Rocky Mountain Spotted Fever - Anyone Ever Have This Experience?
In late February I woke up at 3am feeling like I was coming down with the flu. Body aches and chills. For a couple hours I couldn’t get warm enough no matter how many blankets, shaking a lot from the aches. This turned into a mild fever around 6am. I eventually started a really bad headache. These symptoms lasted until about 5pm in the afternoon. Unable to get out of bed all day. The headache was terrible. At about 8pm I felt somewhat normal. I figured this was a 24 hour flu. The next day I woke up and felt completely normal.
This same thing happened about a week later. Same exact symptoms starting in the middle of the night.
For 50 years old, I’m pretty healthy, 5’11” 180lbs, exercise about 4-5 days a week, eat fairly clean, no drugs, maybe a drink or 2 a night. Blood work always comes back normal except for slightly elevated cholesterol. I thought maybe it was alcohol so I really limited that.
It hit me again about 5 days later. I had had 1 drink during dinner that night.
The exact symptoms returned about a week later, at 3am again. I had 1 sip of whiskey so again, I thought maybe that was it but was puzzled how one single sip at like 5pm would cause me the same terrible symptoms.
About 5 days later, it happened again. The only thing out of the ordinary was a Kombucha that I had drank in the afternoon. I actually drink Kombucha a few days a week so again was puzzled if that was it. I know those can have a trace amount of alcohol.
I finally got in to see my doctor and got a blood test. C protein inflammatory was abnormal (18) and positive for Rocky Mountain Spotted Fever but a pretty weak result from what I understand.
I started Doxycycline and didn’t have any symptoms for 10 days. I also didn’t have any drinks.
About 5 days after my last dose, I had another episode, at about 3am again. Same everything as all the other times. Yes, I had a drink that night too but I had actually had a drink for the prior 3 days. My wife takes Doxycycline periodically for chronic acne breakouts so I started taking hers.
I had another blood test a few days later (while on the Doxy) and c protein inflammatory was still high (17) but no indication of Rocky Mountain Spotted Fever.
My primary set me up with a Rheumatology specialist who can’t see me for months and told me I shouldn’t take the Doxy. I’m not really sure what that’s all about but I agreed to it. Well, I haven’t had any episodes while on Doxy so my play is to take it for 30 days and see what happens after that. I’ve had drinks during this time and have been fine.
Some might be thinking, just stop drinking completely. Yup, that can happen if necessary and that seemed to be the common denominator but 1) I do enjoy a glass of quality whiskey at sunset and 2) I’m definitely trying to figure out if that is truly the reason. So far it seems like it’s not since I have a least a dozen instances where a drink or two don’t affect me. It’s not an alcohol allergy or I would have episodes every night I have it and that hasn’t happened.
These tick born illnesses seem really tricky to sort out. I did pull two ticks off of me in the last 6 months so a tick illness made sense. I’m hoping that 6th episode after the first 10 day round was a result of not completely killing off the infection. I also hope after I finish the 30 day round of Doxy, I’m completely back to normal.
Anyone ever have symptoms like this? To note, it always hit at around 3am. No GI issues, sore throat, cough, or runny nose. Just really bad aches, chills/fever, and headache. 6 episodes in total over about 2 months. Never happens when I’m actively on Doxy. I do take a injectable called Taltz which is for Psoriasis. I was taking it once a month for about 2 years but haven’t been as consistent with that in the past year. Maybe one injection every 4 months. My psoriasis hasn’t returned taking the med with that frequency.
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The weak positive test may be a false positive occurring so long after symptoms started.
Complete battery of tick borne disease testing is in order.
The rheumatologist will need to consider the possibility of Psoriatic arthritis
as the cause of your systemic inflammation after a complete evaluation.
There is no specific test for psoriatic arthritis. Doxycycline has non specific anti-inflammatory effects beyond its use as an anti infective.
Maybe see an infectious disease specialist if one is available.