Bladder Cancer/Small cell bladder cancer

Posted by David O'Sullivan @daithio, May 4, 2017

Anyone here been diagnosed with small cell bladder cancer. I had a cystectomy in later February (at a non-Mayo hospital) and was told that all visible cancer had been removed. Today at a 2nd opinion session at the Mayo I learned that the original diagnosis missed the fact that I have small cell bladder cancer. I’m in shock that the original pathology work missed this. I will be starting chemo ASAP. I know the outlook is not good and I’m looking for some positive threads to hold onto. Thanks

Liked by sandieboyer, swift

“Small Cell Bladder Carcinoma” words I could not find on the internet. Reading about Small Cell Lung only add to my fears! I feel blessed finding others here. I am pleased to say I am feel Very well 1302 days post treatment. I am praying for you all 💛
Small Cell Carcinoma Survivor Sandie

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@tattrigoo

No, no metastasis. We were told it was for preventative measures- prophylactic cranial irradiation. I have no idea what that entails, other than what I learn from the Internet. We are meeting with the radiation oncologist in a few weeks to learn more about it.

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@tattrigoo my post to you is coming a bit late, sorry. Have you been able to meet with the radiation oncologist yet? What has he said? The nurse or social worker at the radiation center may be able to talk with you about all of your concerns. Try to make an appointment for yourself. My friend is a nurse in radiation oncology and she spends lots of time with the families. I hope all goes well for you and your husband. Becky

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@becsbuddy

@tattrigoo my post to you is coming a bit late, sorry. Have you been able to meet with the radiation oncologist yet? What has he said? The nurse or social worker at the radiation center may be able to talk with you about all of your concerns. Try to make an appointment for yourself. My friend is a nurse in radiation oncology and she spends lots of time with the families. I hope all goes well for you and your husband. Becky

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Thank you Becky. Yes, we met with the radiation oncologist. We’re going to proceed with Brain MRI and then 3 sessions of whole brain radiation, which consists of daily sessions Monday-Friday for three weeks with a total of 15 treatments. The radiation onc at MDAnderson just finished up a study. Results haven’t been posted yet but he was talking about a reduction in the incidence of brain metastasis for SCBC from 50% to around 14%.

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@sandielegal

“Small Cell Bladder Carcinoma” words I could not find on the internet. Reading about Small Cell Lung only add to my fears! I feel blessed finding others here. I am pleased to say I am feel Very well 1302 days post treatment. I am praying for you all 💛
Small Cell Carcinoma Survivor Sandie

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@sandielegal hello. I have been following this group also. It's two years in July that I started this adventure. Last treatment was mass on left adranal. Zapped by radiation. I am on wait and see program. C scan in three months. So good to see your reports.
Prayer and blessings to all in this group. Knowing we have others with the same conditions gives us hope.

Liked by sandieboyer

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@jimmy2248

@sandielegal hello. I have been following this group also. It's two years in July that I started this adventure. Last treatment was mass on left adranal. Zapped by radiation. I am on wait and see program. C scan in three months. So good to see your reports.
Prayer and blessings to all in this group. Knowing we have others with the same conditions gives us hope.

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Hello Jimmy, Will be pray for you and sending positive vibes, I will go through all the labs and scans in August (6 months in between) Hopefully I can go to annual after that. Finding this site sure helped me ❤️

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@sandielegal yes. I remember your posts. I am blessed from all your thoughts and prayers. I

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@mcgonzalez36

Thank you all for your advice. We will arrive on Monday and have her test done on Tuesday and see her doctor on Wednesday. We’re hoping for good news.

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Hi @mcgonzalez36, I wanted to check in with you. How is your grandmother doing?

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