Anyone experienced intense itch with pNETs mets to the liver?

Posted by billbo @billbo, Apr 12 11:38am

Seems like my liver lesions(metastasis from tail of pancreas) are causing severe bouts of itching on my chest, legs, arms. Sometimes all over. Waiting for radioembolization to hopefully deal with it?? Cold showers and creams for now??

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Turkey, Volunteer Mentor | @tomrennie | Jul 9 9:29pm

In reply to @billbo "Yes, Y-90 to treat tumors on the liver." + (show)

@billbo That's awesome. I am excited for you. Some folks here have had very positive results with it. Do you have any concerns about it?

billbo | @billbo | Jul 9 10:20pm

In reply to @billbo "Has anyone experienced intense bouts of overall body itch as result of liver malfunctioning due to..." + (show)

Not really. Have very good oncologist, liver specialist and radiologist all working on it. Thankfully here in Canada all is free.

Turkey, Volunteer Mentor | @tomrennie | Jul 10 11:24am

In reply to @billbo "Not really. Have very good oncologist, liver specialist and radiologist all working on it. Thankfully here..." + (show)

@billbo Free or not, if it works, that is priceless.

billbo | @billbo | Jul 10 1:22pm

In reply to @billbo "Has anyone experienced intense bouts of overall body itch as result of liver malfunctioning due to..." + (show)

True but keeps the stress levels low!

mmar2025 | @mmar2025 | Jul 11 6:31am

In reply to @billbo "Has anyone experienced intense bouts of overall body itch as result of liver malfunctioning due to..." + (show)

I do have pancreatic nets that metasticized to the liver. When I first got lanreotide (hormone) injections, I had intense itching mostly on my scalp. I don't know if you are on any type of hormone shot, but that might be the culprit. Every time I get an injection it seems as if I get a different odd reaction. They reactions all seem to calm down eventually. I wish you the best.