullet here, no magic pill. If you want a happy TKR recovery you have to work for it.

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I agree Joe that is if you have no complications…. Most people on here I find have complications of one kind or another….. and all the exercise in the world would not change the outcome….. i am thrilled to read stories like yours Joe gives me hope ….. you have so much to offer people going through these difficult times ….. Joe you are what I wish I was …..,I success story right from the beginning….. but unfortunately bad dr wrong size knee two surgery, I still struggle….. not from lack of exercise or trying new things …. So I come here read stories like yours gives me hope , you are always there with an encouraging word ….so Joe keep up the good work….

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@heyjoe415

For all the people on here complaining about pain and stiffness, how much work did you put into your recovery (not to mention exercises prior to surgery - and yes, you can do exercises that avoid all or most pain prior to surgery)?

My surgeon told me a successful recovery from TKR is 10% the work/skill of the surgeon and 90% the work/commitment of the patient.

There is no silver bullet here, no magic pill. If you want a happy TKR recovery you have to work for it.

Jump to this post

I bet to differ, if you have had success with your surgery wonderful. There is that small percentage that wont and no amount of physical therapy will change that. I had both knees replaced in 2018, within weeks my knees started getting stiff and I had the most debilitating pain. My knees felt like they were on fire and I constantly felt like I was being electrocuted. I was going to PT 3 days a week. 2 months after surgery I landed in the ER, my doctor had no clue why this was happening he couldn’t help. I went to another doctor, he was baffled and I went to a third. By 8 months I could straighten my right knee but only bend 60% and my left knee was stuck at about 45 degrees. He decided to redo my left at the 1 year mark, I came out of surgery and within weeks my knee was again getting stiff and the pain was unbearable. Within 3 months I had a manipulation and nothing changed. My doctor couldn’t figure out why my knee was not improving and got to the point where I was told I was making it all up to get opioids and I was dismissed as a patient. All of this while I’m still going to PT. One day my therapist told me I had really bad Arthrofibrosis and recommended me to a surgeon she knew. My first visit he told me I had CRPS and sent me off to pain management to get my pain under control before he could do anything about my knee. I ended up with a spinal chord stimulator, monthly visits to pain management, I was doing Ketamine infusions to combat the pain. After a few months he again revised my knee. I had so much scar tissue, in his words “ he gutted my knees” After surgery I felt some relief from the pain in my left knee but the pain in my right knee was almost unbearable. I was on a mission after this second revision to keep my knee straight, and have as much motion as possible. I kept my knee straight but I was never able to get more than 60 degrees flexion. Within 4 months I only had 25 degree flexion and 3 years later that’s where it’s at. During this time I started loosing motion in my right knee and it became worse than the left. The pain was so bad I was getting nerve blocks every 3 months. It got to the point where my knee was stuck at 40 degrees flexion and I couldn’t move it at all. No amount of PT was going to change that. I ended up with a mobility scooter. I went back to my surgeon who had done my last surgery and he was honest, he told me he would not do another surgery because he did not know how to stop the growth of the scar tissue in my knee which was the culprit. He referred me to another doctor and I knew they were going to do the same thing and within months I would be back in the same position I decided to start looking for better solutions and I ended up at the Mayo Clinic. This was a game changer. They have an ongoing research study to try to understand why scar tissue forms so rapidly in some patients and a protocol to treat said patients. I am a part of the research study, I had my surgery 5 weeks ago and my debilitating pain is gone, I can get out of a chair by myself, I have full extension in my knee and about 95 degree flexion. I’m working on it every day. This is the best I have felt in 5 years. Scar tissue is your worse enemy after TKR, for sone of us no amount of PT is going to stop it, I’m heading back next summer to get my left knee revised for the third time and hopefully I will have my life completely back. It’s been quite the journey. The last 5 years have been rough but finally I’m on the path to recovery.

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@kadrash35

I bet to differ, if you have had success with your surgery wonderful. There is that small percentage that wont and no amount of physical therapy will change that. I had both knees replaced in 2018, within weeks my knees started getting stiff and I had the most debilitating pain. My knees felt like they were on fire and I constantly felt like I was being electrocuted. I was going to PT 3 days a week. 2 months after surgery I landed in the ER, my doctor had no clue why this was happening he couldn’t help. I went to another doctor, he was baffled and I went to a third. By 8 months I could straighten my right knee but only bend 60% and my left knee was stuck at about 45 degrees. He decided to redo my left at the 1 year mark, I came out of surgery and within weeks my knee was again getting stiff and the pain was unbearable. Within 3 months I had a manipulation and nothing changed. My doctor couldn’t figure out why my knee was not improving and got to the point where I was told I was making it all up to get opioids and I was dismissed as a patient. All of this while I’m still going to PT. One day my therapist told me I had really bad Arthrofibrosis and recommended me to a surgeon she knew. My first visit he told me I had CRPS and sent me off to pain management to get my pain under control before he could do anything about my knee. I ended up with a spinal chord stimulator, monthly visits to pain management, I was doing Ketamine infusions to combat the pain. After a few months he again revised my knee. I had so much scar tissue, in his words “ he gutted my knees” After surgery I felt some relief from the pain in my left knee but the pain in my right knee was almost unbearable. I was on a mission after this second revision to keep my knee straight, and have as much motion as possible. I kept my knee straight but I was never able to get more than 60 degrees flexion. Within 4 months I only had 25 degree flexion and 3 years later that’s where it’s at. During this time I started loosing motion in my right knee and it became worse than the left. The pain was so bad I was getting nerve blocks every 3 months. It got to the point where my knee was stuck at 40 degrees flexion and I couldn’t move it at all. No amount of PT was going to change that. I ended up with a mobility scooter. I went back to my surgeon who had done my last surgery and he was honest, he told me he would not do another surgery because he did not know how to stop the growth of the scar tissue in my knee which was the culprit. He referred me to another doctor and I knew they were going to do the same thing and within months I would be back in the same position I decided to start looking for better solutions and I ended up at the Mayo Clinic. This was a game changer. They have an ongoing research study to try to understand why scar tissue forms so rapidly in some patients and a protocol to treat said patients. I am a part of the research study, I had my surgery 5 weeks ago and my debilitating pain is gone, I can get out of a chair by myself, I have full extension in my knee and about 95 degree flexion. I’m working on it every day. This is the best I have felt in 5 years. Scar tissue is your worse enemy after TKR, for sone of us no amount of PT is going to stop it, I’m heading back next summer to get my left knee revised for the third time and hopefully I will have my life completely back. It’s been quite the journey. The last 5 years have been rough but finally I’m on the path to recovery.

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I'm so sorry you had to go through all this. Those of us who have arthritis and scar tissue definitely struggle. Mine is not this bad and I can live with it I just choose not to want to. We do all we can but for some reason the scar issue and arthritis just keeps coming back no matter hard we work. I am so thankful that you were able to go to Mayo and get some answers.

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@ezas123

I agree Joe that is if you have no complications…. Most people on here I find have complications of one kind or another….. and all the exercise in the world would not change the outcome….. i am thrilled to read stories like yours Joe gives me hope ….. you have so much to offer people going through these difficult times ….. Joe you are what I wish I was …..,I success story right from the beginning….. but unfortunately bad dr wrong size knee two surgery, I still struggle….. not from lack of exercise or trying new things …. So I come here read stories like yours gives me hope , you are always there with an encouraging word ….so Joe keep up the good work….

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Thanks for the kind words ezas. And you're right, and I apologize to the people who do have complications that may make my suggestions hard, if not impossible. I am pulling for everyone, and don't mean to knock anyone's program.

I have been beyond amazed by my TKRs. Before I had these, I could barely walk. I did find a very competent surgeon and personal trainer, and by following their instructions, well my life has turned around. I do realize how fortunate I am.

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@kadrash35

I bet to differ, if you have had success with your surgery wonderful. There is that small percentage that wont and no amount of physical therapy will change that. I had both knees replaced in 2018, within weeks my knees started getting stiff and I had the most debilitating pain. My knees felt like they were on fire and I constantly felt like I was being electrocuted. I was going to PT 3 days a week. 2 months after surgery I landed in the ER, my doctor had no clue why this was happening he couldn’t help. I went to another doctor, he was baffled and I went to a third. By 8 months I could straighten my right knee but only bend 60% and my left knee was stuck at about 45 degrees. He decided to redo my left at the 1 year mark, I came out of surgery and within weeks my knee was again getting stiff and the pain was unbearable. Within 3 months I had a manipulation and nothing changed. My doctor couldn’t figure out why my knee was not improving and got to the point where I was told I was making it all up to get opioids and I was dismissed as a patient. All of this while I’m still going to PT. One day my therapist told me I had really bad Arthrofibrosis and recommended me to a surgeon she knew. My first visit he told me I had CRPS and sent me off to pain management to get my pain under control before he could do anything about my knee. I ended up with a spinal chord stimulator, monthly visits to pain management, I was doing Ketamine infusions to combat the pain. After a few months he again revised my knee. I had so much scar tissue, in his words “ he gutted my knees” After surgery I felt some relief from the pain in my left knee but the pain in my right knee was almost unbearable. I was on a mission after this second revision to keep my knee straight, and have as much motion as possible. I kept my knee straight but I was never able to get more than 60 degrees flexion. Within 4 months I only had 25 degree flexion and 3 years later that’s where it’s at. During this time I started loosing motion in my right knee and it became worse than the left. The pain was so bad I was getting nerve blocks every 3 months. It got to the point where my knee was stuck at 40 degrees flexion and I couldn’t move it at all. No amount of PT was going to change that. I ended up with a mobility scooter. I went back to my surgeon who had done my last surgery and he was honest, he told me he would not do another surgery because he did not know how to stop the growth of the scar tissue in my knee which was the culprit. He referred me to another doctor and I knew they were going to do the same thing and within months I would be back in the same position I decided to start looking for better solutions and I ended up at the Mayo Clinic. This was a game changer. They have an ongoing research study to try to understand why scar tissue forms so rapidly in some patients and a protocol to treat said patients. I am a part of the research study, I had my surgery 5 weeks ago and my debilitating pain is gone, I can get out of a chair by myself, I have full extension in my knee and about 95 degree flexion. I’m working on it every day. This is the best I have felt in 5 years. Scar tissue is your worse enemy after TKR, for sone of us no amount of PT is going to stop it, I’m heading back next summer to get my left knee revised for the third time and hopefully I will have my life completely back. It’s been quite the journey. The last 5 years have been rough but finally I’m on the path to recovery.

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Thanks kadrash. I admire your persistence and courage. This is a great lesson for all. I think it's abhorrent that a Dr. would accuse you of faking pain to get painkillers.

Stick with it. Excellent work and advice.

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