SLEEP STUDY-SLEEP APNEA
I had a sleep study done a 3 years ago and they could not get a good reading because client in bed in next room kept waking me up with all his complaints. So I am back at it again picking up a unit this Monday and wearing it at home for two nights. I do know I definitely have sleep apnea. So my questions for you all that have CPAP units what has been your experiences with the different types of units [full nose-partial] also what about sanitizing them. Should I invest in the unit that you see on TV all the time. I work with a guy that just puts his tubing in the dishwasher-not so sure about that. I would love to hear back from anyone that is currently using a CPAP. Thanks in advance.!
Interested in more discussions like this? Go to the Sleep Health Support Group.
Hi and Welcome @barb2025 ,
I’ll share my experience with CPAP- it was great to finally get decent sleep! I got a machine recommended by the sleep center and was covered by my insurance. A durable medical equipment company supplied tubes, masks, filters etc. To my knowledge it is not recommended to clean the hoses in the dishwasher. It’s fairly easy to clean them- soaking in water, vinegar and dishwashing liquid and air dry. I used nasal CPAP with soft “pillows “ , suits the way I slept. My husband uses face mask, covering nose and mouth.
Do you see a specialist in sleep medicine and pulmonology? If you don’t mind I would like to hear from you when you are getting set up.
Are there other Connect members that can share experiences and information?
Hi Lisa @techi, I'm happy to hear you have a doctor that listens and you like. Did they give you the results of the sleep study yet? I started using a CPAP machine after I had a sleep study at Mayo Clinic last July. I'm still getting used to it but I know it can take a long time and one just has to be patient and keep working at it.
Hope you have a great day.
@johnbishop Hey John no l haven't got my results back. It was a full body study because they still having problems with autoimmune diseases and liver disease out here. But she very thoro. I also had a cpac last year and yes they are very difficult so they are going to change my machine. So since she didn't do the first study she wants to see if l really need it. I mean if my sleep issues is my liver, medication that the doctors are prescribing that l shouldn't take with an Autoimmune encephalitis or sometimes hepatic encephalopathy. So l seen a neurologist, and rheumatologist and both say it's my liver. And so l had to fire my last hepatologist l was so happy about before because when my levels went up he said there was nothing wrong with me. Then later wrote on my chart about cirrhosis and hepatitis c which were both ruled out by 2 doctors. One my mayo doctor. And l can't take bystolic and high blood pressure meds. So after the psychiatrist put me on lamictal for mood swings and depression. The FDA put out warning about taking that in April of 2018. So l going to show my doctor tomorrow. And my insurance put out warning of meds l shouldn't be taking so l.have to bring it to there attention. You get so tired so l told my husband l ready to move. I just tired of doctors who only think about prescribing medication for profit and not listening. I have been dealing with this crap for 21yrs and l know better than that and more than that. But l hope you are doing well. I spiritually and l know God has blessed me and l just go around helping people eat better and educate themselves. And l also was watching a doctor on TBN Dr. Leis and she talks about the immune system and the mind, body and soul. And she said you have to retrain your mind and your body and lots of people have been healed of there sickness. And l am eating differently and l am sleeping better and walking. So it might take a little moment and then again it might not but l have to ask God to completely heal me and help others see he can do it for them too. I am going to call the mayo clinic because l don't know if the doctors ever go to John Hopkins because l got a text from John Hopkins and they are teaming together for AE diseases. If not then l will be making an appointment to go before summer because l need to see my doctor. God bless you John and take care. I will let you know the result still waiting for my brain eeg but he's filling out my dps papers so l can still drive. Hallelujah
<p>Last night l had to go for a sleep study. I had just had an eeg a week ago. And l told the tech l hope they see l just need a new cpac machine. Well my doctor comes from Turkey very sweet doctor. I trusted her and we bonded the first time l met her. I know she felt a little intimidated coming to a new country leaving her family behind because l moved from another state. So we got along very well. She's very thorough and she concerned about her patients. Her reviews are between 4.5 -5 . Now l know everyone one has different reviews positive and negative. But when l go to the doctors l pray first and ask God to show me about them. And when l talk them l can see or feel something. That the Holy Spirit and God shows me if they are right for me or not. Now sometimes it might take a second visit because doctors have issues too but l will know. And that is also with medications and know when you are sick even though they may not God always has the answer. So l was hooked up and she order the test like an internal medicine doctor. The tech said she well let you know about your entire body how it's running. I never had a sleep study like this before and l had lots of test. And at many hospitals, l really feel like l am the states Ginny pig. But like l say if l can help somebody as l travel along then my living will not be in vain. We should all have that kind of attitude even when we are wrong. Wouldn't that make a difference that's why l enjoyed the Mayo clinic because you see a difference. Not all doctors has the same desire for the patient but as a team you can always weed out some and still get a fantastic results. Now my family wants me to go to John Hopkins but l tell them l have a doctor at the mayo clinic. I wonder if he ever goes there since they are now working together with Autoimmune diseases? And now the support group are getting together. Well l am believing a good report because I already been through the battle and now the battle is won. When we were driving home l was listening to Fred Hammond Lovely Day and that ot certainly was. Have a Blessed Sunday and enjoy the Superbowl!!!</p>
Hi, Lisa @techi - since you were talking about a sleep study for sleep apnea, I've moved your post here to this discussion on that exact topic.
Hoping that @astaingegerdm @barb2025 @healingone @happyat76 will have some input for you on their experiences with sleep studies.
So, techi, will you share more about the reason you had the sleep study? You already had a sleep apnea diagnosis and also a CPAP, correct? If so, was it not working well anymore for you?
My name Walt & i am pushing 78 years of age Sept 2025.
I am going on ten years of using a CPAP machine for sleep apnea. I do not take any medications & use suplementation only. I have changed my diet, lost weight, now 55 lbs lighter & am still losing more weight though i have a little ways to go, about 40 lbs.
I wish a dr would just take the time to listen to my questions & concerns so maybe this site is a venue for that.
Here goes...i have had two sleep tests and though my sleep dr with the VA wanted to do a third test i adamantly refused. Why? because the Dr that did my second test refused to listen to my concerns about the results of the second test. At the time I was seeing the VA surgeon for a ''bad'' left knee which ultimately resulted in a total replecment. The sleep dr i saw prior to the replacement told me i had 116 episodes of apnea & 28 episodes of restless leg syndrome... go figure. I attempted to convince him that i did not have a prior issue with restless leg syndrome but he wouldn't listen & my apnea events on my first test that HE did were at 36. Why the large increase? He subsequently put me on 2 ltrs of 02 @ night which i disagreed with but allowed, he ordered an oxygen machine for me to use and a new CPAP machine ...i figured it probably couldn't hurt. The whole problem with this test & the reason i refuse to allow a third test is that i was on my back all night during the second sleep test , in pain with my left knee & could not roll to either side for better sleep. I probably got 2 hrs of exhausted sleep that night out of the 8 hr test. The 116 episodes of apnea was as a result of laying on my back all night. I do NOT sleep on my back as i am a side sleeper. When i tried to roll to one side or the other the leads fron the machine they used, to my body, were so short that when i tried to turn to one side or the other i would pull on the leads. The Dr refused to accept my input for the high nbr of apnea events & restless leg syndrome. Sleep test Drs do NOT test you the way you sleep but the way they want you to sleep. I was told that the apnea events need to be five or less. I am sleeping much better recently but not because of the CPAP machine ot the new full face masks that i finally convinced the VA that i needed as the nasal masks they sent me are useless. My APNEA events are in the range of 4 to 7. Though higher than the suggested five, i get into REM sleep which i haven't been able to do for quite some time. I attribute my better sleep to my Acupuncture Specialist, EMF DR & my Chiropractor...all three who are in the same office & who i see @ differing times.
Hello Walt @1rocky01, Welcome to Connect. I'm also a side sleeper and go back and forth between the sides when I sleep. I was fortunate to do my overnight sleep study at Mayo Clinic Rochester where they had a more acceptable setup with a longer cable harness from all of the probes hooked up on the chest and back allowed me to move to my normal "comfortable" sleeping positions. I had 55+ events/hour and my doctor diagnosed me with obstructive sleep apnea. I've been using my CPAP for almost 8 years and have had nights where I've had to sleep on my back and my AHI numbers are always a lot higher on those nights. Mostly I'm under 4 with the CPAP treatment which was the goal given to me by my sleep medicine doctor. My sleep test actually woke me up several times to try different masks and the full face mask was deemed best for my "mouth breathing". I also tried several different nasal masks along with a head strap to keep my mouth closed but didn't have any success.
What type of CPAP full face mask do you use now?
Happy to hear that you found a care team that is helpful.
i use a res-med C20. Last night my Apnea events were @ 8. I would like to get them down below five but not sure how to do that. I sleep more soundly @ night now & i'm not as sleepy during the day time...no naps for the last couple of days. Thank you for your reply.
Walt Leuci
I’m not familiar with the ResMed C20. I did find an N20 nasal mask. Is your mask a nasal or full face mask?
Thank you for your service!! I am so sorry you have had to go thru all of this..I lost my husband because the VA refused to do a biopsy until I called the Patient advocate in DC.. he got one..5 months later.. they are in need of prayer for improvement!! Still.. this was 14 years ago..our Veterans deserve the best care!! I'll pray for you !!