Scoliosis - Introduce yourself and meet others

Let's talk about living with scoliosis.
As a community moderator of the Bones, Joints & Muscles and Spine Health groups, I've noticed several members talking about scoliosis, but those discussions were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Get comfortable in your favorite spot, grab a beverage of your choice, and let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Spine Health Support Group.

Hello everyone,

It’s time to open a new group dedicated to Spine Health. All discussions related to spine health, such as back pain, brachial plexus, disc degeneration, scoliosis, spondylolysis, stenosis, spondylopathy and more can now be found in the Spine Health here, https://connect.mayoclinic.org/group/spine-health/.

+Follow the Spine Health group and continue to connect with others and share your experiences, ask questions and encourage each other on your health journey.

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@oliviab

I am a 75 year old female with untreated lumbar scoliosis. I am told my curvature is 37
degrees. At present I am taking medication for pain which enables me to still take care of my yard, garden and dogs. The worst pain (right sided ribs and lower lumbar) stays about 3-8 on the pain scale. I would love to connect to others with this condition.

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I am 64 with idiopathic scoliosis that wasn’t discovered until 3 years ago. I have an S curve with a 22 degree curve in the thoracic spine and a 33 degree curve in the lumbar spine. I rely on a small TENS unit, ice, and core exercises to manage the pain.

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@ldawn

I am 64 with idiopathic scoliosis that wasn’t discovered until 3 years ago. I have an S curve with a 22 degree curve in the thoracic spine and a 33 degree curve in the lumbar spine. I rely on a small TENS unit, ice, and core exercises to manage the pain.

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ldawn, the exercises helped me for a while and I was able to continue riding and caring for my horse. As it progressed to 37 degrees I had to give up that life long passion. That was devistating to me and worse to handle than the pain.

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@oliviab

ldawn, the exercises helped me for a while and I was able to continue riding and caring for my horse. As it progressed to 37 degrees I had to give up that life long passion. That was devistating to me and worse to handle than the pain.

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I understand; giving up what we love to do is hard. Can you be involved with horses in another way, like a 4 H program? Have your doctors suggested anything besides medication?

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I am a 75 year old female with untreated lumbar scoliosis. I am told my curvature is 37
degrees. At present I am taking medication for pain which enables me to still take care of my yard, garden and dogs. The worst pain (right sided ribs and lower lumbar) stays about 3-8 on the pain scale. I would love to connect to others with this condition.

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@ldawn

I understand; giving up what we love to do is hard. Can you be involved with horses in another way, like a 4 H program? Have your doctors suggested anything besides medication?

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Yes, I have worked with many interventions over the past 15 years.
Medication, and keeping active with my gardens and little farm are what is the most viable for me at this time. I would have kept my horse even without riding, but a 1500 pound animal even bumping me unintentionally could put me on the ground. I do get to see her regularly though. How are you doing with activities?

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Hello @oliviab,

Welcome to Connect. You may notice that I moved your message and combined it with this existing discussion. I did this as I thought it would be beneficial for you to be introduced to the many members who are also talking about scoliosis.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

Here’s a Q&A from Mayo Clinic about "Untreated Moderate to Severe Scoliosis May Continue to Progress” that might interest you – https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-untreated-moderate-to-severe-scoliosis-may-continue-to-progress/

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@kanaazpereira

Hello @oliviab,

Welcome to Connect. You may notice that I moved your message and combined it with this existing discussion. I did this as I thought it would be beneficial for you to be introduced to the many members who are also talking about scoliosis.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

Here’s a Q&A from Mayo Clinic about "Untreated Moderate to Severe Scoliosis May Continue to Progress” that might interest you – https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-untreated-moderate-to-severe-scoliosis-may-continue-to-progress/

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Thank you for for your help.

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Too whom it may concern my first name is Veronica Lynn schenck I know that I have scoliosis too in my back too how can I get my back fixed too I am disabled and live on my own one bedroom apartment and am disabled too and I am 43 years old too I live in the United States of America too and I live in Cranston Rhode island near broad Street near edge wood elementary school on Wentworth Ave in Cranston Rhode island 02905 what doctor's could take a look at my back and do surgery on my back if they think if it is that bad too because sometimes I can't stand the pain at all and the closest hospital would be Rhode Island hospital too for the scoliosis too please let me know by finding me a really good doctor too look at my back and do e x s and what ever else they need too do and if they need too admit me too do the scoliosis surgery they can find a really good doctor too for me too please message me back.

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@vschenck

Too whom it may concern my first name is Veronica Lynn schenck I know that I have scoliosis too in my back too how can I get my back fixed too I am disabled and live on my own one bedroom apartment and am disabled too and I am 43 years old too I live in the United States of America too and I live in Cranston Rhode island near broad Street near edge wood elementary school on Wentworth Ave in Cranston Rhode island 02905 what doctor's could take a look at my back and do surgery on my back if they think if it is that bad too because sometimes I can't stand the pain at all and the closest hospital would be Rhode Island hospital too for the scoliosis too please let me know by finding me a really good doctor too look at my back and do e x s and what ever else they need too do and if they need too admit me too do the scoliosis surgery they can find a really good doctor too for me too please message me back.

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Hello @vschenck, welcome to Connect. You may notice, I edited the last sentence of your post to remove your phone number. I did this because Mayo Clinic Connect is a public site and it is important to protect your private information from potential spammers and salespeople. If you are replying by email, it is important to also know that your email generates a post on the Mayo Clinic Connect website in the discussion you are responding to and that is a public site. You can always click on VIEW & REPLY in your email notifications to understand where your post goes on the website in the discussions that you are participating in.

@vschenck, If you are comfortable sharing a bit more while we wait for other members to share their insights with you, have you had any contact with the Rhode Island hospital?

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