Small vessel ischemic white matter disease

Posted by goodie @goodie, Sep 15, 2023

Goodie, I am writing because as I read your answers I realized, many of us are dealing with the same mishmash of problems. I have the sudden falling asleep in the middle of a conversation, dropping the book or the email I was reading. I never know when, Inhave no warning. I am 81 years old. I have had Parkinson’s for 10 years, my feet feel like lead, I fall into walls. In addition I had a subdural hematoma and crainiotomy two years ago! I came out of that with no problems other than what I had before. We have moved into a retirement home as my husband had throat cancer! I have terrible balance problems. I have been diagnosed with congestive heart failure, I see a movement specialist neurologist! My primary care doc s not concerned, no one wants to it this all together, I get lung still of clots for no reason,it was an Oncologist who found this while he was trying to come up with a reason for the pulmonary embolisms. I see him again in two months, the neurologist in 2 months and the cardiologist in 3 months, I have not had an mri! What do you suggest I do? Is dementia inevitable? My father had something like dementia. My mother died of cancer when’s I was small! I have had breast cancer twice, ovarian cancer and melanoma once. I was hit by a Mack truck pulling a 70 foot modular home! I hav had 3 major back southern, my neck is bone fused, my back rods and screws from l-1 to s-2! Please tell me what you are doing about the small vessel ischemia white matter disease!
Goodie

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I hate to be discouraging, but I have ischemic white matter brain disease and the neurologist has never done anything about it!
P

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