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SIBO…did it ever go away?

Posted by Kendra @kendra75, May 13, 2025

Hi everyone. Very long story short I recently came back from the Mayo pain rehabilitation program for chronic pain from IBS for the last few years. My question is: while going to many doctors for a diagnosis I did test positive for SIBO. The doctor didn’t think it was the cause of my symptoms however we wanted to treat it of course. I did two rounds of the antibiotic that they often give for SIBO. I was never retested and I never felt any different after the antibiotic. Is it possible that it never went away and could be contributing to my IBS symptoms? Thanks so much for your help! I know you’re not all doctors but would love opinions. Thanks.

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earle | @earle | 8 hours ago
In reply to @h8bigbiz "@ggr I wish I could be tested (and treated for if I have it) for Mast..." + (show)
Profile picture for h8bigbiz @h8bigbiz

@ggr I wish I could be tested (and treated for if I have it) for Mast Cell Activation. The nearest medical practice that knows anything about it is a 4-hour drive away. And I don't drive anymore anyway. So no luck there. I wish we could get someone here who knew about it but our trend here is losing medical professionals, not getting more. And even if we do ever get someone like that here, I'll probably be dead by that time anyway.

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@h8bigbiz My wife and I both have it and alpha gal. The two seem to go together. They don't do much except avoid the triggers, which we are aware of. The medical community is slowly becoming aware of it. To our surprise, they were totally ignorant of alpha gal down at MDA, although they treat with drugs ending in "mab" all the time...*

A lady dying of a monoclonal antibody drug who had alpha gal was how the disorder was discovered...

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dt61 | @dt61 | 1 hour ago
In reply to @h8bigbiz "@ggr I wish I could be tested (and treated for if I have it) for Mast..." + (show)
Profile picture for h8bigbiz @h8bigbiz

@ggr I wish I could be tested (and treated for if I have it) for Mast Cell Activation. The nearest medical practice that knows anything about it is a 4-hour drive away. And I don't drive anymore anyway. So no luck there. I wish we could get someone here who knew about it but our trend here is losing medical professionals, not getting more. And even if we do ever get someone like that here, I'll probably be dead by that time anyway.

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@h8bigbiz I am in the mind set that I just don't care anymore. It's become a bad joke since the list of my issues seems to grow now I just laugh. These are just on the digestive side and there are some others things so - now I laugh at it all.
I have never added anything by worrying over it. Simply manage is really all there is.

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