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Slow gi motility with severe constipation

Posted by sallyw133 @sallyw133, Feb 28, 2023

I’ve posted here before under other topics but decided to start my own thread. Diagnosed three years ago
With extremely slow gi motility, stomach down, but symptoms primarily in colon which takes 82 hrs to process. Been to numerous drs, including motility specialists, and just no relief. Also claim some pelvic floor issues so I’ve done therapy twice. My main problem is finding a regimen to maintain some kind of regularity. I’m on Bethanichol, normally for urinary retention, but helps with motility, and Amitiza daily. Then add in mineral oil, senna, dulcolax as needed. The dailies help some, but not enough, so gradually add in others, then diarrhea. Or increase dose if dailies and same. Then there’s the “is it diarrhea or overflow” issue? My gi is little help. All questions go through nurse who never gets details right or doesn’t call back for days. I’d switch, but I have no idea who else to go to as can’t go to just a regular gi. I have been on every constipation med and have even consulted a surgeon re an ileostomy, but that just sounds like a whole new group of problems. Any one there share these issues?

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cpeffer | @cpeffer | 23 hours ago
In reply to @bb03 "Hello again, A gastroenterologist will want to do EGD and colonoscopy, CT scan, will assess drugs..." + (show)
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Hello again,
A gastroenterologist will want to do EGD and colonoscopy, CT scan, will assess drugs your on. I had what they called a Sitz study which was out patient and I went to the radiology dept at a hospital and had a series of x rays after taking a special radiopaque capsule and went back daily to have x rays to see how fast I digested the capsule. It never got into my sigmoid colon. My problem is scar tissue on my intestines inhibiting peristalsis( movement of your intestines). They may also order a barium enema, look it up. All the test in the world won’t help your immediate problem. If you have an ileus you could be admitted to a hospital no food or drink and IV fluids, blood test and maybe a tube inserted into your nose all the way into the esophagus to your stomach. They will do x rays/ CT. If you have a complete instruction possible surgery. You need a good Dr who will listen to you. You may need to seek out a stomach/ intestine surgeon. They have seen the inside of people and from experience they would understand where you are coming from. Before I took Linzess I pooped like a rabbit and almost blew a carotid artery from straining LOL and I was a vegetarian. I was super active, drank lots of water and extremely active so no earthly reason for it. No drugs or alcohol. I had scar tissue and still do. I had surgery lots of scar tissue from endometriosis was removed but not all. It’s a long story. Did the Dr give you the ok for the Mg citrate and ducolax? I feel your pain and your desperate. I’m sorry you are going through all this. Even a GI Dr if they never walked out walk don’t quite get it. Let me know how your doing.

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@bb03 thanks for answering me, I remember you telling me about the pill they watch, and I knew about the barium enema to kinda look to see if your intestines are scrunched up witch cuts the blood flow and can cause dead tissue. I did get approval for the mag citrate and the ducolaxe, they told me if it doesn't work I should probably go to the ER. I had an ER Dr give me Golytley and I drank the whole gallon it almost killed me. My body ingested it, nothing came out. I couldn't breath was shaking and sweating for about an hour. Then I read the cautions on the medicine, if you've ever been diagnosed with ileus or if you are severely constipated do not drink this medicine. Well I should have read it before I drank it, but the. ER Dr gave it to me so I thought it was okay. Last time I make that mistake. I'm just doing a liquid diet until I see the gastro Dr Monday. I haven't had a bowel movement except a small piece since the 24th. I'm starting to hurt , I know how bad it gets, well I know 24 days was so bad I was begging the hospitals to cut my intestines out. I called a malpractice lawyer, they were telling me in some of my X-rays that I wasn't constipated, idk what they were seeing it was 18 days in and I had the practitioner say I had no disternable sign of constipation, it's morbid to me, like a bad dream, they were saying I'm obsessed with having a bowel movement, I said go 20 days without having one once tell me how obsessed you become with it. I told the malpractice lawyer I don't want money they can keep the money I just need help. Ok BB I hope you are doing okay. I'm going to try to lay down. thanks for getting back to me. I'm saving your reply and reading right from it at my visit Monday. Thanks again.

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