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Small cell carcinoma of the bladder (SCCB): anyone else?

Posted by nvmoen @nvmoen, Sep 13, 2020

In April 2020, in my 50’s, I had a TURBT performed and the tumor (6cm) removed. Pathology revealed 95% small cell urothelial carcinoma and 5% invasive muscularis propria. Bladder tumor metastasis in the liver (2.4 cm). Under went 4 cycles of chemotherapy carboplatin and etoposide. Most recent MRI and PET scans show liver tumor reduced to 1.3 cm and am scheduled for ablation of that tumor. PET scan showed no metabolic activity of the tumor and no new tumors. But did experience gross hematuria 5 days ago, one time, unknown why. Anyone else have similar experiences? Trying to decide what’s next etc...

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Mentor
Lori, Volunteer Mentor | @loribmt | Feb 26 4:12pm
In reply to @richardab "Hi Lori, thanks for the helpful information and the suggestions on ameliorating antibodies. I seem to..." + (show)
@richardab

Hi Lori, thanks for the helpful information and the suggestions on ameliorating antibodies. I seem to have a good tolerance to them, no effects from them.

I'm pleased to say that Medicare has approved my IVIG infusions. I found antibody vaccine data from a couple of years ago which I forwarded to my heme/onc. She sent it to Medicare this a.m. and apparently they concur with her determination that I need IVIG infusions despite having Smoldering Myeloma. A small victory but I'll take it.

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Excellent news with the IVIG approval, Richard! Pays to be the squeaky wheel sometimes!! 😉 It’s a shame we have to push so hard for treatments that we need and our doctor’s order. But this had a happy ending, so congratulations for being determined!
This should give you the much needed boost to your antibodies and keep you healthier.
Let me know how you’re feeling afterwards! ☺️

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