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Showering with Sjogren’s

Posted by mamadaniel69 @mamadaniel69, Sep 10, 2023

I wonder if anyone had input on how often to shower with Sjogren’s. I know that dry skin often leads some to shower less, and I have found I itch more when I shower every day. So, how does one deal with that?

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celia16 | @celia16 | Jan 2 11:20am

This is very interesting. So, from what I’m reading, I would be one of the only Sjogrens patients whose only symptom is dry eye.

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Laurie J Van Roekel | @laurievr | Feb 13 11:44am
In reply to @mtnyankee "I don't produce tears either especially when crying. I feel it makes crying harder. It makes..." + (show)
@mtnyankee

I don't produce tears either especially when crying. I feel it makes crying harder. It makes me sad that people think I am unemotional. I have been like this since childhood.

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I cannot cry, either and I have very dry eyes. My mouth gets dry, too, but have not been diagnosed with Sjogren’s Syndrome. My neurologist believes I have Myasthenia Gravis. I am in the process of getting an appointment with the Maya Clinic.

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sandra1983 | @sandra1983 | Feb 14 4:04am

Lots and lots of moisturizer!❤️

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sandra1983 | @sandra1983 | Feb 14 9:05am

I use a natural soap from India and shower twice a week. After I don't towel dry, I directly apply baby lotion to my whole body. Less itching and skin does not look or feel dry. Hope this helps. But I do think the environment, and what you do for work would influence this. I am retired and home.

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