Does anybody have experience with SANEXAS for neuropathy?

Posted by knucklehead4352 @knucklehead4352, Jan 6, 2021

Does anybody have experience with SANEXAS. It is touted as Electric Cell Signaling Treatment especially for peripheral neuropathy.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@seanmacbeth

Same experience here: tried for three months TENS treatment.. Nothing. Began to think it was just another scam. Then I discovered Sanexas, said to be stronger, more effective treatment but can't find anyone local .

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thats the problem i'm having,the place in dublin ohio went out of business.and i can't find anyone else in ohio.

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seanmacbeth = I have same diagnosis, major problem is numbness, balance and drop foot, no pain. Out of curiosity, I did e-mail the company 4 days ago to see if this type of treatment plan would be effective for sensory motor PN. I mentioned I have no pain. No response. Some people reported it reduces pain levels so how will it work with our dx. Hope it has some effectiveness, be interested in knowing. Ed

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Does anyone have any experience with radio frequency ablation or pulsed radio frequency therapy? Johnmacc

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@amandajro

Hello @knucklehead4352 and welcome to Mayo Clinic Connect. I understand you are interested in hearing from members with experience with SANEXAS. I did a quick search on the site and found the following comments that you might find helpful by @erikas @dont
https://connect.mayoclinic.org/discussion/shingrix/?pg=17#comment-432255
https://connect.mayoclinic.org/discussion/just-diagnosed-2/?pg=10#comment-431976
Do you have PN and where did you come across information on SANEXAS, if I may ask?

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16 treatments..nothing, got most money back. wrong codes I guess.

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@vb3

16 treatments..nothing, got most money back. wrong codes I guess.

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Had first treatment for 3 mos two years ago and felt no difference, but just started another round this week and will give it another try, since they have changed the protocol: added acetyl-l-carnitine to injection formula. The Sanexas company works closely with my clinic here in the Richmond area and will make adjustments as needed for individual cases. I have never taken any Rx, only supplements from naturopathic, ayurvedic and TCM medicine. Also use reflexology and walking several miles daily, which seems to help.

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@njed

seanmacbeth = I have same diagnosis, major problem is numbness, balance and drop foot, no pain. Out of curiosity, I did e-mail the company 4 days ago to see if this type of treatment plan would be effective for sensory motor PN. I mentioned I have no pain. No response. Some people reported it reduces pain levels so how will it work with our dx. Hope it has some effectiveness, be interested in knowing. Ed

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New to Connect and don't really know how to use it, but hope this reaches you. Same diagnosis here : axonal multi sensory motor neuropathy. Frankly, I think that's all they do: diagnosis, since they have no idea how to treat it. My opinion is that if you live long enough, everybody gets some nerve damage because of the toxic environment of EMFs. We're bathing in a sea of nuclear waste. I've seen my last neurologist. Now I try any herbal, homeopathic and Ayurvedic treatment I can find. Rediscovered reflexology just now and will make it a part of my treatment. There is no cure, like Alzheimer's, just management, and struggling on. Good luck to all of us…..

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@beardog

thats the problem i'm having,the place in dublin ohio went out of business.and i can't find anyone else in ohio.

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web LISTS:
1. Neuropathy Pain Center 7809 Laurel Ave, Cincinnati, OH 45243 (513) 204-9061
2. Columbus NeuroDoc Neuropathy Treatment Center 383 W Main St, Westerville, OH 43081 (614) 890-3500
3. Lifestyle Medical Solutions 3998 Indianola Ave, Columbus, OH 43214 (614) 573-7747
4. Neuropathy Solutions 11123 Montgomery Rd #200, Cincinnati, OH 45249 (513) 342-3800
5. Sandusky Wellness Center 3703 Columbus Ave, Sandusky, OH 44870 (419) 625-8085

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@seanmacbeth

New to Connect and don't really know how to use it, but hope this reaches you. Same diagnosis here : axonal multi sensory motor neuropathy. Frankly, I think that's all they do: diagnosis, since they have no idea how to treat it. My opinion is that if you live long enough, everybody gets some nerve damage because of the toxic environment of EMFs. We're bathing in a sea of nuclear waste. I've seen my last neurologist. Now I try any herbal, homeopathic and Ayurvedic treatment I can find. Rediscovered reflexology just now and will make it a part of my treatment. There is no cure, like Alzheimer's, just management, and struggling on. Good luck to all of us…..

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seanmacbeth – I know where you are coming from. I sort of felt the same way but then in the past few years I' ve revised my thinking. I've had PN for about 7 years, small amount prior to 2015-16 but that is when I got my first dx. My view is we need to allow these specialists to do tests, provide diagnosis, otherwise, there will be no cure. I feel the more the medical field learns about PN, the closer they will find the variety of triggers that likely cause this. I agree with you 100% about the toxic environment, damage done years back now surfacing later in life. DDT used to kill bugs in the 40's, 50's and 60's then found to be a toxin to humans and banned. Just an example. I find that if I lower my expectations of what I can do because of my PN, then do those things within my ability, I feel better. Also, still have not heard back from the company and my prior post. Hmmm. Best to all.

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I developed neuropathy from my knees down on both legs about midyear 2021. My first indication that I paid attention to was: not being able to stand in one position while in line. I had hip replacements in 2013 and 2015. Before I got braces on both feet in August of 2021, I noticed that I was having problems while driving with getting my right foot from the gas to the brake. I was examined and diagnosed with foot drop. I had no real pain (surgery was not suggested) but was diagnosed with adequate nerve function to the knees but not to the feet. I started PT, acupuncture, and some chiropractic adjustments. I drove using right foot only on the gas and left for brakes. After about six months I was able to drive normally again. Medicare quit paying for PT then (born in 1949). I sit in front of the computer most hours of the day. I do walk a small dog about 2/3 mile each day.
I signed on to a chiropractic program in March 2022 that put me on non-inflammatory diet, Anodyne red and infrared light therapy (2 half hour sessions per day), ReBuilder (feet in separate water units and variable electric current from a 9-volt battery (2 half hour sessions per day), supplements, and Softwave (brand of shockwave) treatments after 3 months of the previously mentioned treatments. I have lost 40 pounds. I did keep doing acupuncture. Walking the dog seemed to be slowing down.
I used a chiropractor for Softwave near me (90-minute drive) and after eight treatments I was not happy with my progress. The chiropractor suggested Sanexas that was also available in his office. I have had five Sanexas treatments and added a few more exercises to my daily routine. I did get more speed walking. The same chiropractor provided me with a LZR ultrabright (2” X 6” red and infrared light therapy – 20 W for 30 seconds per area – three times a day for about 5 minutes total). I treat my head, neck, chest, stomach, and feet. I have been doing this for more than a week but feel like I have improved sleep and walking ability. There seems to be more feeling and control below my knees.
Every treatment seems to indicate it takes months and maybe years to reverse neuropathy. I hope my situation continues to improve. I am mostly happy with it not getting worse, but feel diligence will only keep it from getting worse. I plan to keep up with Sanexas for a while and may purchase a LZR ultrabright if I start to backslide on my progress. My case is only one neuropathy condition and it seems everyone has to search for what may work for them.

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Diagnosed with idiopathic PN. I have numbness, cold and pain in feet, lower legs, hands and forearms. Neurologist said there is no effective treatment but that some have had some success controlling pain with acupuncture but no one has had any luck with a chiropractor. I found acupuncture to be very relaxing, but didn't help with PN. I read about relief for PN in a local Pennysaver ad type newspaper. I went and spoke with a chirporactor at a local wellness center. When he explained the process to me it sounded like a sales job for something that didn't sound medically possible. He then suggested I talk to patient currently being treated for PN on a Sanexas. Her story sounded too good to be true. Her initial symptoms sounded like mine only worse. However, she was now doing much better and explained her newfound ability to feel her feet and walk comfortably. The chiropractor told me medicare now covered the treatment and explained their high success rate for people who aren't too far advanced with their PN. I was skeptical but in today's world, my experience is that too many doctors are only following the advice they are allowed to dispense per the orders of their hospital owners group. I agreed to try the Sanexas treatment. My results have far exceeded any gains I would have thought to be possible. My numbness almost disappeared. Fast forward three months and some of my numbness has returned. Medicare pays for 20 treatments per year so I can return next calendar year and have 20 more treatments. If I decide I need/want more than I can pay out of pocket for it. For me, it's been a rare victory against a medical problem where I was told there was no treatment.

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