Slow gi motility with severe constipation

Hi, @cpeffer - I hear that you are scared. I'm also really sorry you feel you might die. It must be extremely frustrating that your bowels are not moving and you're barely sleeping or eating.

That is very unfortunate that the remedies you'd been given stopped working Aug. 27. Presumably, you've not seen any forward progress from that time, if I understand correctly.

I'd also like you to meet @jlharsh. She may have some thoughts for you at this time.

Why do you think you are feeling like you are just killing yourself at this point? Are you feeling frustrated that the delay in the Sitz marker test, or radiopaque marker study, could have been avoided, or with something else?

Thanks for the tag, @lisalucier. Hi, @cpeffer.

I have been reading your comments. I can’t really keep up through all of them but enough to know you are miserable and not getting any better. I am so sorry you are dealing with all this pain and stress.

Some of what you have written feels familiar to me. I have been at a place with my health that I was not getting help I needed, and I really did feel like death would feel better. I’m not sure if that is what you are saying, or if you feel like there is something happening that you believe is killing you, and you need someone to help you.

You are dealing with a lot right now. What is the top thing bothering you the most, and do you have someone helping you with it? What do you think needs done?

@jlharsh I went 17 days without a bowel movement in June, then 24 days in September now it's been since the 24th of September, they are finally doing a sitz test. I've gone through 4 GI Drs and been to the hospital 15 times in a month, they keep treating me for constipation but I've been diagnosed with ileus, and outlet disfunction. Now 4 months later they are doing tests for the severity and trying to help me. But it's too late look at my X-ray from the 1st of this month. Ill attach it to this reply. I had some conflicting test results in the last 3 months, Xrays saying I had no stool burden but I hadn't had a bowel movement in 18 days????? I don't understand what they were seeing, why they said I didn't have stool in me??? I was curled up in a ball for 2 weeks. So much pain could barely walk. I've had 2 colonoscopys and did the bowel prep but still had stool inside me. Now I'm looking at life threatening surgery. I don't think I can pass the stool in me even if I didn't have a motility problem. I Was neglected and mistreated by multiple Drs, and ER staff.. I was diagnosed with an ileus and released from the hospital they didn't even tell me about the ileus I read it on my release summary. I was in lactic Acidosis twice, and again wasn't told. I read it in my clinical notes. I have mental health background of anxiety panic attacks and acrophobia I'm not sure how to spell that. But I was on pain medicine for years too. What I want is to not die from sepsis. I'm going to have part of my intestines cut out if I'm lucky I'll live with a colostomy bag. all because they wouldn't listen to my symptoms, because I had some conflicting test results. and Xrays aren't that great at showing stool volume. Google it. The drs should have taken that into consideration. But they didn't. I have a malpractice lawyer but they won't act until the outcome of my treatment. And they won't do surgery until I'm obstructed, perferated, or ruptured. Im scared. Suffering with crippling anxiety. And trying to hold a job down so I don't lose my house. I feel worse everyday. I was just completely let go. Passed from specialist to ER for 2 months and now they are trying to help me. But it's too late.

What is next, @cpeffer? Am I understanding correctly that you have current doctor(s) that are trying to help you?

Hello, Sallyw133,

I believe I have IBS-C, plus pelvic floor issues, plus redundant sigmoid, diverticulosis, hiatal hernia, slow intestinal transit, etc. Based on a recommendation from Mayo Clinic Connect, I started VSL#3 about three weeks ago. It has been very helpful in improving my daily bowel movements. No other probiotic did anything for me. Yes, it does produce some cramps and bloating, but I think those things are lessening with time. I have actually been able to reduce my daily divided dose of Senna. I know three weeks is not a long time, but I am optimistic this will be of permanent help to me. When it is time to reorder, I might go with Visbiome which is basically the original formula of VSL#3. Best of luck to you!

yeah I just had a sitz test, I didn't go to the bathroom since the 24th of September, on the 9th I started the test, on the 13th I had a BM so the Dr said I'm fine??? I told him no, I haven't gone since the 24th??? I just happened to go on the 6th day of the test??? He said how do I know that??? WTH??? WHY WOULD I LIE??? my motility specialist in Hershey said it's ok, she understands, but the test didn't show what's really going on. I have an Arm test on the 23rd. I went to the bathroom the last r days, hopefully I'm getting better??? It did this last month, the 21st 22nd 23rd 24th then stopped for 19 days. I'm praying. Thanks for asking