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Does anyone have short bowel syndrome?
5 years ago I had a small intestines blockage and had to have all but 2 feet of my small intestines removed. I was on TPN and a feeding tube for a couple years years now I am eat food. I am able to eat most foods except raw vegetables and high fiber foods.
Over two years ago I started having constant abdominal spasms and constant nausea, doctors don't know what is causing it. The spasms feels like someone is twisting my insides and some pressure. Nausea medications don't help with the nausea.
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I have SBS from a cecal volvulous, post OP 4 years now. I make my own oral rehydration solution, similar to Pedialyte, which is what my doctors recommended I drink for life. It is 2 Tbsp sugar, 3/4 tsp salt dissolved in 32 ounces of water. I add 1 packet of True Lemon to improve the taste. Hope this helps!
I have short bowel syndrome when 4 years ago they had to remove all of my large colon & have outside stoma bag. I have to empty about every hour, so know where bathrooms are everywhere I go. Taking Creon now, which has helped slow things a little. Can’t eat many vegetables or fruit for fear of blockage. I get infusions of potassium, magnesium & saline twice a week since I can’t absorb my electrolytes very well. Still go to lunch w friends, plays & concerts. Just have to know where bathrooms are.
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1 ReactionOur situation is quite different, then. I am missing almost 5 ft. of my ilium and a small portion of my ascending colon. I can see why you're having such issues with your anatomy. Same for me, bathroom time can be extensive before I feel better and timing is everything, so try to time things right so I can be h ok me when need be!
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