short of breath, lose voice, massive fatigue and skin rash/photosen
Hi, I just arrived for my first Mayo visit. I am a 50 year old woman and have been sick for about 1 1/2 year, but it really exploded a year ago. So many recurring chest and sinus infections and really tired 6 months prior to 12/17. End of 12/17 massive decline, could not breath, so short of breath could hardly find the air to talk. Completely fatigued. Fast forward to today, many tests later and many meds, they put me on asthma meds but I don't have asthma (passed methacholine challenge), don't have reflux, do have mild sleep apnea-on machine no difference in symptoms, heart is clear, no tumors on lungs, no obvious lupus. no lymes or other infectious diseases. Massive steroids throughout the year and still short of breath all the time, fatigued, rashes randomly on chest and face with or without exercise, and ache from head to toe. Immunoglobin G levels are low, and bloodwork shows inflammation throughout my body but no idea what is causing it. Overweight, lost 35 pounds in last 6 months (still need to lose more) but no improvement in symptoms at all. So frustrated, quality of life completely suffering. Navigating working full time, but by the time work is done, there is no energy left over. Any idea, anyone have a similar story?