Sjögren’s Syndrome: how do you manage the symptoms?

Yes, sometimes it does not show up in your bloodwork and a biopsy of your salivary glands is more definitive.

I am sorry that you were going through all this. I know all too well, but it’s like to live with chronic pain you know it’s interesting because my rheumatologist is telling me he doesn’t think I have Sjogren’s or any auto immune diseases, but my immunologist who runs extensive tests that are sent out of states told me that I have a marker for Sjogren’s. My symptoms are mild . Do you have an immunologist in your town that you could go to? Mine found that my IGG levels were very low and I take subcutaneous Plasma injections each week for that, but they are supposed to help with pain and if yours is autoimmune I would imagine it would help you. Mine ipin caused by a lot of osteoarthritis and degenerative disc disease etc so not much help in that area.

Good luck to you…

But I had it done by an oral pathologist. It was a small procedure.

Can you share which weren’t mint or citrus/lemon?

Yes, I try to find moments when I can do things, but no one specially, my rheumatologist understands or cares that I’m in chronic pain. I’m hoping that’s because this is a flare and that it’s some point it will calm down. Am I being unrealistic Venus Williams went back to tennis ??

Hi, just a comment on dry eyes: I do not have Sjorgen's but do struggle with dry eyes. I had the plugs in my tear ducts to my nose and it helps a lot.

I found the OTC eye drops that work best had Glycerine, Linseed oil and Castor oil along with the other ingredients (Sodium carboxymethylcellulose, Polysorbate). It is sold in South Africa under the name Optive Omega and is preservative free.

Please do consult with your medical specialist before taking these.

Would this be a specific bloodwork?

Yes they have special blood work called inflammatory markers that indicate arthritis lupus and sjorgens

Your blood work can show or not show Sjogren's. Sometimes my SSA, SSB tests are normal and sometimes they are very high. I have had Sjogren's for over 30 years and my PC doc agreed that once you are diagnosed with it, it never goes away. So, it's crazy to keep testing for it. My rheumatologist said that they only treat the symptoms until - hopefully - a cure is found. For the pain, I take medical marijuana. I use the 1 THC to 1 CBD and take 5 mgs as needed but no closer than 5 hours apart.
Hope this helps

Sorry, but I don't know re: ACT gum. At bedtime I use two Xylimelts along with a spray of Lubricity before I turn out the lights. (Plus my eye gel etc.)
One product the oral medicine doc recommended to alter acidic pH of mouth was Basic Bites. He also told me I could make a baking soda rinse with 1/2 to 3/4 tsp of baking soda to a cup of water. Rinse for 30-60 seconds and spit out.

Am not a tech guru so excuse my primitive way of sharing a citation. Below are two article I found just by searching on Google. There is public access to these, so if interested, just type citation in your search engine.