Sinking ship

Posted by janiemae @janiemae, 4 days ago

I feel like my ship is sinking! I can’t do anything right. Everything I cook for my husband, he takes one bite and in the garbage it goes. Yesterday he wanted hashbrowns and two fried eggs…one bite and in the garbage. Mac and cheese in the garbage. Peaches in the garbage. I don’t say anything, but on to the next meal I stand at the stove wondering why I’m wasting my time. This morning I made him a little pancake and he requested pineapple….in the garbage.

Yesterday he was snappy at me. I walked away and tears rolled down my face. Normally, he would apologize. No apology.

Between him and other life stressors I’m gonna bounce off the walls. I was talked to about self care….hmmmm what exactly is that?

He says, what are we gonna do today and I say, “I don’t know”….he usually sits, watches TV, goes to sleep, same pattern different day.

He’s either freezing or too hot! Me….what day is it? We started this journey December 13, 2024. Some times I seriously don’t know what day or month it is….the other day I was thinking of Valentine’s Day and laughed to myself …. Christmas….everything is a fog…

Sorry, but I gotta let it out some people I’m sure have gone thru the same thing!

My phone rings constantly….How’s Ron doing? Then I realize that I didn’t even comb my hair today…..am I going crazy? 🤪

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I'm really sorry you're experiencing this.

But I have to say...
If I treated my wife's cooking like that, she'd tell me to cook my own damned meals.

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Is he disabled or sick? If not, let him fix what he wants.

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He has undifferentiated pleomorphic sarcoma and just finished up 25 rounds of radiation at Mayo Clinic. He has surgery on April 18, to remove the beast. It’s huge and is in his right bicep. I’m just feeling overwhelmed. I get that he doesn’t feel good.

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@janiemae

He has undifferentiated pleomorphic sarcoma and just finished up 25 rounds of radiation at Mayo Clinic. He has surgery on April 18, to remove the beast. It’s huge and is in his right bicep. I’m just feeling overwhelmed. I get that he doesn’t feel good.

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I'm sorry that you all are going through all of this. I know how you feel as my wife and I also have health issues. I appreciate her a lot more now after being her caregiver. She has been my caregiver for the past ten years of my Lymphoma and skin cancer. Her ovarian cancer was much worse in terms of the Chemo and all the side effects.

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Feeling the same. I am overwhelmed. Husband dealing with stage 4 net since 2017. I don't seem to be doing anything right in his eyes. I keep saying it's really not him it's the cancer. But there are days that it gets very heavy.

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I feel the same way . My husband has inoperable chondrosacroma in his skull . Already had surgery and could
not remove a piece to close to cartoid artery . I understand……

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I understand quite a bit of what is being said here. My daughter has ovarian cancer and has been fighting it for years now. It's a rare kind and has come back. She lives with us. She is often angry and not very nice to me and her Dad. I realize it's how she feels and all, but it gets tiresome. I fix food I think she'll want and that would be good for her and mostly, she won't eat it. I feel helpless.

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Norkatsc, you are right that it isn’t you but cancer. My husband has stage 4b prostate cancer and is going through a triple protocol treatment comprising adt, abiraterone and chemo. There are days when his mouth is sore, he has a hard time eating anything. And during those days, he refuses everything I offer him, which makes him suffer even more. He often has no idea how his body will react to things. Today, he could not eat anything salty although he craved salty food last night.

And yes, there are days when I feel very tired, but what keeps me going is the knowledge that the hardship I am going through pales in comparison to what my husband is going through.

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Hi @janiemae, I just read what @sue678 posted. Along those lines, I had a friend who had radiation treatment and he told me that everything he tried to eat tasted like stainless steel.
An abdominal feeding tube might be the best solution, especially if your husband isn't getting adequate nutrition. It would take some pressure off you.
My suggestion is to take advantage of his sleeping time to take some time for yourself. My husband has Alzheimer's and goes to bed earlier than I do, so I use the time to unwind.
I have the opposite problem from you. He wants to eat everything in sight. He's prediabetic so I have to be the food police.
Take care.

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No your not. You sound like you care and want the best for him. I don't know who I am going to wake up to everyday. I see this man as my husband ..but someone else is saying mean and horrible things. Today was awful. I am right there with you. Many hugs your way.

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