Severe Bloating and Distention

Posted by htocco @htocco, Feb 18, 2019

Hello,
I have chronic bloating and distention of the abdomen and am very uncomfortable all of the time. I have had a colonoscopy and endoscopy (both negative), have tried a low FODMAP diet for several weeks, with no change. I do take probiotics as well a ginger root and peppermint. I rarely have cramping, except after a bowel movement. After a BM, the distention is more severe for the entire day. My GI doctor is at a lost as to what to do now. It seems much of the GI field is mysterious, and, unfortunately there are no answers for many conditions, including this. Is there anyone out there with similar symptoms? Does anyone have any suggestions for me?
Thank you!
Helen

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@beanglow

I did meet with 6 doctors on the team today and they want to start a medication that will increase the modality of my intestines. If it seems to be working I might be able to leave the hospital tomorrow. If it doesn't work then they will be considering a feeding tube procedure or infused nutrition. I'm hoping the medication works. Thanks for your support and encouragement. I also met with a nutritionist and a dietician who made suggestions about supplements and eating small portions more frequently during the day.

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Do you mean “motility” of intestines?

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@faithful55

Hi Helen,
I am sorry to hear that you are experiencing these issues. I do experience the same but mine is due to my Nissen Fundoplication (wrap) for Gerd. Because of my wrap, I do get a lot of bloating and distention. What I have done to alleviate some of the discomfort is to remove gaseous foods from my diet and high sugar content like in sweets. I had a food allergy test that did reveal some foods that were adding to my problem so I removed them. I did some research on the web for herbal remedies that remove gas. I found that DGL (Deglycyrrhizinated Licorice) helps to remove gas. I began taking it and it has reduced the gases in my colon and bloating in my stomach. For my situation, I don't believe that Gerd was my main issue, but at that time in the 90's it was the remedy for anything that looked like Gerd. I am getting my wrap reversed next week and pray that this is the end of the road for this problem. May the Lord bless you and give you guidance. Have a blessed day.

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Wow! Finally someone who has the same issues! I had my hiatal hernia surgery with Nissen Funoplication in July. A third of my stomach was in my chest. While those symptoms disappeared, I am now so constipated.Miralax wasn't working. Dr, prescribed Lactulose. Even at 4x a day, it isn't working. I git horribly bloated and so gaseous, my hubby won't sit in the same room. I am taking ducolax about 2x a week to clean out my bowels. How did you get your dr. to agree to reverse the Nissen Fundoplication? Does insurance pay for it?

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@claytamos

I tried everything including the acupuncture and bentonite clay. Acupuncture only made me tired the day I had done. The bentonite clay did nothing except taste disgusting. Everything I had going on, the acid reflux with acid reflux, delayed gastric emptying, gas, bloating, I also had Chilaiditi Syndrome which is a long story. I didn't have the gas and bloating until I had the Nissen fundoplication surgery 2 years ago. I tried every medication, prescription and supplements and nothing helped much. With the gas and bloating the best that helped me was Pepto but it was minimal help but it will constipate you. I had to have surgery for any quality of life. I researched a ton of surgeons, narrowed it down to 3 and went and saw them. I ended up going with the surgeon with 30 years experience and communicated well with what should be done and why. I'm 6 weeks out and everyday I'm feeling better. I already feel better than I did before the surgery. I hope it continues. I hope you start feeling better. I wish you the best.

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Has the surgery helped with the constipation, bloating and gas? My surgeon did not tell me about any of these potential post surgery problems.

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@lelia

Glad for the progress. A team of 6 doctors, wow! What is modality of the intestines? I'm not familiar with that. Anyway, they told me to eat smaller amounts more frequently too, and it helps. I eat something about every 3 hours (except while sleeping, of course). Keep on truckin'. Lelia

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Thanks, Lelia, I ended up having an allergic reaction to the medication and had to stop it. The bloating and distention and constipation are now back. Waiting to hear from the team at St. Mary's as to what happens now. I thought the medication was the answer but I guess not. They said that my intestines were not moving fast enough and the medication would help with that. I was able to eat real food for 1 day but not today. They decided against a feeding tube and said Medicare would not cover nutritional infusion. I'm trying to stay positive but I'm having a hard time today. Elaine

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@jackiem95

Do you mean “motility” of intestines?

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Yes that is what I meant to say. Thanks

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@iowaellen27

Has the surgery helped with the constipation, bloating and gas? My surgeon did not tell me about any of these potential post surgery problems.

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Hello, the surgeon that did my Nissen fundoplication surgery promised he could help me. It help for a month and then all hell broke loose. I had the gas, bloating, lower abdominal pain, a cycle of constipation and diarrhea. I didn't just have lower bloating but also up high. About 6 months after surgery I had bad acid reflux again. Before the surgery I asked if it didn't work if it could be undone. I was told sure can. After all the side effects and going back to see him several times he said he wouldn't undo but he wanted to do more surgery. At this point I researched and found another doctor. I had my new surgery a little over a month ago and happy to say no bloating, just a little gas but the gas is more food based. Oh, and he undone the Nissen. I can't eat much over a cup of food at a time so I eat little things 5-6 times a day. The doctor says as time goes on, in about a year or 2 I'll start to eat more regular meals because my stomach will stretch. I haven't felt this good in so long. I still have healing pains in the muscle but that's it. The first surgery I went with another doctor's referral. The second time I did a ton of my own research and went with who felt was best for me. Let me know if you have any other questions. Good luck to you.

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@iowaellen27

Wow! Finally someone who has the same issues! I had my hiatal hernia surgery with Nissen Funoplication in July. A third of my stomach was in my chest. While those symptoms disappeared, I am now so constipated.Miralax wasn't working. Dr, prescribed Lactulose. Even at 4x a day, it isn't working. I git horribly bloated and so gaseous, my hubby won't sit in the same room. I am taking ducolax about 2x a week to clean out my bowels. How did you get your dr. to agree to reverse the Nissen Fundoplication? Does insurance pay for it?

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I hope you don't mind that I also reply. I went through much of the same as you. Some of my side effects was due to, they think, hitting the vagus nerve. The doctor that did my Nissen refused to undo it unless I let him do other surgery. I didn't agree with his approach on what to do. I went to this surgeon because I had trust in the doctor that referred me. I did a lot of my own research and found a different doctor. After some more testing it was determined that the Nissen wasn't right for my situation. The new doctor undone the Nissen and fixed me right. I'm a little over a month after this surgery and I haven't felt this good in a long time.

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@claytamos

I hope you don't mind that I also reply. I went through much of the same as you. Some of my side effects was due to, they think, hitting the vagus nerve. The doctor that did my Nissen refused to undo it unless I let him do other surgery. I didn't agree with his approach on what to do. I went to this surgeon because I had trust in the doctor that referred me. I did a lot of my own research and found a different doctor. After some more testing it was determined that the Nissen wasn't right for my situation. The new doctor undone the Nissen and fixed me right. I'm a little over a month after this surgery and I haven't felt this good in a long time.

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Thank you so much!! I think that is what has happened to me. We've been blaming it on 3 meds I have to take that all cause constipation. I will not go back to the original surgeon as the hospital he is affiliated with was horrendous. Thank you again

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@beanglow

Thanks, Lelia, I ended up having an allergic reaction to the medication and had to stop it. The bloating and distention and constipation are now back. Waiting to hear from the team at St. Mary's as to what happens now. I thought the medication was the answer but I guess not. They said that my intestines were not moving fast enough and the medication would help with that. I was able to eat real food for 1 day but not today. They decided against a feeding tube and said Medicare would not cover nutritional infusion. I'm trying to stay positive but I'm having a hard time today. Elaine

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Hang in there. They'll come up with something. Have you tried Philips Milk of Magnesia for the constipation? I use that probably 3 times per week. Constipation can cause bloating and distention, especially if you are eating something you can't digest like fructose or lactose.

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Oh, I definitely have bloating, distention and gas. Will ash dr, about Milk of Magnesium. Tried lactaid and lactose free milk-made no difference. Will call GI dr again tmw

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@claytamos

I hope you don't mind that I also reply. I went through much of the same as you. Some of my side effects was due to, they think, hitting the vagus nerve. The doctor that did my Nissen refused to undo it unless I let him do other surgery. I didn't agree with his approach on what to do. I went to this surgeon because I had trust in the doctor that referred me. I did a lot of my own research and found a different doctor. After some more testing it was determined that the Nissen wasn't right for my situation. The new doctor undone the Nissen and fixed me right. I'm a little over a month after this surgery and I haven't felt this good in a long time.

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@claytamos I am not generally involved in this topic but I just wanted to comment on how glad I am that you found a doctor who was able to help you more than your previous doctor had. I have found with some doctors and dentists that they tend to recommend other doctors/dentists that they personally like but actually have little medical information about them. My PCP was recommended by a doctor whom I respect greatly but I really do not think he's as nearly as good as the other doctor thinks he is.
JK

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I agree. My PCP referred me to an ENT to check my esophagus to see what was going on with my acid reflux. When I say the ENT he looked down my throat with a mirror and once he saw the inflammation and redness he referred me to the first surgeon I saw. He said he was the best for what I needed. Like you said they personally like them or they know someone that is their best friend and they refer. I guess the lesson is do your own research and don't rely strictly on your doctor's referrals.

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@lelia

Hang in there. They'll come up with something. Have you tried Philips Milk of Magnesia for the constipation? I use that probably 3 times per week. Constipation can cause bloating and distention, especially if you are eating something you can't digest like fructose or lactose.

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I did try Milk of Magnesia but it caused diarrhea but maybe I'll try it again. My PC gave me Generlac in the past and that works very gently and I asked the doctor here about it but have not heard back from her as yet. I've also tried the tea Smooth Moves but it did not work that well. The bloating and distention has improved somewhat. I've been able to get out of the hotel for short trips to stores but always have to check out bathrooms in case of unexpected diarrhea. I'm trying to stay positive but waiting to hear back from the doctors and for the next tests on the 13th and appointments on the 13th and 15th are causing a lot of anxiety. Thanks for your support though. I appreciate it. Elaine

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I've got an appt with my GI doctor on 5/21. I don't ever have diarrhea, just constant constipation. Even the prescribed Lactulose doesn't work. Drank over 80 oz of water yesterday, walked, ate veggies. I blame it on the Nissen fundulation they did with the hiatal hernia surgery. I want a reversal

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I'm sorry to hear about your problems after your Nissen. I had a lot of problems after mine as well. They probably won't do a reversal unless they have another plan to control your acid reflux. If the surgeon that did your Nissen doesn't want to do anything or you don't like the options given look else where. I didn't like the options the surgeon that did my Nissen so I did a lot of research, went and saw 3 other surgeons before I decided on who to go with. I researched doctors that did both the Nissen Fundoplication and the Linx Procedure. I wanted someone that gave more than one option. Come to find out after just a few test they couldn't tighten the Nissen (sometimes they loosen) and they couldn't do the Linx because my esophagus wasn't strong enough to push food through. The test result also showed that I had delayed gastric emptying. I had a lot going on. The doctor I went with suggested a partial gastrectomy (80% removed) and a Roux-En-Y Procedure. I'm happy with my decision. I'm 6 weeks out and no constipation, no reflux, no gas, and no bloating. I hope it continues. For your diarrhea have you taken Miralax, Phillips Milk of Magnesia, and Colace? I'd start with those and see how it goes. Research what veggies you are eating. Some will constipate you. Let me know if you have any questions and good luck to you.

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