Solitary fibrous brain tumor WHO Grade 3.

@suemarie3 did it come back after radiation ?

@manip Correct. Late in her pregnancy she was experiencing headaches, partial vision loss, blurred vision and similar. Doctors told her it will resolve postpartum. But it did not. Just a week after she gave birth to the baby boy and after all emergency tests and scans she was diagnosed with large occipital brain tumor. A week later, after operation and HP , the SFT of the brain was confirmed, large and centralized in a very rare location of the brain. Had a surgery in November 2024 in Calgary, CA, and 6.5 weeks of radiation at the University of Jacksonville Florida in February/March of 2025. Came back home, and headaches started shortly later. Was trying to get a new MRI etc, but was rejected by health system with the explanation that her next MRI is scheduled in 6 months; she did MRI privately, shortly after ended up in the hospital with bleeding in her brain and at that time she went through the second surgery and was told that there are 12 new cells in her brain. (The cells were multiplying at the very fast rate). Now she is on chemo, but is told that changes are noticed in her spine, breast and liver. 🙁 Apparently, they will not do biopsy because it would make more harm than good. I dont know all the details because my son is kind of 'shutting off', he cannot talk about it anymore.