Shingles and Postherpetic Neuralgia and Pain

Posted by tikigod18 @tikigod18, Jan 13, 2019

Has anyone suffered from LONG lasting neuropathic pain as a result of Shingles, and what treatment do you use for the pain? My daughter had shingles at 21, a spinal cord stimulator inserted and removed, many trigger point injections, all of which may have contributed to the thoracic pain she has. She is now 34, and teaches yoga, but is still on a compound prescribed by a pain management Dr. in NYC what is basically Oxy. I am paying for this, since neither she nor her husband can afford it at around $500 a month. She could not find a physician in Fl. I know who would prescribe this medication after 10 years, thus the use of an out of state physician. I do not want to see her suffer, nor can I discuss much with her since we barely speak, but this expense, coupled with paying for asthma inhalers that are expensive is becoming more and more of a strain. Any thoughts for alternatives are appreciated.

@patsy0315

I will take any and all advise at this point. my mom is suffering and I believe this is what she is suffering she had shingles for quite a while back and arm and she had no idea she had them , attributed it to her arthritis , was not until pain was unbearable that she called her life alert and admitted into hospital. she came home and has been in pain since then. We tried to get her to doctor but with the pain meds and other medications she was sent home with she throws up all the time. Its sad .. I decided to google to find out what could be going wrong and found she possbily has PHN. would like to take her to mayo clinic to get her some help but have no idea what doctor to ask for .. any suggestions please…

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Hi, @patsy0315 – postherpetic neuralgia is certainly painful. I had it after a case of shingles a number of years back. My shingles was diagnosed by my primary care provider, and then the treatment for postherpetic neuralgia was also administered by her. I was prescribed gabapentin, which I took for about 7 weeks or so and then my doctor suggested I trial off the med. At that point, my pain had stopped, thankfully.

I moved your post here so that you can connect with others in this thread talking about postherpetic neuralgia. If you click VIEW & REPLY in your email notification, it will take you to the Connect site where you can look at other posts in this discussion.

@tikigod18 @hopeful33250 @hosta @cdcc @gmaw4 also may have some input for you as you try and help your mom with her pain you suspect is postherpetic neuralgia.

Was your mom also given gabapentin, or another medication? Are you saying that at this point, a car ride to the doctor is not doable due to continual propensity to vomit?

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Thank u everyone !! I am reading all the post and what everyone else has gone thru as well … I just arrived at my moms so sorry for late response … yes she was given a script for gabupentin 100mg 1-2 tablets at bedtime … which she has not been consistent with as they where making here sick to her stomach… but she was also taking the tremadol (pain med) and that also makes her sick … she does take a nausea tablet to help with this … after reading the articles I can see how important this gabapentin is … so can I ask how many miligrams did u take each night… I only ask because I am encouraged that u where able to get relief after 7 weeks and we will be seeing her primary care physician tomorrow and I would like to be prepared with all this information to help my mom get some relief from this … she is 88 years old and it’s heart breaking to see her suffer and I can’t help:(

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Oh and yes she was given the viral med at hospital and for home as well which she finished this all took place around February 10th and she is still in pain

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And thank u Lisa for moving my post :)))

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Thank u @tikigod18 she is ok with car ride we just could get past the meds making her sick to get dressed for doctor … tonight just taking 1 gabApentin so morning will be a little easier for the ride to doc tomorrow

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@patsy0315

Thank u @tikigod18 she is ok with car ride we just could get past the meds making her sick to get dressed for doctor … tonight just taking 1 gabApentin so morning will be a little easier for the ride to doc tomorrow

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@patsy0315 – I'll be interested to here what the doctor has to say. Hope all goes well getting her dressed and ready.

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@lisalucier

@patsy0315 – I'll be interested to here what the doctor has to say. Hope all goes well getting her dressed and ready.

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Thank u Lisa 🙂 question was it you that Also took gabupentin? Just curious how many miligrams where u perscribed ?

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@patsy0315

Thank u Lisa 🙂 question was it you that Also took gabupentin? Just curious how many miligrams where u perscribed ?

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Hi, @patsy0315 – I did take gabapentin for my postherpetic neuralgia. Unfortunately, as that was a few years back, I don't happen to remember what my dosage was.

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@lisalucier

Hi, @patsy0315 – I did take gabapentin for my postherpetic neuralgia. Unfortunately, as that was a few years back, I don't happen to remember what my dosage was.

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Ohhhhhh .. well it’s still hopefull that maybe with consistent and daily dosage of the gabupentin it may help my mom…. praying the doctors will have more answers today as well 🙂

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Sorry to hear your daughter is in so much pain. It's a living hell. I have PHN for 8 years, on my second stimulator, taken off all drugs unless needed, 800 mg gabapentin 3x daily ( useless ). On my 8th pain dr ( reside in NYC ). New dr suggest physical therapy, medical marijunana. Will try it and see what happens.

Be careful few doctors in NYC just want money.

I wish your daughter well and your a great dad. God Bless you both

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@jerid

Does anyone here experience Shingles chronic PHN. I just don't know how to handle it anymore. If anyone has a positive answer to rid ones body of this pain, please tell me.

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Hello @jerid

As a newbie to the Shingles diagnosis, I've been really interested in any of the Connect posts about Shingles pain. It certainly is a difficult pain to deal with, isn't it? Regarding chronic PHN after Shingles, I did find an article on the WebMD website that discusses what can be used to treat this. Here is the link, just click on it and read the suggestions. https://www.webmd.com/skin-problems-and-treatments/shingles/understanding-postherpetic-neuralgia-treatment#1

A couple of the meds listed were Gabapentin and Lyrica. Has your doctor suggested either of these or something else to deal with chronic PHN?

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@jerid

Does anyone here experience Shingles chronic PHN. I just don't know how to handle it anymore. If anyone has a positive answer to rid ones body of this pain, please tell me.

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I was on Lyrica for several months immediately following my Shingles and I put on almost 20 pounds and had no energy. I had enough of that. I am a active person and my body loves exercise. I continue to exercise by walking 4 miles a day and during public pool summer days I swim 1 mile a day or 64 laps. The cooling of the water is the best natural pain reliever, but I can't be in a pool 24/7/ LOL I want to end the pain without drugs. I do not like the side effects that I experience from taking most drugs. I did radiofrequency ablation and it lasted for 2 weeks. The nerve must not have been burned enough. I have no idea.
Thank you for your response I will check out the web page you sent.

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