Seeking support for recovery from diverticulitis surgery

Posted by suziq52 @suziq52, Nov 8, 2022

I hope I am posting in the right section! I am almost four weeks in recovery from surgery to resection my colon because I have had so many diverticulitis flare ups. My last flare up started in June, 2022 and lasted until my surgery on Oct. 14. I had no choice but to have the surgery because I developed a stricture in my sigmoid colon. The surgery was supposed to be laparoscopic but ended up being open. It was seven hours. I was in the hospital for 11 days. Now home, I am still in some pain although the surgical site is healing well. My bowel function is a mess. Lots of gas too. I am getting no guidance on how to proceed or what to expect. I wonder how others have survived this. I am looking at a longer recovery because of the open surgery. I would love to avoid more problems in the future, and regain my health. I just turned 70. I don’t know anyone who has undergone this surgery and would like to talk to others who have!

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@graciek

I'm very confused. I need Diverticulitis surgery in July. Is it normal to have a colonoscopy the day before your surgery? Any advise would be apricated!! I have meet with two different surgeons and one wants to do a colonoscopy the day before surgery and the other doesn't.

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I had ct colonography (virtual colonoscopy) a few weeks prior to sigmoid colectomy. A stricture in my colon was discovered during a routine colonoscopy several weeks prior to surgeon requesting colonography. Surgeon wanted a 3D look at my colon before the actual surgery. Cannot answer if colonoscopy the day before surgery is normal or not but I presume your surgeon wants a recent updated picture of the diverticulosis/diverticulitis.

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I've had two bowel resections in the past two years from ruptured diverticula. Two open surgeries. The first surgeon did not remove enough bowel. It can take months to get to a new normal. I am currently 2.5 months post surgery. I can have 2-3 BMs a day or 8. One day I will reach a normal 🤞🏻. Sometimes I have diarrhea. Please don't strain yourself or lift over ten pounds for several months. I take generic Benefiber (Costco) every morning in my coffee to stay regular. Don't expect too much too soon.

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@patsz

I've had two bowel resections in the past two years from ruptured diverticula. Two open surgeries. The first surgeon did not remove enough bowel. It can take months to get to a new normal. I am currently 2.5 months post surgery. I can have 2-3 BMs a day or 8. One day I will reach a normal 🤞🏻. Sometimes I have diarrhea. Please don't strain yourself or lift over ten pounds for several months. I take generic Benefiber (Costco) every morning in my coffee to stay regular. Don't expect too much too soon.

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I also take magnesium glycinate capsule every night. I add a morning capsule if I haven't "gone". I've used magnesium citrate capsules too.

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Hi, I haven't gone thru the surgery but am about to. I'm scheduled for April 9 and I'm scared

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@bbarbiee

Suziq52
The way you got to your sigmoid surgery sounds a lot like my story. I am a 67 year old female. I was diagnosed with diverticulosis 12 years ago. After that time I Only had a few diverticulitis flare ups through the years. Fast forward to the middle of February 2022. Ended up in the ER where they kept me for five hours released me with medicine. Six hours later I was back. Admitted to the hospital with diverticulitis flareup. After I was released I was on the good old Cipro and Flagyl every 3 to 4 weeks. Contacted G.I. doctor had colonoscopy at the beginning of April 2022 where it showed that the diverticulitis was resolving itself. Well not really. Continued having issues and barely eating. Finally met with a colon surgeon and at the beginning of June 2022 had all my sigmoid colon removed. I would have to say it was pretty uneventful and not as drastic as what you went through. Robotic laparoscopic and no colostomy bag. Experienced the pain and gas alot the first 4 to 5 weeks after surgery. Started getting depressed because I thought I should feel better and I was experiencing a lot of tiredness. At about six or seven weeks things started getting a lot better and I started getting my energy back. It does get better. You went through a lot so give yourself the time that you need to get better. Since I was on so many antibiotics I ended up testing positive for cdiff while I was in the hospital after my surgery June 2022. My colon surgeon and my G.I. doctor told me to just take probiotics for a couple months but did not specify what type.
Unfortunately I had to have some dental surgery where they put me on amoxicillin at the beginning of October. Well 10 days later I started having a lot of bowel issues and bleeding which led me to the ER again. Due to all my times of going to the ER this year for diverticulitis they diagnosed me with diverticulitis and we’re ready to send me on my way as I was bleeding nonstop in the ER. I pushed it and told them I couldn’t believe I would have that type of diverticulitis flareup after going through surgery in June of this year. After more testing they realized it was cdiff. So I was admitted to the hospital and given iv antibiotics for six days. And released from the hospital with a 10 day supply of Vancomycin and to continue the probiotic of Florastor. Apparently it is very difficult to get rid of Cdiff. I am telling you this just in case you have a problem like I did. Don’t let them dismiss it and tell you that you have a diverticulitis attack. If you were on a lot of antibiotics like I was you could end up having cdiff. I know it’s probably too much information but I wanted to share. Hang in there you will get better.

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Hi I have had two flareups in about nine weeks I'm about to have surgery on my sigmoid colon to fix this and have been on antibiotics constant antibiotics this entire time nobody's mentioned to me

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@lauriecurly

Hi I have had two flareups in about nine weeks I'm about to have surgery on my sigmoid colon to fix this and have been on antibiotics constant antibiotics this entire time nobody's mentioned to me

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Nobody's mentioned diff to me, Sorry that got left out of my comment

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@lauriecurly

Hi, I haven't gone thru the surgery but am about to. I'm scheduled for April 9 and I'm scared

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It's been over a year for me. It was supposed to be robotic and ended up having to open up. I am not regretful at all having the surgery. I wish I would have had it earlier.
So glad I had it done.
What kind of surgery will you have?

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I am a little over 2 months out and doing okay. My surgery was done robotically so I was released in 3 days. I’m still trying to get more regular and still figuring out when to add certain foods back to my diet.
I am not sorry I had it done. Those visits to the ER and then the nasty antibiotics to fight the infections was no way to live.
Good luck to you.

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@lauriecurly

Hi, I haven't gone thru the surgery but am about to. I'm scheduled for April 9 and I'm scared

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I was right where you are a year and a half ago. It is perfectly normal to be nervous. I had a wonderful surgeon and got through it. Knowing I no longer have to go through Diverticulitis attacks is a Godsend! If your doc agrees, use Gas-X for the gas following surgery. It helps tremendously.
Be gentle with yourself--this is major surgery. Get up (with help and when they suggest it) and walk to break up the gas and to help jumpstart your digestive system--anesthesia and pain meds slow it down. It's a process and you'll get through it. People on this forum give very helpful advice. I wish you luck and speedy healing!

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@salliesallie

I had 6 inches of colon removed in 2017...problem with constipation ever since.

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I had two feet of intestine removed in September, 2023.
Still having multiple bowel movements every day. It's limited my activities to a great degree. I have experienced constipation if I have a few days without moving around.
I've tried Metamucil, Organic Psyllium and Benefiber since my surgery to try and regulate my digestive system. I find Benefiber to be the most helpful.

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