My oncologist says a definite NO to the cold socks & gloves. I bought some and now am trying to sell them. I too was concerned about neuropathy. Your oncologist should be willing to reduce the dosage of Oxaliplatin if you begin experiencing neuropathy. Mine reduced my dose by 20% and I have had no lingering neuropathy. I still have tingling up to 4 days after my infusion but you will be susceptible to cold. That is a known side effect of this drug.
I use Boiron Kali Phosphoricum homeopathic pellets for my tingling that you dissolve under your tongue (available on an Amazon of any health food store). It really works & quickly!!!
You should also be taking Vit B Complex daily as this is known to prevent neuropathy. These are what are working for me personally.
@frygirl777 , the big question is did your oncologist explain why he/she said NO so emphatically, or explain any risks?
For all, I don't remember if I addressed it in an earlier post, but some patients experience a phenomenon called "coasting," in which the CIPN continues to get worse for a while even after chemo is reduced or stopped. One paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3480245/
It took several months after stopping my Folfirinox for the neuropathy to resolve completely.
My oncologist says a definite NO to the cold socks & gloves. I bought some and now am trying to sell them. I too was concerned about neuropathy. Your oncologist should be willing to reduce the dosage of Oxaliplatin if you begin experiencing neuropathy. Mine reduced my dose by 20% and I have had no lingering neuropathy. I still have tingling up to 4 days after my infusion but you will be susceptible to cold. That is a known side effect of this drug.
I use Boiron Kali Phosphoricum homeopathic pellets for my tingling that you dissolve under your tongue (available on an Amazon of any health food store). It really works & quickly!!!
You should also be taking Vit B Complex daily as this is known to prevent neuropathy. These are what are working for me personally.
@frygirl777 , the big question is did your oncologist explain why he/she said NO so emphatically, or explain any risks?
For all, I don't remember if I addressed it in an earlier post, but some patients experience a phenomenon called "coasting," in which the CIPN continues to get worse for a while even after chemo is reduced or stopped. One paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3480245/
It took several months after stopping my Folfirinox for the neuropathy to resolve completely.
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You are very welcome! I hope what works for me, works for you too! 💜
@frygirl777 , the big question is did your oncologist explain why he/she said NO so emphatically, or explain any risks?
For all, I don't remember if I addressed it in an earlier post, but some patients experience a phenomenon called "coasting," in which the CIPN continues to get worse for a while even after chemo is reduced or stopped. One paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3480245/
It took several months after stopping my Folfirinox for the neuropathy to resolve completely.
I bought everything you mentioned)) Thank you again.
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1 ReactionHe said that the cold could permanently damage my nerves due to being in Oxaliplatin. I was not willing to take that risk.
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