Is everyone here diagnosed with PMR seeing a rheumatologist?

Oops no edit button for my wayward thumbs
*(They had bloodwork done and two CTs)

You were fortunate to find a Dr. who so quickly diagnosed it for what it was.

I agree. I sent a nice email to the hospital coordinator to pass on to the ER doctor. I've seen him before for the diverticulitis and he is very good, perhaps not as practiced in the older people problems. a little knowledge could help someome after me.

I was diagnosed with PMR a year ago. I was initially put on 30 mg prednisone with a taper for one year. I felt fabulous for a couple of months until I reached the 20 mg mark. Then the pain came back with a vengeance. I asked my doctor for an appointment with a rheumatologist and that doctor said I was dis diagnosed. Took me gradually off all prednisone. Now they are saying the pain may be from my back, or my hips or myofacial pain coupled with hip and knee bursitis. Had two cortisone injections in the knee Friday. Waiting to see what happens.

Yes, I was diagnosed by a rheumatologist and regularly (every 6 weeks) see him. He also does bloodwork at every appointment to track my inflammatory markers and kidney/liver function. I hear that there is a shortage of rheumatologist and I drive about 20 miles from home to see mine but it is well worth it and I am grateful to have that option. Blessings!
Sandi

My GP gave me an immediate diagnosis that I had PMR after blood work. I went home and googled all I could about it and watched all YouTube videos available and knew her diagnosis was right on. She had patients with it and has updated info through her patients who see rheumatologists. So I have felt satisfied staying with her. This group has been extremely helpful. After about 20 months on prednisone I have finally weaned off of it and I have been off of it for a month now. So far so good.

Yes, I had been seeing a rheumatologist for fibromyalgia and osteoporosis, then new symptoms and Polymyalgia Rheumatica has been diagnosed. If you can see one, I think it is a good idea to ask questions about your condition and discuss treatment and options.

I get bloodwork done every 6 months, but that is necessary before the Prolia injection which is for osteoporosis. I imagine the schedule depends on your doctor and your condition.

Hi @chanciesmommy2018, I see that you have been a member for awhile but this is your first post so I just wanted to jump in and welcome you to Connect. I'm sorry to hear that you joined the PMR club along with your other conditions. Mine has been in remission for about 5 years so far and I'm hoping it stays that way. You are so right about it being a good idea to ask questions about your condition and discuss treatment options. You have to be your own advocate.

How long ago did your Polymyalgia Rheumatica symptoms start? Are you on a tapering plan for prednisone?

I also started my PMR journey with my Internist. She’s very knowledgeable regarding this condition and I have total confidence in her. It’s a process balancing exercise, dosage levels, and pain/stiffness management (physical therapy did wonders for me) I was diagnosed in March of 2023 and so far I’m tapering at a good pace.