Small Cell Lung Cancer

Posted by Merry, Volunteer Mentor @merpreb, Jan 12, 2019

Most of the discussions about lung cancer has been about Non-small cell lung cancers. There are many sub-types of this that are included. But there is another type of lung cancer that needs to be discussed and that is Small Cell Lung Cancer. This aggressive form of lung cancer most commonly occurs in smokers. It usually starts in the breathing tubes (bronchi) and grows very quickly, creating large tumors and spreading (metastasizing) throughout the body.
Symptoms include bloody phlegm, cough, chest pain, and shortness of breath.
Treatment includes surgery (for small tumors) as well as chemotherapy, sometimes in combination with radiation therapy.
Lung cancers cells are sometimes classified by where they tend to grow.
There have been huge breakthroughs in lung cancer research of late.
Please join @margot69 and I in this new disussion.

@besswillis

It's very scary when someone tells you that you may at the most have 3 months to live without treatment and a year with. And it's so hard to get anything done. We have fought to move up days and pre approve things with the insurance. It's scary.

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Good morning @besswillis. Welcome to Mayo Connect. I agree it is terrifying when you are given a set time that is left in your life. Is it possible to get a lawyer to help with insurance woes? I can't imagine having to rely on a corporation for such information and then have them hold it up due to red-tape. If this is a new cancer is it possible to get legal help?

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@merpreb

@popkorhn– Good morning. I think that the only thing that you can do now is to make sure that all of your legal papers are in order. If you aren't sure what they are in your state I'm sure that a lawyer can let you know what you need. The second thing that you can plan depends on how Pop feels and whether he is in treatment. Otherwise, I would think that the world is wide open to you. Do what you want, when you want to. As difficult as it is to make future plans it's that easy to cancel plans if you need to. Being honest about what your hesitancy is for making plans is all about people being forgiving and understanding. How are you doing? How is Pop? How did he do with his second round?

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PopKorhn’s second round went extremely well. There has been little or no affect after his second round of Chemo and immunotherapy last week. He golfs every Tuesday, plays pickleball for and hour or two 4 days a week and usually gets in his 10,000 steps a day. So Far so good for a 74, almost 75 year old. He has another pet scan at Moffitt on the 28th and we meet with his small cell Thoracic specialist who is doing a clinical trial that he may be a candidate for. He is scheduled right now for two more rounds of chemo in March along with the two immunotherapy drugs. We were told that he would have the 4 Chemo treatments and possible two more depending on what his Feb 28th pet scan shows. The immunotherapy could be for life. Truly an unknown path, yet life is still good.

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@besswillis

My aunt has just been diagnosed with small cell lung cancer that has spread to her liver and bone. We would love to know the medicines you are speaking about in this 3 drug cocktail.

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So sorry to hear about your Aunt. My husband was diagnosed with a secondary liver cancer on December 18th, 2019 after a biopsy of his liver. A Pet Scan showed his primary tumor was in his lung and gratefully no involvement in his brain . The chemo along with Carboplatin and etoposide are what the standard 3 cocktails used.

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@popkorhn

PopKorhn’s second round went extremely well. There has been little or no affect after his second round of Chemo and immunotherapy last week. He golfs every Tuesday, plays pickleball for and hour or two 4 days a week and usually gets in his 10,000 steps a day. So Far so good for a 74, almost 75 year old. He has another pet scan at Moffitt on the 28th and we meet with his small cell Thoracic specialist who is doing a clinical trial that he may be a candidate for. He is scheduled right now for two more rounds of chemo in March along with the two immunotherapy drugs. We were told that he would have the 4 Chemo treatments and possible two more depending on what his Feb 28th pet scan shows. The immunotherapy could be for life. Truly an unknown path, yet life is still good.

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@popkorhn– Good morning. I finally looked up pickleball! This looks like my cup of tea! What fun. Amazing that PopKorhn's chemo and immunotherapy are going so well. I am so pleased. This must be such a relief to you. How are you holding up?

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@merpreb

@popkorhn– Good morning. I finally looked up pickleball! This looks like my cup of tea! What fun. Amazing that PopKorhn's chemo and immunotherapy are going so well. I am so pleased. This must be such a relief to you. How are you holding up?

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Nancy (shortshot80) I don't know "pickleball" but I have been on the lung cancer discussions for almost four years. Visiting with Colleen (Director) and Teresa) I am doing the best I can do…I think radiation is really great. It doesn't hurt and it stops the bleeding. While doing all the medical stuff, I have written a book. My daughter is proof reading and it will go to print soon. It is a "autobiography for family and friends. It started out as a "woman commercial fishing" book. I ended as autobiography. Nancy

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@merpreb

Good morning @besswillis. Welcome to Mayo Connect. I agree it is terrifying when you are given a set time that is left in your life. Is it possible to get a lawyer to help with insurance woes? I can't imagine having to rely on a corporation for such information and then have them hold it up due to red-tape. If this is a new cancer is it possible to get legal help?

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So she actually had no small cell lung cancer before and had 2 parts of her lung removed in 2013. Now she has small cell long cancer with a mass6.2×5.2 c.m in her ap window, 15 m.m. mass on her liver along with 3 other lesions, a spot on her spectrum, iliac bone and t11 disk.

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@besswillis

So she actually had no small cell lung cancer before and had 2 parts of her lung removed in 2013. Now she has small cell long cancer with a mass6.2×5.2 c.m in her ap window, 15 m.m. mass on her liver along with 3 other lesions, a spot on her spectrum, iliac bone and t11 disk.

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@besswillis– I'm not sure what you mean by an ap window. Have you come to any solution with the insurance company? What does the dr. say about her treatments?

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@merpreb

@besswillis– I'm not sure what you mean by an ap window. Have you come to any solution with the insurance company? What does the dr. say about her treatments?

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Ap window is a space in the chest between the lungs and heart. I have been constantly on the phone with the Dr the insurance and everyone else. So we actually finally got the order sent to insurance and is finally approved, now we are going tomorrow for chemo education and a de appointment and the infusion scheduler is trying to get us doing treatment tomorrow.

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@besswillis– Phew! I have been very scared for you. This must make you feel a lot more at ease if this is possible. Please let me know how you make out!

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Good Luck to you. Nancy

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Tomorrow is an important day for Pop. We see his oncologist to get his Pet Scan results after having had just two rounds of treatment with chemo and immunotherapy. Since starting treatment just 7 weeks ago, he has has little or no side affects. Pop’s weight is steady so far with a healthy appetite , plays golf once a week and pickleball 4 times a week. Other than his hair loss, nothing has changed thus far. I truly believe his getting 10,000 plus steps I , 5 days a week, has helped him through this.
Has anyone heard about the new drip which was released in December and approved for a fast approval by the FDA? It is the first drug in 20 years for relapse of small cell lung cancer. I read that it will hopefully be available by August 16th, providing the EOA approves it.

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@popkorhn– What incredible inner and outer strength your husband has shown! Can you keep up with him? lol. My am sending you postive thoughts and high healing energy for tomorrow!
I believe that you might be talking about:
Topotecan, a water-soluble, semisynthetic derivative of camptothecin, is a specific inhibitor of topoisomerase and is the only drug approved as second-line chemotherapy for relapsed SCLC by the FDA It was released in August 2018.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3932054/
https://go2foundation.org/blog/first-new-treatment-approved-for-small-cell-lung-cancer-in-20-years/
Have you checked with your husband's oncologist to see if this might be something that he would consider for popkorhn, if needed, in the future?

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