Small Fiber Neuropathy Doctor in the MidWest

Posted by kdallen @kdallen, Aug 17, 2021

I have been diagnosed with SFN; however, the cause has remained elusive. I am looking for a doctor in the MidWest who specializes in SFN. Any suggestions are appreciated.

Interested in more discussions like this? Go to the Neuropathy group.

Try your regional university. I live in mid-Michigan and see doctors in Ann Arbor for my neuropathy as they have specialists in all sorts of things.

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@kdallen where are you located? I see Dr. Zeidman in the Chicago area. He’s very knowledgeable and on the forefront of new research involving SFN and treatments.

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@carlyschneider

@kdallen where are you located? I see Dr. Zeidman in the Chicago area. He’s very knowledgeable and on the forefront of new research involving SFN and treatments.

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I’m in mid-Missouri. Is your doctor in the city or the suburbs of Chicago ?

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@kdallen, I would like to add my welcome to Connect along with @brklimeks and @carlyschneider. There is another discussion which might find helpful — Unknown Cause or Idiopathic SFN: https://connect.mayoclinic.org/discussion/unknown-cause-or-idiopathic-sfn/.

You might want to consider a major teaching hospital or health facility like Mayo Clinic Rochester. Here is some more information:
— Neurology – Department home: https://www.mayoclinic.org/departments-centers/neurology/home/orc-20117057
— Find doctors – https://www.mayoclinic.org/departments-centers/neurology/sections/doctors/drc-20117077

Are you able to share a little more about your symptoms and how you were diagnosed?

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May want to ask your family doctor. Some specialists require a referral.

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@kdallen

I’m in mid-Missouri. Is your doctor in the city or the suburbs of Chicago ?

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I see him in Arlington Heights, about 30 min northwest of Chicago.

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@carlyschneider

I see him in Arlington Heights, about 30 min northwest of Chicago.

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I will check it out. My GP is great and very good. Still can’t find a neuro that can really commit to finding the SFN cause.

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I hear you. My Neuro ordered tons of blood work to find a cause but I will say, I’ve also done a ton of the work trying to find my cause. I’ve had to learn to be a better advocate for myself through of all this. Although my Neuro knows what he is doing, my dx is listed as “idiopathic” which to me means a fancy medical term for they’ve stopped looking. So I will continue to do the research, bring up things to my Dr. and push for further testing etc. good luck in your search and keep on healing!

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