Side Effects of Evenity?

Feeling very frustrated. I have had osteopenia for years. I had a total hysterectomy at age 30 with HRT until breast cancer 10 years ago. I can now only use the lowest dose ESTring. Also, I am hypothyroid. (I was hyperthyroid/Graves Disease until having a thyroid ablation.) I took Actonel for years. I have a long history of nasal and oral steroid use for sinus issues and asthma. Throughout this time, I have been diligent about taking calcium and exercising. Now I am 70 years of age and my last DEXA scan indicated that my right hip is now at -3.75. I consulted with a specialist who recommended Evenity. I usually have a good tolerance of medications and hoped for the best. I had my first and last shot in May. Unfortunately, I developed most of the named side effects within a week to 10 days. (Jaw pain, joint pain, headache, asthmatic cough, tingling, fatigue) So, the Doctor recommended Tymlos. After an initial denial, finally approved. BUT at a cost of $1,300 per month, I cannot afford. (Too much income to qualify for reduced rate.) Searching and researching options now.

I have had 2 rounds of evenity and due for the 3rd in 2 days. The side effects for me are so severe! Diffuse pain which can be worse in one area 1 day then a different area next day. Today horrible chest wall, sternum pain, back and neck pain, some days I can hardly walk. I take ibuprofen and Tylenol around the clock with almost no relief! Has anyone else had severe pain like this? I don’t know if I can continue

@roseincalifornia
Thank you. I am determined!

@roseincalifornia What can a Endocrinologist do?

@followheart87
God bless you!
I'm still going to try strength training and my supplements.

@srk01 Try calling Radius (the manufacturer of Tymlos). They might be able to give you a discount.

You can contact Radius Support / Radius Assist directly at 1-866-896-5674 to discuss your specific financial and insurance situation and see which program you qualify for. I qualified
for one of their programs and found them very helpful, but it may also be related to who you talk to over there. If you do not get a positive response the first time, try again.

Good luck!

@danasue123

These are the primary types of doctors who manage osteoporosis:

1. Endocrinologists: Because bone density is heavily regulated by hormones (such as estrogen, parathyroid hormone, and thyroid hormones), endocrinologists are often considered top specialists for metabolic bone diseases. They are particularly skilled at investigating secondary causes of osteoporosis and managing advanced treatments.

2. Rheumatologists: These specialists focus on musculoskeletal and autoimmune diseases affecting the bones, joints, and tissues. Because of their extensive training in chronic bone and joint disorders, many rheumatologists maintain a strong focus on diagnosing and treating osteoporosis.

3. Geriatricians: For older adults, geriatricians are an excellent choice. They specialize in the health concerns of aging individuals and are experts at managing complex medication regimens, fall prevention, and age-related bone density loss.

4. Primary Care Physicians (Internists or Family Medicine Doctors): For patients who do not have access to an endocrinologist or rheumatologist, a primary care provider is the best starting point—and often handles long-term management. They coordinate overall health, can prescribe standard osteoporosis medications, and provide crucial referrals to specialists if the case is complex.

5. Gynecologists: Because postmenopausal estrogen loss is a major driver of osteoporosis, gynecologists frequently screen for, prevent, and manage bone loss in women transitioning through or past menopause.

I have contacted the Tymlos manufacturer and Forus. I have a call into my
doctor. As a Medicare Part D member, the only program I qualify for
requires that my income be less than 3x the Federal Proverty level, which I
exceed. I guess my only option is to delay until the first of 2027 when the
deductible and prescription out of pocket cap restarts. I really wish
doctors would recommend specifics regarding diet, exercise, and
supplements in addition to drugs.