Small Intestine Bacteria Overgrowth (SIBO)

Posted by jacque6977 @jacque6977, Feb 22, 2017

My wife, after years of suffering from debilitating nausea and fatigue, has finally been diagnosed with SIBO as confirmed by a hydrogen breath test. It is estimated the bacteria has had at least two years to grow and may be well established. She has started on Xifaxan, at $35 per pill, but it is estimated that elimination of the SIBO may take up to six months. Her day now starts with her waking up with nausea and when she has a cup of tea and toast in the morning she gets sick within fifteen minutes thereafter. Her sickness is accompanied by violent belching, and at times she regurgitates liquid vile. The only drug she has for nausea is Zofran which does nothing for her. Are there any other SIBO sufferers that are experiencing the same symptoms, and what are you taking to reduce the nausea?

@lizbee78

I was diagnosed at the Mayo Clinic this past November with SIBO, small bowel damage, and Exocrine Pancreatic Insufficiency. After 25 years of suffering I am finally feeling well. The Mayo put me through a round of 3 different antibiotics to kill the bacteria. I was told to begin taking Align Probiotic daily. Probiotics are very important in keeping the bad bacteria from taking over. I include probiotic rich foods in my diet daily in addition to the Align, such as Kefir, yogurt, Kombucha, supplemented juice blends. I no longer really need anti-nausea medicine, but I used to take Promethazine, which I found to work better than Zofran. I also found that a simple Gas-X chewable would often help with belching and bloating. SIBO creates an excessive amount of gas. I hope this helps, and that your wife feels better soon!

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Hi @ginpene05,

I wanted to follow-up and ask about your progress; I hope you are doing well? I was wondering if you had the opportunity to view these discussions about Non Hodgkin’s lymphoma on Connect; they are incredibly informative groups, and you may also wish to post your questions and suggestions there:

– CAR T: A New Treatment for Complex Cancer Cases https://connect.mayoclinic.org/newsfeed-post/chimeric-antigen-receptor-car-t-cell-therapy/
– Non Hodgkin’s lymphoma https://connect.mayoclinic.org/discussion/non-hodgkins-lymphoma-2c0eb7/

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Hi all, well I went to the nutritionist at Mayo. Of course she put me on the low FODMap diet. I haven’t really started it yet since I am finishing up the foods I have right now. I don’t want to waste all this money, and I need time to figure out what to buy and recipes. She said even though my sibo test from them came back negative, I did have it, and there probably still is bacteria and the diet will help regardless. She said she recently went to a convention and they discussed the lactulose for testing and said not true results because we have more bacteria in colon anyway, but I know that and we look for a certain number above, so I am still not totally convinced. Anyway, we will see. I forgot to ask her what probiotic she recommends. I haven’t taken one for awhile with all the testing.
I have two tests coming up and was wondering if anyone has had them done. They sound, how should I say, ‘uncomfortable’. They are called: anorectal manometry and proctogram. My gi doc said she wanted to look into possiblility of pelvic floor dyssynergia. Anyone experience these?

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I went through all the tests at Mayo for GERD before my LYNX surgery. I had a fructose and lactose tests done and both were negative. However after surgery still had to take acid reducers. I went on FODMAP as well as every other GERD diet. If you look at my other posts I read a book about GERD diet that suggested eliminating fruit. No one ever recommends that since it’s so healthy but within a day my whole life changed. There are a few books on elimination diets to find out what foods your intolerant to. Another good book I’m reading by Dr. Gunthry about lectins is also interesting but most of stomach problems can be blamed on food. After getting off the fruit my blood sugar went down, foot cramps stopped, cystitis stopped, weight went down it was amazing something so healthy could cause so many problems.

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Wow, that’s interesting. Did you ever do a food allergy test? Would it have shown up in that?

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Yes, a waste of money came up with foods that never bothered me and fruit wasn’t on the list

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Wow, interesting. My son is going through a lot right now. Did a whole food allergy test. He was like allergic to everything. Did a food diary though for naturopathic dr. and seemed to be gluten bothering him. Tested neg. for celiac, but saw a pattern so he is doing gluten free for awhile to see if that helps. I wonder about all these tests sometimes…..

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Gluten bothers everybody, no one should ever eat grain products! Read the Plant Paradox and Fast Track Digestion, very enlightening. I pretty much follow a Paleo but no fruit or honey. Now when I eat something bad I’ll know right away and be miserable for several days.

Liked by wottone

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I agree !!

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@lizbee78

I was diagnosed at the Mayo Clinic this past November with SIBO, small bowel damage, and Exocrine Pancreatic Insufficiency. After 25 years of suffering I am finally feeling well. The Mayo put me through a round of 3 different antibiotics to kill the bacteria. I was told to begin taking Align Probiotic daily. Probiotics are very important in keeping the bad bacteria from taking over. I include probiotic rich foods in my diet daily in addition to the Align, such as Kefir, yogurt, Kombucha, supplemented juice blends. I no longer really need anti-nausea medicine, but I used to take Promethazine, which I found to work better than Zofran. I also found that a simple Gas-X chewable would often help with belching and bloating. SIBO creates an excessive amount of gas. I hope this helps, and that your wife feels better soon!

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Hi, Kanaazpereira, Thank you for the info. I have had 2 of the planned 6 treatments of R CHOP and gratefully seem to be tolerating it well. My GI system seems to be settling down after my two intestinal resections. I feel fortunate.

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@saucy

Yes, a waste of money came up with foods that never bothered me and fruit wasn’t on the list

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Some fruits are high fodmap and some are not. Try the Monash University app. It’s $8.

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@scotsman1

I tested positive on a breath test for Bacterial Overgrowth one year ago! hI have been on the FODMAP diet for a few monts but I still have belching, nausea and wind. He also indicated that I had mild Pancreatic Inefficiency(EPI) and I have been taking Crean now for 4 months at dinner time which has improved the EPI. About 4 weeks ago my Gastro Doc put me on a 14 day Xifaxon regimin but i did not get much of an improvement.

My blood work all looks fine with good kidney function but i still have stomach discomfort it seems no matter what I eat. I

An example of my daily diet is: One 8 oz glass of water with my cardio meds – Amlodipine 10mg, Losartan 100mg. Triamin/NCTZ 37.5mg and Metaprolol 12mg follwed by Tea and toast with honey in the morning. For lunch i may have rice cerial or porridge with Lactaid milk or i may have a tuna sandwwich. For dinner I may have some fish usually baked in foil with a table spoon of olive oil and one half of a baked potato. I seldom dring any alcohol to see if that would help but it does not! I generally drink Gator aid and water!

I weight 198 lbs and my height is 69 inches. I am good health at 80 years and excercise daily in the pool and/or play tennis 3/4 times per week! However the SIBO issue is not getting better and I would like some advice from anyone expeiencing similar health issues please!

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How can I locate a lab that does the Hydrogen Breath Test for SIBO?

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@scotsman1

I tested positive on a breath test for Bacterial Overgrowth one year ago! hI have been on the FODMAP diet for a few monts but I still have belching, nausea and wind. He also indicated that I had mild Pancreatic Inefficiency(EPI) and I have been taking Crean now for 4 months at dinner time which has improved the EPI. About 4 weeks ago my Gastro Doc put me on a 14 day Xifaxon regimin but i did not get much of an improvement.

My blood work all looks fine with good kidney function but i still have stomach discomfort it seems no matter what I eat. I

An example of my daily diet is: One 8 oz glass of water with my cardio meds – Amlodipine 10mg, Losartan 100mg. Triamin/NCTZ 37.5mg and Metaprolol 12mg follwed by Tea and toast with honey in the morning. For lunch i may have rice cerial or porridge with Lactaid milk or i may have a tuna sandwwich. For dinner I may have some fish usually baked in foil with a table spoon of olive oil and one half of a baked potato. I seldom dring any alcohol to see if that would help but it does not! I generally drink Gator aid and water!

I weight 198 lbs and my height is 69 inches. I am good health at 80 years and excercise daily in the pool and/or play tennis 3/4 times per week! However the SIBO issue is not getting better and I would like some advice from anyone expeiencing similar health issues please!

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Hello @april12mayo and welcome to Mayo Connect.

I see that you are looking for a lab that does the Hydrogen Breath Test for SIBO. Have you talked with a gastroenterologist? This type of doctor might be able to help you.

Have you been having symptoms that indicate SIBO?

We look forward to getting to know you.

Teresa

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@scotsman1

I tested positive on a breath test for Bacterial Overgrowth one year ago! hI have been on the FODMAP diet for a few monts but I still have belching, nausea and wind. He also indicated that I had mild Pancreatic Inefficiency(EPI) and I have been taking Crean now for 4 months at dinner time which has improved the EPI. About 4 weeks ago my Gastro Doc put me on a 14 day Xifaxon regimin but i did not get much of an improvement.

My blood work all looks fine with good kidney function but i still have stomach discomfort it seems no matter what I eat. I

An example of my daily diet is: One 8 oz glass of water with my cardio meds – Amlodipine 10mg, Losartan 100mg. Triamin/NCTZ 37.5mg and Metaprolol 12mg follwed by Tea and toast with honey in the morning. For lunch i may have rice cerial or porridge with Lactaid milk or i may have a tuna sandwwich. For dinner I may have some fish usually baked in foil with a table spoon of olive oil and one half of a baked potato. I seldom dring any alcohol to see if that would help but it does not! I generally drink Gator aid and water!

I weight 198 lbs and my height is 69 inches. I am good health at 80 years and excercise daily in the pool and/or play tennis 3/4 times per week! However the SIBO issue is not getting better and I would like some advice from anyone expeiencing similar health issues please!

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Yes. I have had the upper gi, test for pylori, gluten intolerance test , gallbladder test, all normal/negative. My symptoms seem like SIBO. My gastroenterologist said we don’t have the HBT test in Tallahassee.

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@scotsman1

I tested positive on a breath test for Bacterial Overgrowth one year ago! hI have been on the FODMAP diet for a few monts but I still have belching, nausea and wind. He also indicated that I had mild Pancreatic Inefficiency(EPI) and I have been taking Crean now for 4 months at dinner time which has improved the EPI. About 4 weeks ago my Gastro Doc put me on a 14 day Xifaxon regimin but i did not get much of an improvement.

My blood work all looks fine with good kidney function but i still have stomach discomfort it seems no matter what I eat. I

An example of my daily diet is: One 8 oz glass of water with my cardio meds – Amlodipine 10mg, Losartan 100mg. Triamin/NCTZ 37.5mg and Metaprolol 12mg follwed by Tea and toast with honey in the morning. For lunch i may have rice cerial or porridge with Lactaid milk or i may have a tuna sandwwich. For dinner I may have some fish usually baked in foil with a table spoon of olive oil and one half of a baked potato. I seldom dring any alcohol to see if that would help but it does not! I generally drink Gator aid and water!

I weight 198 lbs and my height is 69 inches. I am good health at 80 years and excercise daily in the pool and/or play tennis 3/4 times per week! However the SIBO issue is not getting better and I would like some advice from anyone expeiencing similar health issues please!

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Hi Teresa,
Does Mayo Clinic do the Hydrogen Breath Test for SIBO?

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@scotsman1

I tested positive on a breath test for Bacterial Overgrowth one year ago! hI have been on the FODMAP diet for a few monts but I still have belching, nausea and wind. He also indicated that I had mild Pancreatic Inefficiency(EPI) and I have been taking Crean now for 4 months at dinner time which has improved the EPI. About 4 weeks ago my Gastro Doc put me on a 14 day Xifaxon regimin but i did not get much of an improvement.

My blood work all looks fine with good kidney function but i still have stomach discomfort it seems no matter what I eat. I

An example of my daily diet is: One 8 oz glass of water with my cardio meds – Amlodipine 10mg, Losartan 100mg. Triamin/NCTZ 37.5mg and Metaprolol 12mg follwed by Tea and toast with honey in the morning. For lunch i may have rice cerial or porridge with Lactaid milk or i may have a tuna sandwwich. For dinner I may have some fish usually baked in foil with a table spoon of olive oil and one half of a baked potato. I seldom dring any alcohol to see if that would help but it does not! I generally drink Gator aid and water!

I weight 198 lbs and my height is 69 inches. I am good health at 80 years and excercise daily in the pool and/or play tennis 3/4 times per week! However the SIBO issue is not getting better and I would like some advice from anyone expeiencing similar health issues please!

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@april12mayo

I could not find an answer to your question, I suggest that you call Mayo. Are you currently a patient at one of the Mayo facilities?

Teresa

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