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sepsissister
@sepsissister

Posts: 1
Joined: Dec 12, 2011

Sepsis

Posted by @sepsissister, Dec 12, 2011

Is anyone out there living with sepsis? My sister was admitted to the hospital on Nov. 1st with severe abdominal pain. Test found that she had a mass blocking her intestines. I will try to keep this short…she had surgery to remove part of her colon and large & small intestine and the tumor that originated in her appendix, (appendiceal cancer is rare) things were fine for a few days, until the sutures in the intestines let loose, the resulting bile leaking into the stomach cavity caused her to be septic. A colostomy was performed, and she survived the septic shock. She is now home, and trying to recover from the sepsis. She is very frustrated by the lack of strength and energy that she is experiencing. We know so little about this. We do know that it is extremely serious. Is there anyone out there who can share there experience with sepsis?

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Bax
@tbaxter33

Posts: 2
Joined: Aug 02, 2017
Posted by @tbaxter33, Wed, Aug 2 11:47am

About 10 years ago, I had an onset of fever due to an infection in my foot (I was 50 y/o). Within a few hours, I was in full septic shock. Spent about a week in ICU then a week in regular room before going home. Had “cardiac event” due to low blood profusion, kidneys stopped working, etc. Had several dialysis sessions. Wife was being told to prepare for the worse for several days. I stayed home a week after release from the hospital, then went back to work. I can tell you that I am not the same person today. I tire so easily it is nuts — and so frustrating. I have talked to doctors about this and have been “blown off” 100% of the time. I do not think they believe me when I tell them how badly I am feeling. I continue to drag myself in to work every day. I used to get to the office about 6:00 AM and work until 6:30 or 7:00 PM. Now, it is all I can do to get in by 8:00 AM and I am out as soon as possible — totally wiped out — at the end of the day. I have no stamina at all. The reduction of activity has contributed to weight gain, which I hate. I do not mean to be discouraging. Your sister will feel better, but I suspect she will never feel as good as before. Remember, I have not found one single member of the medical community who will talk about this. I continually get “lose weight and exercise” as the answer. I know I need to do both those things, but they do not seem to understand that I am totally wiped out when I am not at work. Perhaps your sister’s journey will be brighter. I would love to know if others have had similar experiences, or if I am an exception.

Posted by @JustinMcClanahan, Wed, Aug 2 5:55pm

Hello @tbaxter33. Thank you for sharing your story. It sounds quite frustrating, and reminds me of some of the posts I have read in another discussion. I think it may be worthwhile to check another discussion regarding post ICU syndrome, where another member talked about her experience with sepsis. You can find that here, https://connect.mayoclinic.org/discussion/post-intensive-care-syndrome-pics-lets-talk/.

@tbaxter33, you mention that you have not been able get a medical professional to listen to your concerns, have you thought about a second opinion, or have you already sought that out?

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