1. < Autism (ASD)

Adults On The Autism Spectrum

Posted by Mamacita, Alumna Mentor @mamacita, Apr 29, 2018

Maybe you were really shy as a child. Perhaps you took home a huge stack of books from the school library, read them, and returned them the next day. Or did your best friend find you crying in your closet, unable to answer the question "Why?" At any rate, your life could be traced to the Self-Help section of the local bookstore. Unfortunately, most of the books were not much help. ADHD seemed to fit, at times. Your shrink said you might be Bi-Polar, although she wasn't really certain. All you knew was that you rarely fit in, anywhere. One day at work, it hit you square in the face: I don't speak these people's language! Really, it was like you were all playing this game, and everyone knew the rules but you. You couldn't tell a joke, and you never "got" any joke your co-worker tried to tell you. People started getting annoyed with you, because you had a memory like a steel trap. They didn't appreciate it when you called them on the carpet. Who knew? This was my life, and worse. I finally aced several tests that pointed me to the answer to my questions. The Autism Spectrum. Guess what? Little kids with Autism grow up to be Adults with Autism. Diagnosed late in life? This is the place for you!

Interested in more discussions like this? Go to the Autism (ASD) Support Group.

Mamacita, Alumna Mentor | @mamacita | Aug 1, 2018
In reply to @johnbishop "@mamacita and @hopeful33250 is one of these articles the one you are looking for? A Review..." + (show)
@johnbishop

@mamacita and @hopeful33250 is one of these articles the one you are looking for?

A Review of Self-Help Skills for People with Autism: A Systematic Teaching Approach, by Stephen R. Anderson, Amy L. Jablonski, Marcus L. Thomeer, and Vicki Madaus Knapp
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2854062/

Autism Study Associates Self-Care Skills with Success in Adulthood
-- https://www.autismspeaks.org/science/science-news/autism-study-associates-self-care-skills-success-adulthood

John

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@johnbishop , this isn't it, but it looks really good. Thanks for your research !

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Mamacita, Alumna Mentor | @mamacita | Aug 5, 2018

@johnbishop, Have you ever heard of the term that refers to when an Autie is totally innervated, still, and cannot manage to do a thing? It's not catatonic or coma. The name escapes me. I saw it recently in one of my groups. Guess I will have to go back to those groups and pursue it further. Or, if anyone on here has a clue, please pass it on. I would like for us to address it for a bit. This is something that has to be dealt with on a fairly regular basis. I would appreciate any comments of a respectful nature. I will start by saying that for me, large blocks of unstructured time are ripe for emotional disaster. And guess what today is? Sunday! I have only two or three things at the most that HAVE to be done. So, this morning, I was the poster child for whatever the word is. I sat there on the sofa, waiting for the dark cloud to lift. It didn't. But my husband, God bless him, made a comment about my finishing a project I started. .....a while ago. Well, that made me mad. Doesn't he know how I feel? No, actually, he doesn't. And I'm not going to tell him, either. Not until I figure this out. I did get up off the sofa and worked a lot on several projects. I do feel better. The sun is shining again.

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2 replies
Mentor
John, Volunteer Mentor | @johnbishop | Aug 5, 2018

Hi @mamacita, I'm sorry I'm not familiar with a term that could be used to describe when someone is totally innervated. I can relate to unstructured time through my adult son who lives with us. He is always willing to help me with something around the house or yard as long as I let him know ahead of time so that he can plan for it. He does like his time structured. I did some searching for different terms used with autism but I'm guessing this is more of a term or phrase used by people with autism versus a term describing something about autism? I did find an interesting website with a Glossary of Terms on AutismSpeaks.org.

-- https://www.autismspeaks.org/what-autism/video-glossary/glossary-terms

John

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1 reply
Mamacita, Alumna Mentor | @mamacita | Aug 5, 2018
In reply to @johnbishop "Hi @mamacita, I'm sorry I'm not familiar with a term that could be used to describe..." + (show)
@johnbishop

Hi @mamacita, I'm sorry I'm not familiar with a term that could be used to describe when someone is totally innervated. I can relate to unstructured time through my adult son who lives with us. He is always willing to help me with something around the house or yard as long as I let him know ahead of time so that he can plan for it. He does like his time structured. I did some searching for different terms used with autism but I'm guessing this is more of a term or phrase used by people with autism versus a term describing something about autism? I did find an interesting website with a Glossary of Terms on AutismSpeaks.org.

-- https://www.autismspeaks.org/what-autism/video-glossary/glossary-terms

John

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Thanks, John. I appreciate your help. I will get back on here later when I have asked my groups about the term.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 5, 2018

@mamacita and @johnbishop I googled the terms of innervation and autism and it took me to a list of books regarding Autism. I've listed them below. I'm not sure I completely understand this but it appears to be a neuromuscular problem (?) What do you think?

Secrets to Success for Professionals in the Autism Field: An ...

https://books.google.com/books?isbn=1849053707
Gunilla Gerland - 2012 - ‎Preview - ‎More editions
An Insider's Guide to Understanding the Autism Spectrum, the Environment and Your Role Gunilla Gerland ... and the feeling of fullness are not quite part of perception, but are controlled by such things as hormones and innervation. ... feeling totally lost in the dark, not being able to feel where or how their body is positioned.
Autism Spectrum Disorders - Page 904

https://books.google.com/books?isbn=0195371828
David Amaral, ‎Geraldine Dawson, ‎Daniel Geschwind - 2011 - ‎Preview - ‎More editions
Differential requirement for MuSK and dystroglycan in generating patterns of neuromuscular innervation. Proceedings of the ... Totally tubular: the mystery behind function and origin of the brain ventricular system. Bioessays, 31, 446–458.
Body by Darwin: How Evolution Shapes Our Health and Transforms Medicine

https://books.google.com/books?isbn=022605991X
Jeremy Taylor - 2015 - ‎Preview - ‎More editions
In fact, as Jeremy Taylor shows in Body by Darwin, we can trace the roots of many medical conditions through our evolutionary history, revealing what has made us susceptible to certain illnesses and ailments over time and how we can use ...
The Neurology of Autism

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Mamacita, Alumna Mentor | @mamacita | Aug 5, 2018

@hopeful33250 , Wow. This is great information. I know what this girl is going to be studying tomorrow. I had no idea. Inertia. Going to look that up and see what I can find. I just know that I sometimes need a boost to get started or a break in order to keep going. It's as if my brain is visualizing all the steps needed to perform any given task. And there are so many! Lots of people on the Spectrum find it difficult to perform mundane, routine tasks. It's like, "I've done this already, once before. I get it. So why do I have to do it again?" Masking requires tons of energy. When I return home from a group, I am exhausted. I might sleep for four hours. Wake up, stay up, for several hours, then go to sleep. Wake up exhausted. Thank you for your resesrch!

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 5, 2018

@mamacita

I'm not sure I understand it, but if it rings a bell for you, that is great! I'm glad I could help.

Teresa

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2 replies
sirgalahad | @sirgalahad | Aug 5, 2018
In reply to @hopeful33250 "@mamacita I'm not sure I understand it, but if it rings a bell for you, that..." + (show)
@hopeful33250

@mamacita

I'm not sure I understand it, but if it rings a bell for you, that is great! I'm glad I could help.

Teresa

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its executive functions and we like doing routine stuff and get thrown by immediate changes or demands

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sirgalahad | @sirgalahad | Aug 5, 2018
In reply to @mamacita "@johnbishop, Have you ever heard of the term that refers to when an Autie is totally..." + (show)
@mamacita

@johnbishop, Have you ever heard of the term that refers to when an Autie is totally innervated, still, and cannot manage to do a thing? It's not catatonic or coma. The name escapes me. I saw it recently in one of my groups. Guess I will have to go back to those groups and pursue it further. Or, if anyone on here has a clue, please pass it on. I would like for us to address it for a bit. This is something that has to be dealt with on a fairly regular basis. I would appreciate any comments of a respectful nature. I will start by saying that for me, large blocks of unstructured time are ripe for emotional disaster. And guess what today is? Sunday! I have only two or three things at the most that HAVE to be done. So, this morning, I was the poster child for whatever the word is. I sat there on the sofa, waiting for the dark cloud to lift. It didn't. But my husband, God bless him, made a comment about my finishing a project I started. .....a while ago. Well, that made me mad. Doesn't he know how I feel? No, actually, he doesn't. And I'm not going to tell him, either. Not until I figure this out. I did get up off the sofa and worked a lot on several projects. I do feel better. The sun is shining again.

Jump to this post

loss of executive functioning cannot make a descion or is stuck

REPLY
Mamacita, Alumna Mentor | @mamacita | Aug 5, 2018
In reply to @mamacita "@johnbishop, Have you ever heard of the term that refers to when an Autie is totally..." + (show)
@mamacita

@johnbishop, Have you ever heard of the term that refers to when an Autie is totally innervated, still, and cannot manage to do a thing? It's not catatonic or coma. The name escapes me. I saw it recently in one of my groups. Guess I will have to go back to those groups and pursue it further. Or, if anyone on here has a clue, please pass it on. I would like for us to address it for a bit. This is something that has to be dealt with on a fairly regular basis. I would appreciate any comments of a respectful nature. I will start by saying that for me, large blocks of unstructured time are ripe for emotional disaster. And guess what today is? Sunday! I have only two or three things at the most that HAVE to be done. So, this morning, I was the poster child for whatever the word is. I sat there on the sofa, waiting for the dark cloud to lift. It didn't. But my husband, God bless him, made a comment about my finishing a project I started. .....a while ago. Well, that made me mad. Doesn't he know how I feel? No, actually, he doesn't. And I'm not going to tell him, either. Not until I figure this out. I did get up off the sofa and worked a lot on several projects. I do feel better. The sun is shining again.

Jump to this post

@sirgalahad , exactly! Feeling stuck. Immobile.

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