1. < Head & Neck Cancer
Profile picture for mysister

Severe long term side effects from head and neck radiation

Posted by mysister @mysister, Dec 13, 2025

Hi. I am new to this group and desperately trying to find help for my sister. She received radiation for tongue cancer about 9-10 years ago. In the last 4 years or so she has developed debilitating side effects, so bad that she has no quality of life. I’m trying to find help for her. Nothing the doctors or pain clinics have done has helped and she is in very bad shape. She lives in Germany so I can’t be there with her and am trying to research ways to help. Can anyone direct me or give me some advice?

Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.

Profile picture for roblem
roblem | @roblem | Feb 2 1:16pm
In reply to @jubilta77 "@roblem hola @roblem : tengo una fibrosis importante en la boca como consecuencia del tratamiento radioterapeutico..." + (show)
Profile picture for Carmelo48 @jubilta77

@roblem hola @roblem : tengo una fibrosis importante en la boca como consecuencia del tratamiento radioterapeutico por cáncer dé lengua posterior a la cirugía y me gustaría saber sí sabes algo para aminorar el problema o si conoces a alguien que haya practicado con alguna fórmula qué sea positiva para ayudarme en lo posible para aminorar los efectos descritos, él tratamiento lo recibí hace ahora 15 años y cada día ha ido a peor hasta el punto qué hoy apenas puedo hablar, por supuesto qué comer y beber por boca ya imposible pues me han tenido qué poner una sonda gástrica por el vientre directamente al estómago.
Sí sabes algo té agradecería me informes dé ello. Un saludo.

Jump to this post

@jubilta77
Heard good things about red light therapy with complementary speech and swallowing exercises. I need to research more of this.

Rob

REPLY
1 reply
Profile picture for Carmelo48
Carmelo48 | @jubilta77 | Feb 2 5:58pm
In reply to @roblem "@jubilta77 Heard good things about red light therapy with complementary speech and swallowing exercises. I need..." + (show)
Profile picture for roblem @roblem

@jubilta77
Heard good things about red light therapy with complementary speech and swallowing exercises. I need to research more of this.

Rob

Jump to this post

@roblem pues agradezco mucho tú información y té ruego me tengas informado en cuanto sepas algo más.
Un saludo desde España

REPLY
Profile picture for Carmelo48
Carmelo48 | @jubilta77 | Feb 7 12:20pm
In reply to @omaest "@jubilta77 Hello again. I get 1440 ml of Jevity 1,2 in the 4 daily doses. I..." + (show)
Profile picture for omaest @omaest

@jubilta77 Hello again. I get 1440 ml of Jevity 1,2 in the 4 daily doses. I would like to gain some weight but so far my doctor thinks I'm doing okay. I would like to see a dietician to see if they can increase the amount of Jevity I take daily. Thank you for sharing your information.

Jump to this post

@omaest hola dé nuevo, pue tomas más cantidad qué yo y si té encuentras bien es posible que aumentes dé peso pero yo té recomendaría que si que consultes con un dietista o endocrino por si té tienes qué cambiar dé marca dé batidos .
Té deseo una buena vida

REPLY
Profile picture for omaest
omaest | @omaest | Feb 7 3:49pm

Thank you for your advice. I wish you a good life too.

REPLY
View MoreView Less
Please sign in or register to post a reply.