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Rosai-Dorfman Disease (Sinus histiocytosis)

Posted by roger191 @roger191, Jan 20, 2019

Hello I was wondering if anybody here has ever heard of this autoimmune disease. If so, what treatment worked for you. Thank you

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robins12 | @robins12 | 9 hours ago
In reply to @michelliot "Hello @robins12. Thank you for the reassurance about taking Cotellic. Im worried about the side effects..." + (show)
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Hello @robins12. Thank you for the reassurance about taking Cotellic. Im worried about the side effects because of the increased risks of rash and severe sunburn. Did you also have bad GI sides effects like nausea, vomiting, diarrhea, etc?

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@michelliot I did when I was taking 3 pills a day. I cut back to 2 and side effects were a lot less severe. I do have some nausea but when it gets bad I take Onda setron 4mg tablet and feel better pretty quickly. I also get echo cardiograms every 3 months to make sure the Cotellec is not affecting my heart. I have my eyes checked every 6 months and skin checks every 6 months to check on any possible side effects from the drug.

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