Small Fiber Neuropathy lecture

Posted by Rachel, Volunteer Mentor @rwinney, Oct 27, 2019

Hello all
I have been following Dr. Anne Louise Oaklander and her research of Small Fiber Poly Neuropathy. She is from Mass General Hospital and comes with an impressive resume. I decided to post her lecture for those who may be confused by the disease or still learning and want to know more. The video is about an hour long. Googling her would be worthy as well.
Take care,
Rachel

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katec | @katec | Oct 31, 2019

She really isn’t seeing new patients, but since he’s an adolescent with such low values on his biopsy (and she is friends with our doctor who diagnosed him 😉) she agreed to see him. We are so grateful for her willingness to take in a difficult case like him in addition to all her research.

phoenix0509 | @phoenix0509 | Jan 15, 2020

Rachel; I watched the You Tube Video you suggested. Dr Ostrander's talk was very informative. She is a great speaker. Boston is about 3 hrs drive from me. Perhaps it will be in my future, or at least I can educate myself more to present information to my Neurologist to consider further testing and/or treatment for SFPN. I have become much more symptomatic in the last few months, increased pain/tingling in upper extremities during and following sleep, autonomic symptoms of blood pressure and lower extremity pain/paresthesias. Thank You for posting this video, its a must see for everyone with neuropathy, especially small fiber peripheral neuropathy and fibromyalgia as well. David