Sharing ways to stop coping and start living!

Posted by kathleenclaire @kathleenclaire, Mar 8 3:03pm

I’ve been doing the PMR dance for a couple of years. (Sometimes it’s a slow waltz, sometimes it’s The Jerk.) I’m currently at 5mg prednisone, tapering 1mg/month.
I figure our diagnosis automatically comes with a side dish of depression/anxiety. I wondered if you’d share what you’re doing to feel like you’re living your life and not just suffering it. Have you added habits, hobbies, crimes (!) that have made your life better?

I’m a writer, and a retired professor. I miss teaching graduate students especially, and PMR has certainly limited my writing time. I’m widowed, so I have lots of quiet. Grief therapy was concurrent with my PMR diagnosis, and it taught me a whole lot about living with pain.

I have a few celluloid victory pins from WWII; they look like little ribbons. When I see one, I think “little victories” and I celebrate being able to pick something up from the floor (even with my “grabber” some days), or getting a good night’s rest, or eating a really healthy meal. I have garden troughs that are waist high. I have a spinning wheel, and love to blend colors and fibers so much that I have begun selling my yarn at a yarn shop. I took up seated Tai Chi. I bought watercolors and make very small paintings for myself. I have a collection of puzzles. I unapologetically talk to my dead. I let myself skip watching the news some days. First thing every morning, I make up a song for my dog. I try and let the worst days pass.

I hate that PMR hits while we’re already trying to figure out how to be old! What do you do to love your life right now?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

Profile picture for marymckeith @marymckeith

@zirbellm Thanks for your post. My experience is similar to yours although I am older. This disease affects you mentally as well as physically as you realize your limitation's. Some days it is very hard to cope. Your post inspired me to try harder.

Jump to this post

@marymckeith older is wiser….patience is a virtue, but not easy at 79 with things todo and places to go, so to speak.
We’ve all go this….!

REPLY

Thank you. Your words inspire me.

REPLY
Profile picture for marymckeith @marymckeith

@zirbellm Thanks for your post. My experience is similar to yours although I am older. This disease affects you mentally as well as physically as you realize your limitation's. Some days it is very hard to cope. Your post inspired me to try harder.

Jump to this post

@marymckeith BIG HUG across the miles. May you find grace in the hard days and joy in the good days!

REPLY

@zirbellm Thanks so much. This is a grace day but trying.

REPLY

Thank you for sharing @kathleenclaire, it sure sounds like you are doing so many wonderful things to bring you joy, good on you 🙂 The things that used to bring me joy and were mostly physical pursuits and I feel like I haven't adjusted well to my more limited lifestyle right now. I just turned 50 this year and I struggle to get out of bed in the morning, shower, put clothes on, etc. etc. so my ego is taking a huge hit for sure. I have a couple of craft projects waiting in the wings, perhaps I will try to start one soon. All the best everyone 🙂

REPLY
Please sign in or register to post a reply.