Small Cell Lung Cancer: Let's connect

Posted by Merry, Alumni Mentor @merpreb, Jan 12, 2019

Most of the discussions about lung cancer has been about Non-small cell lung cancers. There are many sub-types of this that are included. But there is another type of lung cancer that needs to be discussed and that is Small Cell Lung Cancer. This aggressive form of lung cancer most commonly occurs in smokers. It usually starts in the breathing tubes (bronchi) and grows very quickly, creating large tumors and spreading (metastasizing) throughout the body.
Symptoms include bloody phlegm, cough, chest pain, and shortness of breath.
Treatment includes surgery (for small tumors) as well as chemotherapy, sometimes in combination with radiation therapy.
Lung cancers cells are sometimes classified by where they tend to grow.
There have been huge breakthroughs in lung cancer research of late.
Please join @margot69 and I in this new disussion.

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@joe6767

Thank you
My billy l think it’s stress to l start restoralax 5 days ago and it’s starting to help
That really help me what you said about spreading
My cancer was stage2b they take 18 lymph node and 7 got some cell cancer
They told me chimo prevent with spreading after surgery they told me that can be all gone just to be sure my nodule was 3.5 cm they told me was really small but start at 2 cm or 2.5 l don’t remember
Than thank you again l can sleep a little bit better tonight xo

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I HAD 11 IV CHEMO TREATMENTS & 52 RADIATION. I HAVE BEEN ON XALKORI FOR 5 YEARS NOW AND NO SIGN OF CANCER. IF I STOP TAKING XALKORI WILL THE LUNG CANCER RETURN? (NEVER SMOKED)
SHIRLEY

REPLY
@colleenyoung

Hi @joe6767, I can see you are very scared and want to be sure you are getting the right treatment. It sounds like you might be getting advice from people who are not medical professionals.

The lobectomy surgery did not cause the cancer to spread. Small cell lung cancer is often discovered when it has already started to spread. This may be limited spread or extensive spread. Surgery followed by chemotherapy is commonly used for patients with limited spread.

You should tell your cancer team about your worry and the pain you are experiencing in your belly. Stress can cause pain. Your cancer team can check to see what it causing the pain in your belly and even help you with managing stress.

You may wish to do this online course from Mayo Clinic. It is free and you can do it on your own time:
– Stress Management for Cancer https://connect.mayoclinic.org/blog/cancer-education-center/tab/stress-management/

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Thank you
My billy l think it’s stress to l start restoralax 5 days ago and it’s starting to help
That really help me what you said about spreading
My cancer was stage2b they take 18 lymph node and 7 got some cell cancer
They told me chimo prevent with spreading after surgery they told me that can be all gone just to be sure my nodule was 3.5 cm they told me was really small but start at 2 cm or 2.5 l don’t remember
Than thank you again l can sleep a little bit better tonight xo

REPLY
@joe6767

I got lobectomie 5 week ago they dint know was carcinoma Dc told me he take everything he can see
Now I’m scare people his telling me he wasn’t supposed to do that because now it’s all spread l don’t know what to think anaymore ?
I’m 62 years old
I don’t eat to much because my billy his hurting all the time it’s 5 week fell My billy all the full l don’t know if it’s stress are something else
I’m suppose to start my chimo in January l just up it’s not to late I try to be strong but some people scare me a lot
Can somebody tell me something about that
Thank you

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Hi @joe6767, I can see you are very scared and want to be sure you are getting the right treatment. It sounds like you might be getting advice from people who are not medical professionals.

The lobectomy surgery did not cause the cancer to spread. Small cell lung cancer is often discovered when it has already started to spread. This may be limited spread or extensive spread. Surgery followed by chemotherapy is commonly used for patients with limited spread.

You should tell your cancer team about your worry and the pain you are experiencing in your belly. Stress can cause pain. Your cancer team can check to see what it causing the pain in your belly and even help you with managing stress.

You may wish to do this online course from Mayo Clinic. It is free and you can do it on your own time:
– Stress Management for Cancer https://connect.mayoclinic.org/blog/cancer-education-center/tab/stress-management/

REPLY

I got lobectomie 5 week ago they dint know was carcinoma Dc told me he take everything he can see
Now I’m scare people his telling me he wasn’t supposed to do that because now it’s all spread l don’t know what to think anaymore ?
I’m 62 years old
I don’t eat to much because my billy his hurting all the time it’s 5 week fell My billy all the full l don’t know if it’s stress are something else
I’m suppose to start my chimo in January l just up it’s not to late I try to be strong but some people scare me a lot
Can somebody tell me something about that
Thank you

REPLY
@merpreb

You are most welcome. After having cancer fear of recurrences or metastases is very normal. After all, cancers can and do kill. It is almost like a shooting match on who wins. Things have to line up perfectly. This is all new for you so your fear is probably at its highest for the time being. It also seems to be the time when people re-evaluate their lives, think deeply about their own mortality, and make changes. Since you are still recovering physically, how are you other than fearful?

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I’m ok
I got 2 son there really good to me
And l really bealive in my Dc
When he told me everything his out l bealive him l stay positive sometimes l cry but we all need that
I’m waiting for that call oncologist to see what they have to offer me
I’m a psw l see many thing in my life
I just hope they catch me really early
It’s because l got a ct scan for my neck l hurt myself with a client and l got a neck fusion 4 months ago it’s really painful do physio for my neck help my lung at the same time how to breathe better etc… l got rode and screw and they make a ct scan and they find 2 nodule in my write lung l was lucky l think l hope:)

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@mustangdee64

It’s very scary. I had a 5cm tumor left upper lung and I also had two positive lymph nodes. I would imagine you’ll just have chemotherapy because I think that they only radiate tumors. You are blessed because it was found so early.

In 2021 I was sick and my doctor thought I had pneumonia because the radiologist read my tumor as that. Three X-rays later two months later began coughing up blood. I knew I was in trouble. I finally went to ER to get checked.
When they learned I had smoked for over 30 years they CT’d it found the “pneumonia’ was actually a tumor. No operation because it was so close to my pulmonary artery. Surgery for small cell is rare which is why I asked if yours was. Stay off google. Many prayers 🙏

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Hello
Mind was 3.5 cm stage 2b
I got lobectomie be one month on the 21 December
Oncologist suppose to call next week to find out if l need chimo and radiation or not but I’m pretty sure they gone to tell me l need some my Dc told me he take everything out but just to be sure

And you did you do chimo are you finish? I hope everything his ok with you
Google my son tell me the same thing it’s really scary when you ask questions at google

I be happy if you told me more about you what did they do to you

Thank you 🙏 hope l talk to soon then l know I’m not alone thank you

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@joe6767

My Dc call me when they biopsy 9 lymph node they find 2 of them with cancer in it
He told me no tumour left inside of me
But just to be sure
Oncologist suppose to call me next week to see if l need some radiation and chimo are if l don’t need nothing anaymore
I’m scare but lm positive
Be 4 week on the 21 of December l got my lobectomie
Thank you to respond to me mean a lot:)

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It’s very scary. I had a 5cm tumor left upper lung and I also had two positive lymph nodes. I would imagine you’ll just have chemotherapy because I think that they only radiate tumors. You are blessed because it was found so early.

In 2021 I was sick and my doctor thought I had pneumonia because the radiologist read my tumor as that. Three X-rays later two months later began coughing up blood. I knew I was in trouble. I finally went to ER to get checked.
When they learned I had smoked for over 30 years they CT’d it found the “pneumonia’ was actually a tumor. No operation because it was so close to my pulmonary artery. Surgery for small cell is rare which is why I asked if yours was. Stay off google. Many prayers 🙏

REPLY
@joe6767

My Dc call me when they biopsy 9 lymph node they find 2 of them with cancer in it
He told me no tumour left inside of me
But just to be sure
Oncologist suppose to call me next week to see if l need some radiation and chimo are if l don’t need nothing anaymore
I’m scare but lm positive
Be 4 week on the 21 of December l got my lobectomie
Thank you to respond to me mean a lot:)

Jump to this post

You are most welcome. After having cancer fear of recurrences or metastases is very normal. After all, cancers can and do kill. It is almost like a shooting match on who wins. Things have to line up perfectly. This is all new for you so your fear is probably at its highest for the time being. It also seems to be the time when people re-evaluate their lives, think deeply about their own mortality, and make changes. Since you are still recovering physically, how are you other than fearful?

REPLY
@joe6767

My Dc call me when they biopsy 9 lymph node they find 2 of them with cancer in it
He told me no tumour left inside of me
But just to be sure
Oncologist suppose to call me next week to see if l need some radiation and chimo are if l don’t need nothing anaymore
I’m scare but lm positive
Be 4 week on the 21 of December l got my lobectomie
Thank you to respond to me mean a lot:)

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9 lymph node they take out with my lobectomie

REPLY
@merpreb

Hello Joe- First let me welcome you to Mayo Connect. I hope that you are recovering well from your surgery. How long ago did you have your lobectomy? I'm sure that you are frightened but it sounds as if your doctor acted quickly as your tumor was caught relatively early was small and the PET scan showed that your cancer, at the time of the surgery at least, had not metastasized. This is all good news for you.

Small cell carcinoma- Small-cell lung cancer starts when healthy cells in your lungs mutate or change into cancerous cells. These cells then divide and multiply uncontrollably. Eventually, the cancerous cells clump together in masses (tumors) in your lungs.

There are two types of small-cell lung cancer.
Small cell carcinoma: This is the most common form of small cell lung cancer.
Combined small cell carcinoma: Combined small cell carcinoma represents about 2% to 5% of all small cell carcinomas. This small cell type is a combination of non-small cell and small cell lung cancer cells.

There are people who have not died from small-cell lung cancer. What is the next step for you now that your operation is complete?

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My Dc call me when they biopsy 9 lymph node they find 2 of them with cancer in it
He told me no tumour left inside of me
But just to be sure
Oncologist suppose to call me next week to see if l need some radiation and chimo are if l don’t need nothing anaymore
I’m scare but lm positive
Be 4 week on the 21 of December l got my lobectomie
Thank you to respond to me mean a lot:)

REPLY
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