Headaches - Side effect of taking prednisone for PMR?

Posted by rick53 @rick53, May 29, 2023

I recently have been diagnosed with pmr. I am a 69 year old male. My DR. has put me on 15 mg. of prednisone .I have been taking close to a month .My symptoms have been controlled but I find since I started on the Prednisone I seem to have a low grade headaches every day. Has anyone that has been taking prednisone in a moderate to low dose find this side effect? Thank you for your help

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I’m getting headaches too, usually right after dinner. So I take Tylenol and it seems to help. I really believe it’s PMR, not Prednisone because the headaches were too coincidental, beginning before my diagnosis. A lot of things our doctors don’t know!

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I got diagnosed with PMR in 2015 and my doctor put me on prednisone. Which I feel it was the right call but with no follow up to set a time frame where I can go off the prednisone. So after almost a year I took myself off. My face was unrecognizable to me, I got "round face", weight gain, weakend bone density and high blood pressure. All that were the listed side effects. Now I have EPG and what is perscribed?? Prednisone! Im against that so my rheumatologist gave me Nucala injections. Within 24 hours of first injection I had hundreds of lumps/bumps all very painful. I have them still. Many have turned into open lesions that are difficult to heal. So moral of this story...do not take Nucala or any new drug just because the doctor "thinks it may work."

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@reets70

I’m getting headaches too, usually right after dinner. So I take Tylenol and it seems to help. I really believe it’s PMR, not Prednisone because the headaches were too coincidental, beginning before my diagnosis. A lot of things our doctors don’t know!

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Any strange whooshing sound in both ears. I get that, it’s very disconcerting. Seemed to start when all this other stuff started!

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No ,i don't have any problems like that. Hopefully that will disappear

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@vjs

Any strange whooshing sound in both ears. I get that, it’s very disconcerting. Seemed to start when all this other stuff started!

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Me too with low grade headaches and/or/whooshing/ringing. Am stuck in my tapering down from 20 MG prednisone plus LDN to a divided dose (10+2.5) of 12 MG Yesterday I went for a consultation with a good surgeon to set up a date for a Temporal Lobe biopsy to find out if I might have GCA.
He said that since I have been on prednisone since February the biopsy may come back with a false negative. He will be referring me to an Ophthalmologist.
I still don't know if it's the prednisone or the pmr or something else giving me the headaches and ringing in my ears.

All in all I'm still managing my original flare up since being diagnosed February 2023. This is quite a journey we're all on and I'm always grateful when I get good advice from a doctor who seems to know about PMR and is not driven by the profit motive. Also am grateful for this group. ✔️

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Hi. I also have headaches every day. Have been on 17.5 mg prednisone (down from 20 on June 1). Definitely a side effect. And fog brain at times. Headache starts a couple of hours after taking the med. Rest, cold rag and Tylenol or ibuprofen helps. Feel better.

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My headaches are not as bad as they were .I use to have them everyday, but i notice there not as frequent

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I have been on Prednisone for 3 years. I have experienced headaches of all kinds- ocular migraines, ice pick migraines, etc. I never had these headaches before going on the Prednisone.

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@janielou56

Me too with low grade headaches and/or/whooshing/ringing. Am stuck in my tapering down from 20 MG prednisone plus LDN to a divided dose (10+2.5) of 12 MG Yesterday I went for a consultation with a good surgeon to set up a date for a Temporal Lobe biopsy to find out if I might have GCA.
He said that since I have been on prednisone since February the biopsy may come back with a false negative. He will be referring me to an Ophthalmologist.
I still don't know if it's the prednisone or the pmr or something else giving me the headaches and ringing in my ears.

All in all I'm still managing my original flare up since being diagnosed February 2023. This is quite a journey we're all on and I'm always grateful when I get good advice from a doctor who seems to know about PMR and is not driven by the profit motive. Also am grateful for this group. ✔️

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I have mild headaches and a similar whooshing sound in my ears. The ear issues started shortly before my formal PMR diagnosis. In fact my doctor referred me to an audiologist who said I had Tinnitus. The ear problems have not gotten better or worse since starting on prednisone

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