Anyone have experience with the SoClean Machine?

Posted by Errol, Alumni Mentor @duvie, Apr 1, 2018

Hello Everyone,
Many of us who use a CPAP, BiPAP, or other breathing devices have maybe been curious about a SoClean machine that has been advertised on TV quite a bit. I'm not sure but I would imagine that it could also be used for a Trilogy machine or any device which has the same size hoses if their equipped with a water reservoir. We purchased one out of pocket because our insurance did not cover it. It has a certain smell to the hoses after cleaning that many people say is hard to get used to. In the beginning we would disconnect the SoClean and let our BiPAP run for an hour or so to help remove any smell.
Some people say it has a clean smell to it while others say it takes some getting used to but eventually they do get used to it. Knowing that their equipment is free of bacteria gives a sense of comfort.

It works by a small hose coming off the adapter and being placed into the water reservoir oxygenating the water. No drops or chemicals in the water.

The last 2 times Lilbit has been hospitalized we have used our own BiPAP machine in the hospital because Lilbit prefers her own mask. We also brought the SoClean machine to the hospital and the Drs, nurses, and respiratory therapist were all curious how it worked. One therapist asked if we thought it actually cleaned everything. I replied, I don't know we just have to rely on the FDA information. Has anyone else been interested in the SoClean machine?

Interested in more discussions like this? Go to the Lung Health Support Group.

@ess77

@johnbishop...Hello, John. I've spent the last hour or so ckg the SoClean 3 to see any improvements. How about sending a message with the reasons you like the 3 and the improvements, please. Also, I saw the SoClean room air purifier the looks pretty spiffy. It's on flash sale right now and I'm thinking it will help with my asthma issues. It says it removes dander, dust, mold, and viruses???? Your thoughts, oh wise one?
Thanks as always. Blessings to you, Elizabeth

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After being diagnosed with ILD, I researched air purifiers, I purchased the Air Doctor air purifier for our bedroom. I was impressed with it, and so I purchased another one. We have two cats, and I am amazed to see what is in there when I vacuum the filter. Airdoctor.com They have sales on their purifiers and filters, so watch for their sales to save money.

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@kathrynmc

After being diagnosed with ILD, I researched air purifiers, I purchased the Air Doctor air purifier for our bedroom. I was impressed with it, and so I purchased another one. We have two cats, and I am amazed to see what is in there when I vacuum the filter. Airdoctor.com They have sales on their purifiers and filters, so watch for their sales to save money.

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@kathrynmc and all...Great info! Thank you so much. I'm heading to the website now and will ck it out. Appreciate the help. I love this Connect and the wonderful friends here to walk the walk together. Blessings, elizabeth

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@johnbishop

Hi Elizabeth @wess77, Here is why I like the new SoClean 3 - larger bin for the mask, nice nightlight if you leave the cover open at night, easy to start the cleaning cycle manually or just let it go on it's preset timer when you close the lid, lastly they added a fresh air cycle that you can run after cleaning before you use the mask which supposedly gets rid of any smell.

I haven't looked into the SoClean air purifier but I think @sueinmn may have some good tips for what to look for in an air purifier. I have been thinking of getting one for my bedroom and possible one that can do most of my house but it hasn't reached the top of my todo list yet 🙂

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@johnbishop and all...I'm at the top of the list with this right now. I spend so much time in the home, with my cat and no current cleaning help, that I really need to address the issue. I've had several weeks of asthma and breathing issues that I must address. So, I'll ck out the Air Doctor site and ck w/Sue, @sueinmn as well.
Thanks again. Blessings, elizabeth

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@ess77

@johnbishop and all...I'm at the top of the list with this right now. I spend so much time in the home, with my cat and no current cleaning help, that I really need to address the issue. I've had several weeks of asthma and breathing issues that I must address. So, I'll ck out the Air Doctor site and ck w/Sue, @sueinmn as well.
Thanks again. Blessings, elizabeth

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FYI I just got an email from Air Doctor, they are having a sale, up to $300 off
The website is….. store.airdoctorpro.com

The sale didn’t show up at airdoctor.com

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Throat swallowing issues. like a thick phlegm matter. I have 2 SoClean machines that i have used regularly over the last 3 years. Breathing has shortened a little with sometimes having a hard time getting a full breath in.
I am told know not to use my cpap machines they will be replaced. Both machines (due to 2 residences). One machine shut down after recall and one still works. I am being told they are both going to be replaced and have claims in on both. Would be nice to get the answers on Philips Respironics and SoClean replacements. Hard to sleep at night. Someone call or email.

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@martinmcdonald

Throat swallowing issues. like a thick phlegm matter. I have 2 SoClean machines that i have used regularly over the last 3 years. Breathing has shortened a little with sometimes having a hard time getting a full breath in.
I am told know not to use my cpap machines they will be replaced. Both machines (due to 2 residences). One machine shut down after recall and one still works. I am being told they are both going to be replaced and have claims in on both. Would be nice to get the answers on Philips Respironics and SoClean replacements. Hard to sleep at night. Someone call or email.

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Hi @martinmcdonald, I'm going to bring @johnbishop into this discussion. He also dealt with the CPAP model recall.

You may also want to join this discussion:
- Just Started Using Resmed 10 Airsense Because of Recall. https://connect.mayoclinic.org/discussion/just-started-using-resmed-10-airsense-because-of-recall/

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@martinmcdonald

Throat swallowing issues. like a thick phlegm matter. I have 2 SoClean machines that i have used regularly over the last 3 years. Breathing has shortened a little with sometimes having a hard time getting a full breath in.
I am told know not to use my cpap machines they will be replaced. Both machines (due to 2 residences). One machine shut down after recall and one still works. I am being told they are both going to be replaced and have claims in on both. Would be nice to get the answers on Philips Respironics and SoClean replacements. Hard to sleep at night. Someone call or email.

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Hi Martin @martinmcdonald, I received an update from Philips on the recall April 18th. You can read more about their replacement plan and priority here - https://www.usa.philips.com/healthcare/e/sleep/communications/src-update/news/important-information-about-patient-prioritization.

Thanks for the tag @colleenyoung. I also have 2 Philips CPAPs on the recall - a Dreamstation and a Dreamstation Go portable CPAP. When the recall was announced I purchased a ResMed AirMini because I like the smaller size and can travel with it if necessary. I also use a SoClean 3 that I purchased at the end of last year to replace a SoClean 2. I'm sorry to hear that you are having trouble sleeping. Have you discussed your symptoms with your doctor or sleep medicine therapist?

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@martinmcdonald

Throat swallowing issues. like a thick phlegm matter. I have 2 SoClean machines that i have used regularly over the last 3 years. Breathing has shortened a little with sometimes having a hard time getting a full breath in.
I am told know not to use my cpap machines they will be replaced. Both machines (due to 2 residences). One machine shut down after recall and one still works. I am being told they are both going to be replaced and have claims in on both. Would be nice to get the answers on Philips Respironics and SoClean replacements. Hard to sleep at night. Someone call or email.

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Buy a new cpap machine. Also the so clean is not great. Better to just clean out your cpap on your own.

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@akish1966

Buy a new cpap machine. Also the so clean is not great. Better to just clean out your cpap on your own.

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Welcome @akish1966, I felt the same way when the recall came out which is why I went out and bought another CPAP machine. Sounds like you don't mind cleaning the CPAP equipment. It was a big deal for me which is why I upgraded my SoClean 2 to the slightly larger SoClean 3. Could I wash the mask every day, yeah...but in the grand scheme of things it's one more thing I personally would rather not do so I opt to take the lazy way out...but good for you if you don't mind it and it works for you. I still wash the hose and headgear frequently but just not every day.

Do you mind sharing what brought you to Connect? Were you searching to find an answer to a question?

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@johnbishop

Welcome @akish1966, I felt the same way when the recall came out which is why I went out and bought another CPAP machine. Sounds like you don't mind cleaning the CPAP equipment. It was a big deal for me which is why I upgraded my SoClean 2 to the slightly larger SoClean 3. Could I wash the mask every day, yeah...but in the grand scheme of things it's one more thing I personally would rather not do so I opt to take the lazy way out...but good for you if you don't mind it and it works for you. I still wash the hose and headgear frequently but just not every day.

Do you mind sharing what brought you to Connect? Were you searching to find an answer to a question?

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@johnbishop, and all...Hello, John. I love the SoClean 2 I bought last year and use every day.
When I wake up, just turn over and put the mask into the SoClean, touch the button and forget about it.

John, I haven't had bronchitis nor pneumonia since I began using this marveous machine! I do also clean the water container weekly and the SoClean machine itself with wipes. I don't clean the hose, tho. I thought the machine did that job???? Do you think it is necessary?

Last year, for several months, I was getting repeat infections from the CPAP caused by my poor cleaning habits I'm sure. I've been told no one gets ill from the CPAP...Well, I strongly disagree.

Since using the machine to clean my CPAP, no bronchitis....well, I just was in the hospital for several days and CT reported some fluid and pneumonia...I was getting worse for a couple of months and I apparently had a partially collapsed left lung. I had no idea, althoughI was having trouble breathing well for some time. I think the lungs and UTI were cleared up by IV bags of antibiotics in the ED. Good thing I went to the hospital when I did, but I hope I won't wait so long next time to get help. We just don't always know why or how we need help, do we?

I'm getting a spiro????.....breathing tube thingy for exercising my lungs while watching tv or laptop or whatever. No more pneumonia! Thank you So Clean. I totally recommend using that machine if you forget or don't feel well every morning or can't clean well, as I can't due to arthritis and poor use of my hands. A good investment for me.

I do change weekly the nasal pillow I use instead of a mask. No panic attack and I get excellent air volume with it. It's quite comfy. I find I'm adjusting the head-gear often to keep it in place and stop leakage. Is that normal ...can give me a headache.

I've only used ResMed so never had to adjust to a different machine. Since finding the nasal pillow, I've been a happy camper with my CPAP and use it religiously. I believe it saved my life since using it this last year.

Be well, breath well and be blessed. elizabeth

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