Anyone had a seizure after severe headache, ending with extreme cold?

Hi @tonyde
I can not remember having a seizure after a severe headache, but I have had headaches after a seizure as well as the sensation of extreme cold and some fever. According to my doctor, this is something normal to happen in the postictal state of a seizure.
After a seizure, various sensory changes can occur. While not everyone will experience cold sensations, it is not uncommon for some to feel unusual temperature changes as part of their recovery.
Chris (@santosha)

Glad you got some helpful input from @santosha, @tonyde. I'd also like to invite @jakedduck1 into this conversation, as he also may be familiar with having a seizure after severe headache, ending with extreme cold. @sgboster123 @pakeemer @felicelinda @dawn_giacabazi also may know something about this and have some thoughts, tonyde.

My daughter's partial seizures often begin with a sharp headache in a specific spot as well as visual distortions and she will sweat during the seizure and then be freezing afterward. This happens more often than not and has been caught on video EEG monitoring and verified to be epileptic seizures. Hers are in the temporal lobe.

@tonyde
I have never had or heard of your symptoms preceding a seizure or the coldness. Does the coldness only last during the postictal phase?
I only had 1 severe headache. Other than that, I never get headaches except the one I had the other day when I crashed my car.

The sense of coldness occurs immediate;y after the seizure and can last a few minutes to an hour. I have little or no memory of what happens during most of my seizures. I was hospitalized during one seizure where I was unconscious for 8 hours. It's embarrassing not knowing what I did for several minutes or worse yet, several hours.

@tonyde
Total recall would be great but we know it isn't going to happen after a generalized seizure. I know it's uncomfortable to not remember before and after the seizures sometimes from minutes to hours to months but its important to try not to be embarrassed. Just part of the seizure activity. I wonder if this is a part of your postictal activity. Are these symptoms something new? What’s your doctor have to say about it not that s/he knows any more about it. I get so tired of doctors preferring to be wrong then too choke out the words “I don't know.” was this seizure by chance triggered by something cold?
Take care,
Jake

I have the same issues of going from extremely warm to the point I am sweating profusely to being freezing cold. My wife says welcome to the world of hot flashes. My Mayo neurologist has done a great job of reminding me to include all of these observations in my seizure logs. It has been a reminder to me to record everything. If nothing else it reminds me to observe my seizures objectively so they can better manage my seizures or pinpoint any other issues going on with my central nervous system. For example, I noticed that I had a few absence seizures at church. I had chalked it up to being in a crowd. It turned out that it might be connected to the volume of the music and the moving visuals used for the lyrics. We'll never know exactly what is going on, but data is power. One thing I'm still learning to do is view my seizures quantifiably (loud music and text overtop of moving images) versus always focusing qualitatively (what I feel). This mindshift has really helped me look at my seizures as just a part of my life NOT as my life.

Hi @dannoyes
It is great that you have been observing yourself so as to understand what can trigger your seizures. A book that has helped me a lot in this sense is Taking Control of Your Seizures: https://www.amazon.com/Taking-Control-Your-Seizures-Treatments/dp/019933501X
Perhaps it might also be useful to you?
Chris @santosha

Keeping a log of the things going on around you when a seizure occurs is a great idea. Thank you for bringing it up.

I've been keeping a log of date, time, severity and what people told me about the seizure with little thought of the actvity around me unless it was something unusual.