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Scoliosis - Introduce yourself and meet others

Posted by @JustinMcClanahan, Apr 25, 2017

Let’s talk about living with scoliosis.
As a community moderator of the Bones, Joints & Muscles group, I’ve noticed several members talking about scoliosis, but those discussions were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Get comfortable in your favorite spot, grab a beverage of your choice, and let’s chat. Why not start by introducing yourself?

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@JustinMcClanahan

Hello @leslie324, @vickiekay, @gailb, @cathyh, @edieguinn, @jeriliz, @christinek, @sutherlin, @kdubois, @123zale, @vbrunette, @atrex, @bernese53, @trish602, @barbara94, @johnjames, @lynettegable@annieecruz, @detzler@sauwoon8@mieke@ruben130476@safetyshield, @mieke, @rareeby, @kpete65,  and @disgusted. I would like to invite you to the new discussion about all things scoliosis to make it easier for you to meet other Connect members discussing and living with scoliosis.

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i’m 60 years old and about 4 years ago i was diagnosed with scoliosis. i started taking a protein/collagen chew daily since diagnosed i don’t suffer with the pain as much

***NOTE FROM THE COMMUNITY DIRECTOR***

May 2017

Investigation revealed that @cintam has a commercial affiliation with the product she claims to be using for various pain, neurological and muscoskeletal issues. Furthermore the product has not been FDA approved. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect’s Terms of Use https://connect.mayoclinic.org/terms-of-use/.

For this reason, this user has been removed for the community.

Colleen Young

Community Director, Mayo Clinic Connect

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@JustinMcClanahan

Hello @leslie324, @vickiekay, @gailb, @cathyh, @edieguinn, @jeriliz, @christinek, @sutherlin, @kdubois, @123zale, @vbrunette, @atrex, @bernese53, @trish602, @barbara94, @johnjames, @lynettegable@annieecruz, @detzler@sauwoon8@mieke@ruben130476@safetyshield, @mieke, @rareeby, @kpete65,  and @disgusted. I would like to invite you to the new discussion about all things scoliosis to make it easier for you to meet other Connect members discussing and living with scoliosis.

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I would love to know the specifics about the chewable protein/collagen that you are taking! What brand? Where do you purchase it?

My name is Lori. I had surgery (fused) when I was 4 or 6. I am very lucky my back does not bother me at all. I am currently 54 years old.

@llarosa

My name is Lori. I had surgery (fused) when I was 4 or 6. I am very lucky my back does not bother me at all. I am currently 54 years old.

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Glad to hear this @llarosa! (My daughter is 14 and had her fusion two years ago.)

Scott 56 year old male have had life long symptoms from scoliosis. I was aware of the condition at age 17, after years of back pain.

@JustinMcClanahan

Hello @leslie324, @vickiekay, @gailb, @cathyh, @edieguinn, @jeriliz, @christinek, @sutherlin, @kdubois, @123zale, @vbrunette, @atrex, @bernese53, @trish602, @barbara94, @johnjames, @lynettegable@annieecruz, @detzler@sauwoon8@mieke@ruben130476@safetyshield, @mieke, @rareeby, @kpete65,  and @disgusted. I would like to invite you to the new discussion about all things scoliosis to make it easier for you to meet other Connect members discussing and living with scoliosis.

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@sutherlin, I haven’t had fusion surgery, but my brother had the L4-L5 fusion last year. He had about 3 weeks of pain from the surgery, but now, 1 year later, he’s much better than he was before the surgery. It took probably 6 months for him to make progress and now I think he’s doing too much. He still has pain, but not as much. His surgeon said he would have pain and that’s not why he was getting the surgery. The goal of the surgery was to keep him from needing a wheelchair, not pain relief.

Burt davis. Diagnosed with scoliosis and osteoarthritis about 10 years ago. Progressing and now have no ability to stand for more than 15 minutes.My curve is approaching 55 degrees. Severe radicular pain and weakness in my right leg. Preparing for laminotomy on two levels of my lumbar spine this June at Mayo. Hoping for increased mobility not pain relief. I was walking 18 hole golf courses 2 times each week ten years ago. Now on a good day i can walk about 100 yards.

@jeriliz

I’m Jeri. I am 75 and was diagnosed with scoliosis about 15 years ago. I have many other spine problems and live with a lot of pain.

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I had hyperparathyroidism because of a tumor on my parathyroid gland. The head and neck surgeon at University of Arkansas School of Mediciene removed it. They use a radioactive deal to know exactly where the tumor is located and a PTH level run in surgery to know for sure they removed it. Several, but not most, medical centers have this capibilty. Removing the tumor will stop the calcium from being leeched from your bones.

I’m a new member so can’t post links. But please search ‘Huber machine physio’ in google to see what I’m talking about

I was diagnosed when I was 11 and wore a brace 22 hours a day for 2.5 years. I think at the time there wasn’t much/enough knowledge on the after effects of being braced. Though my curvature was better when I came out of it, I had so many issues with pain, trapped nerves, muscle imbalance, strength and breathing. I couldn’t stand or sit for any longer than 10 minutes. I tried so many different Physio’s and doctors and nothing helped until I found my Physio who I still see today 10 years later. She used a combination of deep tissue reesss and the huber machine shown in the link above. It absolutely changed my life. I am 90% pain free and compete at an elite level in athletics now which o couldn’t have even fathomed beforehand. I recommend it to anyone who has scoliosis or any back issues really that will listen!

@jeriliz

I’m Jeri. I am 75 and was diagnosed with scoliosis about 15 years ago. I have many other spine problems and live with a lot of pain.

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@jeriliz, I too was told about 15 years ago that I have scoliosis. I remember having to wear leg braces with big oxfords when I was young. They were probably to correct something to do with the scoliosis, no one ever told me why. Only recently has it become a problem as my back is giving up to degenerative disk disease and all the other problems that happen to lumbar disks. I had a laminectomy in December, 2016, and was on 3 different prescriptions for pain and muscle spasms. I have stopped taking 2 of the drugs and now only take Tramadol primarily for my arthritis. I decided feeling the pain was preferable to feeling drugged and goofy. Good luck with your scoliosis.

Hi my daughter is 15 with microcephaly and epilepsy she has a 50 degree curve. She wears a brace. What different types of surgery are there? She has the s curve. She’s in verbal and I’m terrified of the surgery!

@JustinMcClanahan

Hello @leslie324, @vickiekay, @gailb, @cathyh, @edieguinn, @jeriliz, @christinek, @sutherlin, @kdubois, @123zale, @vbrunette, @atrex, @bernese53, @trish602, @barbara94, @johnjames, @lynettegable@annieecruz, @detzler@sauwoon8@mieke@ruben130476@safetyshield, @mieke, @rareeby, @kpete65,  and @disgusted. I would like to invite you to the new discussion about all things scoliosis to make it easier for you to meet other Connect members discussing and living with scoliosis.

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Where did you have surgery at? My daughters 15 and she needs the surgery and I’m scared to death! Thanks Melissa

I am 54 years old, was diagnosed with scoliosis at age 14 and wore a Milwaukee Brace for 3 years. I am interested in how this will affect me as I age and what I can do to stay healthy.

I’ve been diagnosed with scoliosis at 16 years old, and I am now 45 and my curvature has gotten to 42 degrees now. I have degenerating discs too now. It has gotten soooooo painful! I wake up every morning now with back spasms, it almost feels like the muscles in my spine are highly inflamed. But there seems to be no cure? What exactly can I do? My orthopedic surgeon just tells me to try to swim, and that we will just monitor its further progress every year. I feel so helpless. Meanwhile, I still wake up with the pain every day, it goes all the way down to my hips and legs now. Ouuuuuuccchhh!!! :-(((
What else can I do? I can’t imagine living like this until I die … OMG. 🙁 Helpppp!

@JustinMcClanahan

Hello @leslie324, @vickiekay, @gailb, @cathyh, @edieguinn, @jeriliz, @christinek, @sutherlin, @kdubois, @123zale, @vbrunette, @atrex, @bernese53, @trish602, @barbara94, @johnjames, @lynettegable@annieecruz, @detzler@sauwoon8@mieke@ruben130476@safetyshield, @mieke, @rareeby, @kpete65,  and @disgusted. I would like to invite you to the new discussion about all things scoliosis to make it easier for you to meet other Connect members discussing and living with scoliosis.

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I am 31 years old living in south korea. I had diagnosed 15 degree scoliosis in high school.
Is there a therapy of scoliosis
How about Schroth’s therapy?
I have twisted feeling and pain on shoulders and back. today it is getting worse so I have to quit my job. I have deep depression.

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