Severe pain eating 7 weeks post radiation: Any tips?

Posted by ranchroad @ranchroad, Nov 6, 2025

Hi all,

First-time poster here. 40M, stage 1 P16 / HPV+ tonsil cancer. Completed 33 fx, 70 gy proton radiation about 7 weeks ago. No chemo.

Problem is, the treated back corner of my mouth and soft palate are set off into a fury without much provocation - 8-9/10 pain that leaves my nose running and eyes watering - think hot nail being pounded through the mouth. Eruption of clear painful blisters. It all subsides in 12 hours. Things that have set it off include a green smoothie with coconut water and spinach, Boost VHC drink; Orgain protein drink...to name a few.

Anyone else have similar experience? Did it get better? I'm trying to subsist on a diet largely of neutral dairy products, oatmeal, and bland soup. Hardly enough to sustain myself because "real" food is either too hard to eat or the taste disagrees with me to where I can't eat it.

Oncology team where I was treated (a global center for cancer) does not seem to care; it seems that unless I am found to still have cancer then I am effectively on my own to manage this.

Very much appreciate any advice or shared experience!

Tom

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Profile picture for ranchroad @ranchroad

Thought I would leave an update - I’m now 14 weeks post-RT.

For about two week, I haven’t had any painful blisters. A few pop up here and there, but not like they used to, and no pain, which used to be searing. For the last week, I’ve been chowing down on Tex-Mex, chips & queso, popcorn, chicken fried steak, BBQ brisket…you name it. Maybe 50% taste but I’m not complaining. A little irritation from spicy salsa, but nothing bad enough to keep me away. There is hope! I was drinking half & half two weeks ago to keep weight on and I jumped straight to fajitas. Not what I expected but I’ll take it.

And my 12-week PET came back NED. Feeling blessed after a truly awful 4 months.

Merry Christmas!

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@ranchroad
seems like you have a healthy appy.

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