Small cell lung cancer: How often do you get surveillance testing?

Lisa, Thank you for your kind words. Yes, I have family support. My husband has been transferred to the ICU unit. The doctors have no idea what is causing the dementia. He no longer knows us and does not respond accept to pain. The doctors are checking any possible avenues no matter how slim a chance they are causing this. They are baffled. My daughter and I will be to see him today again. My son and family are coming from Texas next weekend. (We live in FL) My son came last weekend while my husband knew him. That was great. He also saw the transition to the delirium.
I have phone contact with my husband's brother as well as with mine. My MRI report from Friday 11-03 was good. I have not received the CT report which is a bit concerning. I will see my oncologist on Monday. Hoping for some good news. Thank you again. vlpr PS: We are lucky to have Mayo Clinic in Jacksonville, FL where I live.

Hi Vickie @vlpr, The speed at which your husband has been affected is scary. I hope that the doctors find/found something to help him. I'm sure it's overwhelming to deal with and process the reality of what's happening. Have you received your CT report yet?

Thank you for checking up on me. I saw my oncologist on Monday and got the all clear. I will be on a 2 month schedule again, then maybe can go back on a 3 month schedule.
My husband has improved - he is aware of things, but he is by no means himself. He knows who I am, but shows no pleasure in seeing me. He is still on 24 hour surveillance. I've been optimistic, however yesterday and today I've felt a bit down. I decided to take this afternoon for myself and will not travel back to the hospital this afternoon. I need to be there at 7am tomorrow to give consent for my husband to have anesthesia for a brain MRI.
Monday was such an up day with my report and my husband coming out of his complete delirium. I'm working on positive thoughts going forward. VLPR

Mine was NSCell cancer, stage 1. Had the entire lower left lung removed in August 2021, all margins clear and all lymph node clear, Thank God! For the first 2 years I saw my oncologist following CT with contrast lung scan and blood work from their lab every 6 months. From here out, I still have my next apt in 6 months, then will see if still clear, I can go once per year, after the 5 year limit, my oncologist said I would have a low dose CT lung scan annually, and that could be with my primary care doctor for 15 years, not sure I am comfortable with that? But I also have COPD so I will have them read my scans as well. Time will tell as my oncologist is leaving this practice in January and I will be seeing another oncologist and will follow her reccomendations. I just hit my 2 year 'surgical cancer free' never had chemo or radiation. Best of luck to you.