Skin infections

Posted by paulinef @paulinef, Jul 10, 2017

I recently had a fall and mildly, or so I thought, scraped my knee. I am currently on 10mg day of Prednisone for PMR and the scrape
became infected so have just finished a course of antibiotics (cephalexin) which cleared it. Now I have another scrape that appears to be infected so wondering if others on prednisone have experienced this and if antibiotics are the only recourse..

@barbararene

Thanks John. I hope you can return to no prednisone soon, just like we all do. Such a great drug, just wish it didn’t have those nasty side effects.

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This is great and I will try it! My cheeks have started to become puffy so the exercise might help. I see the rheumatologist tomorrow with the results of my recent bloodwork so am keeping my fingers crossed that she might reduce the prednasone from 10mg

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Well I have been on 1mg of prednisone for 1 week. So much pain! I want to go back up to 3mg but at this rate I am never going to get off of the prednisone. Plus the negative comment of my Dr, saying you will probably have to take prednisone the rest of your life! I would like to prove her wrong.
What a thing to say to a PMR pt.
I wonder if for some, the PMR never goes into remission and you will always have it?
Even on a low dose (never been above 5mg), I have developed fatty fluid pockets at the base of my neck. I have read that this is a side effect and won’t go away until the prednisone has stopped.
Any feedback?
Barbararene

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@barbararene

Well I have been on 1mg of prednisone for 1 week. So much pain! I want to go back up to 3mg but at this rate I am never going to get off of the prednisone. Plus the negative comment of my Dr, saying you will probably have to take prednisone the rest of your life! I would like to prove her wrong.
What a thing to say to a PMR pt.
I wonder if for some, the PMR never goes into remission and you will always have it?
Even on a low dose (never been above 5mg), I have developed fatty fluid pockets at the base of my neck. I have read that this is a side effect and won’t go away until the prednisone has stopped.
Any feedback?
Barbararene

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Hello Barbararene, sorry you are in so much pain. I’ve got no medical training or background but I’m pretty sure PMR is different with each patient. My first time with PMR lasted 3 years before going into remission. Was gone for 6 years and just came back again last year and I’m back on prednisone and going through the tapering off fun. I’ve tried several different approaches to tapering off of the prednisone (one from the rheumatologist and one from my primary care doctor). The last 6 months or so I was going back and forth between 1 mg and 1/2 mg dose until I could finally stop taking it. I have one friend who was diagnosed with PMR the same time as I was the first time and his PMR is still in remission so there is hope.

I wasn’t aware of that particular side effect but see that John Hopkins Vasculitis Center lists this as a side effect and says it usually goes away after you taper below 10 mg prednisone dosage.

https://www.hopkinsvasculitis.org/vasculitis-treatments/prednisone/

Don’t give up! Keep working on tapering off and when you are really hurting go back to the previous dosage.

John

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Thanks John.
I know your not a medical Dr, but it’s good to bounce this stuff off of each other. I’m going to try to stay on 1 mg for another week and just take a little tramadol.
I think a good question, that I don’t have the answer to is, since prednisone works on the inflammation, and you aren’t taking the prednisone and your body has a high inflammation level, (we know inflammation is not good for the body). I wonder if the body is better and safer w the controlled prednisone for the inflammation or if the inflammation wo the prednisone is any worse of a danger.
(not the best wording on that).
I recently tried to Cryo Therapy. It is where you get in a tank of freezing temperatures. (you can google it)
suppose to be good for inflammation. Didn’t help at all.
I prob should try the food elimination, but am not excited about that. There is a book out that talks about food to eliminate for PMR.
It’s like everything I eat, no peppers, no tomatoes, no dairy, no coffee, no red wine. Geeze I don’t know about that!

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@barbararene

Thanks John.
I know your not a medical Dr, but it’s good to bounce this stuff off of each other. I’m going to try to stay on 1 mg for another week and just take a little tramadol.
I think a good question, that I don’t have the answer to is, since prednisone works on the inflammation, and you aren’t taking the prednisone and your body has a high inflammation level, (we know inflammation is not good for the body). I wonder if the body is better and safer w the controlled prednisone for the inflammation or if the inflammation wo the prednisone is any worse of a danger.
(not the best wording on that).
I recently tried to Cryo Therapy. It is where you get in a tank of freezing temperatures. (you can google it)
suppose to be good for inflammation. Didn’t help at all.
I prob should try the food elimination, but am not excited about that. There is a book out that talks about food to eliminate for PMR.
It’s like everything I eat, no peppers, no tomatoes, no dairy, no coffee, no red wine. Geeze I don’t know about that!

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I may have mislead you a little. Last year my PMR came out of remission and I’m back on prednisone since March of last year. I started back at the 20 mg dose and am now at 6 mg. My rheumatologist explained PMR as arthritis all over the body and said the pain comes from inflammation in the joints and tissues which the prednisone helps with (I think). I think food elimination might be an excellent approach. Some others I know through my closed Facebook neuropathy group and all sorts of other autoimmune health concerns and a lot of them push the keto diet. Along with that others have mentioned that the “nightshade” vegetables are bad news for inflammation. Of course that means I would have to give up stuff I really love – spicy peppers, tomatoes and more. It might be worth while trying it for a month and seeing how it works for you. I have worked a lot of stuff out of my diet but still struggle with sugar and bread. I have cut it out by about 90% though.

John

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@barbararene

Well I have been on 1mg of prednisone for 1 week. So much pain! I want to go back up to 3mg but at this rate I am never going to get off of the prednisone. Plus the negative comment of my Dr, saying you will probably have to take prednisone the rest of your life! I would like to prove her wrong.
What a thing to say to a PMR pt.
I wonder if for some, the PMR never goes into remission and you will always have it?
Even on a low dose (never been above 5mg), I have developed fatty fluid pockets at the base of my neck. I have read that this is a side effect and won’t go away until the prednisone has stopped.
Any feedback?
Barbararene

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Thank you for this very useful link on vasculitis which I will keep as no doubt will be on prednisone for a while yet. My most bothersome side effect of prednisone, apart from slow healing/infections, is sleeplessness – doctor recommended Melatonin but even the smallest dose makes me groggy on a morning. She prescribed Teva Trazodone at bedtime so am hoping this will help me sleep without the grogginess but first doze was not much better than Melatonin.

Good news is that I saw my rheumatologist/internist this week and based on recent bloodwork has reduced prednisone dosage to 9 mg per day for a month, then monthly decreasage by 1 mg thereafter.

I really appreciate all the updates on PMR – thanks to all.

Sandra

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@barbararene

Well I have been on 1mg of prednisone for 1 week. So much pain! I want to go back up to 3mg but at this rate I am never going to get off of the prednisone. Plus the negative comment of my Dr, saying you will probably have to take prednisone the rest of your life! I would like to prove her wrong.
What a thing to say to a PMR pt.
I wonder if for some, the PMR never goes into remission and you will always have it?
Even on a low dose (never been above 5mg), I have developed fatty fluid pockets at the base of my neck. I have read that this is a side effect and won’t go away until the prednisone has stopped.
Any feedback?
Barbararene

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That’s great news Sandra! I’m lucky that sleeping has never been an issue for me…can almost sleep standing up. That can also be a bad thing. 🙂 Mayo Clinic has a couple of links that offer some suggestions. Not sure if they will work but it they help, it’s better than having to take medication to help.

Sleep tips: 6 steps to better sleep
http://www.mayoclinic.org/healthy-lifestyle/adult-health/in-depth/sleep/art-20048379

Foods and Sleep
http://www.mayoclinic.org/diseases-conditions/insomnia/expert-answers/foods-that-help-you-sleep/faq-20057763

John

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Thanks John.
I’m really suffering on the 1 mg of prednisone. I know if I go back to 3mg I will prob be much better, but I feel like I should try to get off. The problem is incredible pain in my neck and shoulders, (as you know when the prednisone dose is high enough, you don’t have this pain and stiffness)I am surprised at such a low dose that I developed these fatty pockets at the base of my neck. I will be surprised if I can’t stay on this 1mg bc the pain is making it hard for me to work and get through the day.
Starting Monday, I am going to try some of the Keto diet approach. I am going to enjoy some Mexican food, chips and salsa this weekend!
Barbararene

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@barbararene

Thanks John.
I’m really suffering on the 1 mg of prednisone. I know if I go back to 3mg I will prob be much better, but I feel like I should try to get off. The problem is incredible pain in my neck and shoulders, (as you know when the prednisone dose is high enough, you don’t have this pain and stiffness)I am surprised at such a low dose that I developed these fatty pockets at the base of my neck. I will be surprised if I can’t stay on this 1mg bc the pain is making it hard for me to work and get through the day.
Starting Monday, I am going to try some of the Keto diet approach. I am going to enjoy some Mexican food, chips and salsa this weekend!
Barbararene

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You might try just going from 1 mg to 2 mg instead of 3 to see if that reduces the pain. Then if that works, stay with it a month and then try reducing it to 1-1/2 mg and see if the pain is tolerable. The 1 mg pills can be a little difficult to split but not too bad. This was the approach my rheumatologist started me on with my first occurrence of PMR. I don’t think I’ve ever seen a titration schedule that is set in stone recommended from any doctor. My first time tapering from 20 mg I was told to reduce by 1 mg every 3 days and if the pain was too bad to go back to the previous dose and keep doing the cycle until you can get to a lower level and finally off. My current doctor team told me to try reducing the dosage every 30 days after I had tried every week and was bouncing up and down with the dose. So now I’m playing it by ear – when I start feeling pretty good I reduce it by 1 mg.

Don’t give up hope on getting off of it – just take one day at a time, you can do it!

John

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Thanks John,
I decided to take 1 more, so today is 2 mg. I will see if going back to 2mg makes a difference. I think it’s a good thing I have to get up and go to work everyday. Otherwise I would still be in bed!!!
Barbararene

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@barbararene

Thanks John,
I decided to take 1 more, so today is 2 mg. I will see if going back to 2mg makes a difference. I think it’s a good thing I have to get up and go to work everyday. Otherwise I would still be in bed!!!
Barbararene

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I don’t know if you are on a pill or capsule, or the strength. But when I tapered off prednisone, I even tried breaking 1 mg tablets in half (they are scored and break easily). That way I lowered by 1/2 mg for a while instead of 1 mg until my body adjusted. Slower and worked for me.
@barbararene, I admire your courage.
Sending you a gentle hug,
Rosemary

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Slow and steady can win the race.

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@barbararene

Thanks John,
I decided to take 1 more, so today is 2 mg. I will see if going back to 2mg makes a difference. I think it’s a good thing I have to get up and go to work everyday. Otherwise I would still be in bed!!!
Barbararene

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Thanks Rosemary. After being back to 2 mg I am a little better. This last weekend was the worse weekend I have had for pain. A little depressed, but trying to make today a new day and think and do differently. I will try to 1/2mg maybe in another month. This decrease and the pain that came w it scared me.
It’s good to be able to share w those that have walked in my shoes!
Barbararene

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@parus

So true!

Teresa

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Wanted to share something I thought was interesting. So I went back to 2 mg of prednisone this week. My pain has been manageable. I developed a cold on Monday, Stuffy head and chest, well Monday I had absolutely no pain or stiffness. I wonder if the body is trying to fight the cold, so it has quit attacking the muscles w the PMR. I’m sure just temporary, but thought was interesting. Today is Wed and the same thing, still have a cold, but no pain or stiffness.
I say that w the exception of, at night it seems like my shoulder muscles around the shoulder blades experience cramps, like the muscles are drawing tight, now that is uncomfortable.
Anyway, just wanted to share what’s new.
Barbararene’

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