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Waldenstrom's: Should I take the new medication (rituximab)?

Posted by zeedee1 @zeedee1, Nov 19, 2024

Diagnosed 6 months ago after losing 25 lbs. down to 100 at 5’6”. IGN almost 2000. Extreme fatigue. Went in prednisone and Imbruvica. I’m went down to 569 but going up fast again. Doc wants to start Rituxan infusions. Thoughts?

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Lori, Volunteer Mentor | @loribmt | 6 days ago
In reply to @zeedee1 "Since I need 6 more treatments do side effects get worse also?" + (show)
@zeedee1

Since I need 6 more treatments do side effects get worse also?

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I guess only time will tell how you’ll react to more treatments. You may find your symtoms settle down. Rituximab is a strong anti-inflammatory drug and it can help to maintain long term disease control. In my case, with 4 treatments I really didn’t have any side effects except to take care of the symptoms for the inflammation on my spinal cord at the time. It worked and there’s been no relapse after 5 years.
How were your lab results?

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zeedee1 | @zeedee1 | 6 days ago

IGMs were down to 1100 . Absolute monocytes up to 1460. Slight anemia and low platelets.All phos and mpv low…. Potassium low. Pretty much all I remember.

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