Small Bowel Bacterial Overgrowth (SIBO)

Posted by sue225 @sue225, Mar 11, 2019

A few years ago, one gastroenterologist suggested that in addition to my irritable bowel-C, acid reflux, and celiac disease, I was also experiencing SBBIO. No testing was done. The recommendation was to take a combo of Metamucil and Restoralax (miralax) to deal with the constipation and probiotics and a FODMAP diet. (Restoralax now exacerbates my irritable bowel symptoms so I have stopped using it, as did the Metamucil). I took a specific probiotic recommended by the gastroenterologist for two years and found it didnt do much for me. When I read about Small Bowel Intestinal Bacterial Overgrowth, I see there is a breath test and there are specific antibiotics used to treat this condition. I also have read that probiotics can also make the condition worse until it is cleared up. Anyone out there with this condition who has treated it and is feeling better?

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Profile picture for mbusch12 @mbusch12

@dt61
I started a new round of medication Friday and the fatigue, fog and dizziness is worse this time around on the medication. I’m seriously regretting this new round of medication.

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@mbusch12
Hi. I really feel for you. I'm in a very similar situation, I have insomnia too. My dr said to stop this antibiotic, flagly, and ordered me xifaxian. The insurance company won't approve it without a 3 page PA, I dont know who is being unreasonable, but my dietician said insurance wont cover it if they diagnose it as sibo, has anyone else heard this? they need to say IBS-D, not sibo. I'm trying to communicate this to the office but they aren't listening.
Im afraid stopping this antibiotic before i finish the 10 days will encourage antibiotic resistance. Does anyone have and thoughts or experience with any of that? One thing I am very grateful for is this community!! It does bring me comfort knowing I'm not the only one struggling with this. I'm not ready to accept this is a chronic condition...this is a just for today condition ... thanks everybody. Hanging in here!!

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Profile picture for eileene7 @eileene7

@mbusch12
Hi. I really feel for you. I'm in a very similar situation, I have insomnia too. My dr said to stop this antibiotic, flagly, and ordered me xifaxian. The insurance company won't approve it without a 3 page PA, I dont know who is being unreasonable, but my dietician said insurance wont cover it if they diagnose it as sibo, has anyone else heard this? they need to say IBS-D, not sibo. I'm trying to communicate this to the office but they aren't listening.
Im afraid stopping this antibiotic before i finish the 10 days will encourage antibiotic resistance. Does anyone have and thoughts or experience with any of that? One thing I am very grateful for is this community!! It does bring me comfort knowing I'm not the only one struggling with this. I'm not ready to accept this is a chronic condition...this is a just for today condition ... thanks everybody. Hanging in here!!

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@eileene7
I’ve not had trouble with insurance refusing to cover xifaxin but now that I’m on Medicare Rx, I can’t afford it even with the co-pay. My doctor suggested I try the Canadian Discount Pharmacy in Belleview, FL. It’s easy - I scan and email my prescription - but is a little slow so I get a three month supply. Here’s the website: https://www.candisrx.com/

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Profile picture for eileene7 @eileene7

Anyone have success with SIBO treatment? Id love to hear what has worked for you. I'm struggling to find a doctor who understands and treatments that work long term, in the meantime Im loosing too much weight. Thank you in advance.

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Another good pharmacy that the Gastroenterologist nurse told me about is progressiverx.com. I think they're Canadian and they charged a lot less for the Xifaxin than my local pharmacy wanted. (My insurance wouldn't cover it either.)

REPLY
Profile picture for eileene7 @eileene7

@mbusch12
Hi. I really feel for you. I'm in a very similar situation, I have insomnia too. My dr said to stop this antibiotic, flagly, and ordered me xifaxian. The insurance company won't approve it without a 3 page PA, I dont know who is being unreasonable, but my dietician said insurance wont cover it if they diagnose it as sibo, has anyone else heard this? they need to say IBS-D, not sibo. I'm trying to communicate this to the office but they aren't listening.
Im afraid stopping this antibiotic before i finish the 10 days will encourage antibiotic resistance. Does anyone have and thoughts or experience with any of that? One thing I am very grateful for is this community!! It does bring me comfort knowing I'm not the only one struggling with this. I'm not ready to accept this is a chronic condition...this is a just for today condition ... thanks everybody. Hanging in here!!

Jump to this post

@eileene7
Originally they were going to put me on Flagyl but decided the Xifaxian which had been a struggle for me. What did the Flagyl do to you?

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