Undifferentiated Pleomorphic Sarcoma

Thank you for the positivity @ayjay ❤️‍🩹
I’ve only been completed 4 of my radiation treatments and I have 21 more to go👍
I am tolerating it well but I don’t like the nightmares from the Morphine so we are going to try switching to the Buprenorphine patch. I think I will need to request Home physical therapy to keep my leg from “freezing up” even though I am doing my exercises. I am pretty much bed ridden because of previous injuries to my sciatica and lower back, so transportation requires me to lay down flat. Happy to have found this group.

I'm so sorry to hear about your painful treatments. I understand what you're going through and would appreciate it if you would keep me posted on your journey. It always helps to share.
God bless.

Hi Mickay and Gemmalt -
My Mom has a similar diagnosis and wondering if you have an update on what has worked in the past few months? Thanks in advance -

Hi dpla.

My name is Rafael… my dad had UPS. Hope you are doing well.

So how is he doing now? How long ago did he have it?

I am a 3 time cancer survivor from 1982, 2008, and 2020. All different, all bad, and all ending in surgery. UPS was the last, with 13 MRI and 13 CT scans so far, and no mets elsewhere. In 04/2025, I go to 1 per year for the rest of my life. I know from experience that the best thing a patient can have is a good to great positive attitude. You will not get over cancer, but your positive attitude will get you through all of the appointments, tests, diagnoses, fears, pain, and bad information ahead. Stay positive and believe you will get through this. Do not take NO for an answer. Best wishes on your journey.

I was diagnosed with pleomorphic sarcoma in my right upper leg last May30,2024 and was operated on July 26. The oncologist surgeon thought the sarcoma was freestanding until he opened me up. The femoral nerve was also part of the mass and had to come out. I have had 30 days of radiation and get checked in Feb. 2025 to see if it has metastasized to my chest. Since the nerve was removed, I need to use a brace and walker. I also found out after surgery that I had this sarcoma for 3 years and I think it was Stage 2 (maybe 3). I never felt it or I’ll in any way; not even when ai was diagnosed.
Do you have pleomorphic sarcoma? Have you had surgery? It is so good for me to be able to communicate with others who may have this sarcoma. Please continue to share your story. It’s frustrating for me not to have anyone else to talk with about this.

I had a 1.9 cm ups removed in October and going thru 35 radiation treatments now. I think we caught mine early and I was told it was superficial. It was on my left shoulder and the 1st CT scan said no other problems. Mid March is my next check up and I am doing well. I have continued everything I was doing other than being able to head to a warmer climate. Seems no one knows much about ups. Good luck 🤞

Hello Lydia. I have been exactly where you are. I had same sarcoma in same place. 25 radiation treatments in 02/2020, surgery 04/2020, 3 years of mri & chest ct's evrry 3 months, and 2 yrs of same tests every 6 months. In 05/2025 I start a once a year regimen for the rest of my life. The regimen is required to look for Mets. So far so good. At 76 years old, this is the 3rd bad cancer I've had, all totally different. I've learned that the best thing a patient can do is to maintain a great attitude and do the test regimen on time. Mayo's Orthopedic Oncology is the best. Trust what they do and say. You can get through this. Best wishes to you.

UPS is rather rare, aggressive, and high probability for Mets to other locations. It is extremely important to follow the test regimen on schedule. Stay vigilant in checking your whole body. UPS usually occurs in arms and legs, but can be anywhere. Best wishes to you.