Adults living with scoliosis, thoracic stenosis

Posted by OctaviaWood @octaviawood, Sep 13, 2012

Searching for Adults living with scoliosis, thoracic stenosis

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@annitta

I was diagnosed 14 months ago at the age of 62. The exam came about because my pain level was more than I could bare every day. One x-ray of the chest found the scoliosis and the doctor simply skimmed over it and said here is an n-said pain reliever and I will see you in 3 months and walked out of the room. I went to another doctor, after a neck and lumbar x-ray I was sent to physical therapy, too late, can't touch me the neck pain is to severe. I went back to my family doctor who has known me for 20 years and my track record of no complaints and no medications who pretty much said I will give you the pain meds you require but you will have to be very careful. That is where I am today, trying to learn what I can about this ugly monster that has affected everyday of my life and I had no idea that not everybody lives with the pain I have had, I thought I was supposed to deal with the headaches and leg and back pain that barely allows me to walk from one room to another after getting out of bed in the morning. I help myself by limiting certain activities that I now know I should not do and would not have done in my lifetime if I had known what I know now, but that is to late so I want you to know that the doctor has no clue what your pain is, she has more concern with the fact that you may ask for a pain killer that will work like vicodin. The n-said is a joke. I refuse to put that in my body. If you have high blood pressure which I never had until I was 61 (caused by the enlarged heart) you should not take these but my first doctor handed me two prescriptions before leaving the room. Lisinopril for high blood pressure and an n-said for the pain. Go figure. So do your research on the pain and I would say from experience that if you are continuing to live life the same as before your diagnosis yes it is getting worse because you need to know what your physical limitations are now and they are not what they were before. Sit down more you are entitled. Good luck!!

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I just had scoliosis surgery on my whole spine it is fused with rods and screws but not my neck . I was done like you just given medication when they knew I was in pain and even had spinal
pain stimulator put in but never helped was always getting it adjusted . my back hurt all the time couldn't do a lot I went to a specialty surgeon that did a scolosis x-ray . You said you have a enlarged heart maybe that's why they won't consider anything that might be surgery

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@ynnep510

I was born with scoliosis. Lately every few months I take a fall....and BAD ONES. This last one I broke my left knee and right hand. Last fall, in June, I cracked my right femur and cracked my right hip. I REALLY think my scoliosis DOES contribute to my falls. This last time, I felt my right foot hit the back of my left leg. I'm DISGUSTED! Every time I take a fall, my fiance yells at me Like I Did It On Purpose! There HAS to be an explanation for this!

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I personally think your fiancé should be holding onto you a whole lot better so you don’t fall. You should be yelling at him “why didn’t you stop me”! You need to be evaluated by a physiatrist or PT to determine the source(s) of your imbalance. I hope you’re utilizing walking devices to help steady yourself?

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