Small Cell Lung Cancer: Let's connect

He should be. He was having some issues with feeling dizzy and has passed out 3 times over the past couple of years. Long story short, had a heart stent put in about 3 months ago and now trying to manage BP meds. It was too low the other day so he had to stop a med. He is out golfing today. :-). Another reason I don't want to travel far away from his doctors. What a group!

They showed up on the CT, PET and the chest X-Ray too, I think. Under my clavicle area? Cannot be felt externally. 2 or 3 on the outside of my trachea? Tylenol is just not helping this pain.

Oh, glad you posted that. Yes, lengthy but informative. I have an appt to see Dr. Wakelee, the one that was the last to speak at that presentation. Thank you for the encouragement. Tgat is some commute. Going to Mayo, Sloan, MD Anderson really are not options. My daughter lives near Scripps in San Diego who, I think, just partnered up with MD Anderson in 2018. She wants me to come down there but, again, such an inconvenience, woukd not feel,comfortable and, having taken care of sick parents for years, hate to put my kids through this, if I don't have to. I don't know if one place is better then another.

@margot69- Will your husband be ok to drive you? You mentioned that he had heart problems I think?? How is he?

Margot- What tests did he do that saw the nodules near your shoulder blade?

@margot69- I recommend everyone should watch this. It is a bit lengthy so bear with it. I am thrilled that you now have an appointment in just a couple of days. You can do this! And you are not alone in this journey. We are right along with you. I commute from southern RI to Boston, MA for my appointments and tests. It's worth it, if you can, to seek the best care possible.

He Merry,
Just posted I have an appt at Stanford this Thursday. I am having this right shoulder blade pain that just won't go away. Went to ER last Friday with this and back pain. Didn't really see anything. ER Dic said I have nodes on that side and maybe that was the problem.

Good Monday morning. Actually, Stanford called this morning to set up an appt. I asked if I coukd see Dr. Wakelee but she was booked out. Asked to see Dr. Padda, who treated a friend, and they booked an appt this Thursday. A while later, they called back and said Wakelee had an opening Thursday at 3:30, nit the best time for us for a long commute but I took it! Asked the scheduler who was the better doctor to se and was told both are good but definitely Wakelee. Actually, here is a video from Stanford and sge is one of the speakers, if it is ok if I post it here. https://stanfordhealthcare.org/medical-conditions/cancer/lung-cancer/about-this-condition/types.html/presentation-mode/stanford-health-now/videos/lung-cancer-webcast-2014

Scared to make this journey. Thanks for asking. As I have told very few people, nice to have the support.

@margot69- How are things going? What is your status now with going forward?

I have been thinking of You & hoping that you see an oncologist soon. The chemo I took was a combination of carboplatin/etoposide. Never felt nausea at all.