Scoliosis - Introduce yourself and meet others

Its so hard to sort ones self out when there is a bundle of problems. Just which one do we prioritise tonight and which one will be the leader in the morning. I am amazed that you can even type with that bouquet of medications. but realise you have to have them unless you could wean off with a great team. And it would take over 6mths or longer.
The only suggestion but it sounds like you are trying hard to do that is to set a goal, to have the clock organise your life, rise and do chores by a certain time, have frequent rest periods and slowly reduce them. When there is energy use it when there isn't then sleep off the lethargy. I have days where I just write it off as my recliner is the only place that seems to give enough energy for me to just breathe. I hope someone has an answer for you

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Hi all ..... my oldest daughter, who is now 46 was diagnosed with scoliosis at about age 8 or 9. I knew something was wrong because one of her patellas protruded considerably farther than the other. At the time, our then Pediatrician sent us to an Orthopedic Surgeon who had a P.T. woman from Germany .... her name was Annaleise and she was a wonderful human being. Each time we went, first weekly for about a year, then every 2 weeks, and then monthly. she gave my daughter a series of exercises, adding an additional one each time we went. I sat there and wrote each on a card, and drew a stick figure showing how it should be done. She and the Orthopedic Surgeon said that if they could just get her passed the time her bone plates were growing, it would not get worse. Each time we went the P.T. "measured" her curve (it's an "S" shape) .... you all probably know how they do that. When she went through the growth spurt (she's now 5'10") she had to do them 2x a day .... AM and PM. I would sit with her to be sure she did them right. They weren't easy and they weren't fun, but by the time she was about 18 or thereabouts, her bones had formed to the point where she only had to do them once a day. God bless her ..... she was so very faithful doing them, and I think that was because she was terrified she'd need the Herrington Rods. She obviously still has scoliosis, but nothing changes any longer. She's careful though about what she wears in a tank top or bathing suit, making sure it's not as obvious as it could be. She's had 2 children and even with the pressure of the weight of the baby in her abdomen, no change. Sure, I imagine surgery would have made it straight, but no one knows it's there unless she wears something that allows it to show.
To this day, I thank God for Annaleise, and for my daughter who was so faithful in those exercises all those years.
abby

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I was born with scoliosis (adopted). I fell about 15 yrs ago & fractured my left clavicle. Broke right wrist in 1996 % developed RSD/now called CRPS. I did hand therapy, pain help, neurologist & therapy.

I fell on my face in street last 3/17. Since then, l slowly see my neck, shoulder & back issues get worse.

I am on Effexor 150 mgs, Oxycodone 325 mg 2x a day, Diazapam 10 mg, Mirtazazapine 30 mg, Metoprolol 50mg, Dilt-xr 180 mg, Melatonin 20-40 mg a day.

I feel tired all the time & doctors say it’s normal, but l feel pain every day. I do PT exercise at home & walk approx 6-8 miles a week. I meditate 2x or more a day. Limit cell time on social media/off by 9pm. My social life suffers. Damned if l do, damned if l don't.

Have trouble sleeping. Any running out of what to do.

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Its so hard to sort ones self out when there is a bundle of problems. Just which one do we prioritise tonight and which one will be the leader in the morning. I am amazed that you can even type with that bouquet of medications. but realise you have to have them unless you could wean off with a great team. And it would take over 6mths or longer.
The only suggestion but it sounds like you are trying hard to do that is to set a goal, to have the clock organise your life, rise and do chores by a certain time, have frequent rest periods and slowly reduce them. When there is energy use it when there isn't then sleep off the lethargy. I have days where I just write it off as my recliner is the only place that seems to give enough energy for me to just breathe. I hope someone has an answer for you

Jump to this post

Hi all ..... my oldest daughter, who is now 46 was diagnosed with scoliosis at about age 8 or 9. I knew something was wrong because one of her patellas protruded considerably farther than the other. At the time, our then Pediatrician sent us to an Orthopedic Surgeon who had a P.T. woman from Germany .... her name was Annaleise and she was a wonderful human being. Each time we went, first weekly for about a year, then every 2 weeks, and then monthly. she gave my daughter a series of exercises, adding an additional one each time we went. I sat there and wrote each on a card, and drew a stick figure showing how it should be done. She and the Orthopedic Surgeon said that if they could just get her passed the time her bone plates were growing, it would not get worse. Each time we went the P.T. "measured" her curve (it's an "S" shape) .... you all probably know how they do that. When she went through the growth spurt (she's now 5'10") she had to do them 2x a day .... AM and PM. I would sit with her to be sure she did them right. They weren't easy and they weren't fun, but by the time she was about 18 or thereabouts, her bones had formed to the point where she only had to do them once a day. God bless her ..... she was so very faithful doing them, and I think that was because she was terrified she'd need the Herrington Rods. She obviously still has scoliosis, but nothing changes any longer. She's careful though about what she wears in a tank top or bathing suit, making sure it's not as obvious as it could be. She's had 2 children and even with the pressure of the weight of the baby in her abdomen, no change. Sure, I imagine surgery would have made it straight, but no one knows it's there unless she wears something that allows it to show.
To this day, I thank God for Annaleise, and for my daughter who was so faithful in those exercises all those years.
abby

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HILSY - I wonder why it isn't used more here? It's effective. I guess once again because we are so far behind some of our European counterparts.
abby

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Hi all ..... my oldest daughter, who is now 46 was diagnosed with scoliosis at about age 8 or 9. I knew something was wrong because one of her patellas protruded considerably farther than the other. At the time, our then Pediatrician sent us to an Orthopedic Surgeon who had a P.T. woman from Germany .... her name was Annaleise and she was a wonderful human being. Each time we went, first weekly for about a year, then every 2 weeks, and then monthly. she gave my daughter a series of exercises, adding an additional one each time we went. I sat there and wrote each on a card, and drew a stick figure showing how it should be done. She and the Orthopedic Surgeon said that if they could just get her passed the time her bone plates were growing, it would not get worse. Each time we went the P.T. "measured" her curve (it's an "S" shape) .... you all probably know how they do that. When she went through the growth spurt (she's now 5'10") she had to do them 2x a day .... AM and PM. I would sit with her to be sure she did them right. They weren't easy and they weren't fun, but by the time she was about 18 or thereabouts, her bones had formed to the point where she only had to do them once a day. God bless her ..... she was so very faithful doing them, and I think that was because she was terrified she'd need the Herrington Rods. She obviously still has scoliosis, but nothing changes any longer. She's careful though about what she wears in a tank top or bathing suit, making sure it's not as obvious as it could be. She's had 2 children and even with the pressure of the weight of the baby in her abdomen, no change. Sure, I imagine surgery would have made it straight, but no one knows it's there unless she wears something that allows it to show.
To this day, I thank God for Annaleise, and for my daughter who was so faithful in those exercises all those years.
abby

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Hi my daughter was just diagnosed with Scoliosis and i am scared to death. she has a 70 rotational curve i think that is right . and the first doctor we talked to wants to do spinal fusion and rods she is 12 and i am worried about all the pain and 50% of movement loss.. they said they would have to go down to the L3. I have been looking around on the internet and have come to terms with some sort of surgery for the degree of curve she has but i found something called VBT Vertebral Tethering.. does anyone know about this and the outcome? also if they could do it on a rotational curve? any advice or your own experience would be great . Thanks

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